Totals
- Total revenue
- $323,934
- Total expenses
- $41,607
- Contributions and grants received
- $323,934
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $332,051
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $332,051
- Program services expenses (Part IX)
- $35,217
- Management and general expenses
- $2,779
- Fundraising expenses
- $3,611
- Program service expenses (Part III)
- $35,217
Program services were 84.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$323,934
Functional expenses
Part IX, the statement of functional expenses.
-
11c · Fees: accounting
total $2,500 · management and general $2,500
-
12 · Advertising and promotion
total $3,611 · fundraising $3,611
-
13 · Office expenses
total $1,890 · program services $1,651 · management and general $239
-
14 · Information technology
total $2,250 · program services $2,250
-
19 · Conferences, conventions and meetings
total $8,128 · program services $8,128
-
23 · Insurance
total $150 · program services $150
-
24a · Other expenses: RESEARCH
total $22,500 · program services $22,500
-
24b · Other expenses: LICENSES AND PERMITS
total $538 · program services $538
-
24c · Other expenses: TAXES
total $40 · management and general $40
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $49,724 · end of year $332,051
-
27 · Net assets without donor restrictions
beginning of year $49,724 · end of year $332,051
Mission and programs · 2022
Mission
MED13L PROVIDES SUPPORT FOR RESEARCH, ADVANCEMENT AND RAISING AWARENESS OF THE RARE GENETIC DISEASE, MED13L. THE OBJECTIVES OF MED13L IS TO RAISE AWARENESS IN THE LOCAL AND NATIONAL COMMUNITY ABOUT THE RARE GENETIC DISEASE, MED13L AND TO PROVIDE FUNDING FOR RESEARCH, DEVELOPMENT AND ADVANCEMENT INTO FIGHTING THIS DISEASE. THE ULTIMATE GOAL IS TO FIND OUT MORE ABOUT WHAT CAUSES MED13L AND FIND A CURE. IN OUR ENDEAVOR TO REACH THAT GOAL, MED13L STRIVES TO CREATE A SUPPORT SYSTEM FOR FAMILIES IMPACTED BY MED13L ALL THE WHILE PROVIDING FUNDING OPPORTUNITIES TO HEALTHCARE PROFESSIONALS AND RESEARCHERS WHO ARE HELPING TO FIND A CURE TO THIS RARE GENETIC DISEASE.
-
COORDINATE AND COLLABORATE WITH THE GLOBAL SCIENTIFIC COMMUNITY TO UNDERSTAND THE FUNCTION OF THE MED13L GENE IN ORDER TO DEVELOP EFFECTIVE TREATMENTS AND A CURE FOR MED13L SYNDROME. INCREASE MEDICAL COMMUNITY AND PUBLIC AWARENESS OF THE COMPLEXITY AND POTENTIAL SEVERITY OF MED13L SYNDROME. PROVIDE EDUCATIONAL AND EMOTIONAL SUPPORT FOR THOSE AFFECTED BY MED13L SYNDROME. RAISE MONEY TO FUND OUR GOALS.
Expenses $35,217
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Nick SeaverNICK SEAVER
PRESIDENT
- Total calculated
- $0
- Hours/week
- 10
-
Kelly SextonKELLY SEXTON
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 10
-
Katie Barry BoyschuckKATIE BARRY BOYSCHUCK
TREASURER
- Total calculated
- $0
- Hours/week
- 10
-
Kim SokoraiKIM SOKORAI
SECRETARY
- Total calculated
- $0
- Hours/week
- 10
-
Vanessa DiasVANESSA DIAS
MEMBER
- Total calculated
- $0
- Hours/week
- 10
-
Lacey AkinsLACEY AKINS
MEMBER
- Total calculated
- $0
- Hours/week
- 10
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 30 August 2023
- IRS schema version
- 2022v5.0
- Source object
- 202332459349300703
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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