Totals
- Total revenue
- $2,270,157
- Total expenses
- $1,630,109
- Contributions and grants received
- $2,270,157
- Grants paid
- $869,907
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $1,077,617
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $1,077,617
- Program services expenses (Part IX)
- $942,362
- Management and general expenses
- $77,403
- Fundraising expenses
- $610,344
- Program service expenses (Part III)
- $942,362
Program services were 57.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$1,462,684
-
1f · All other contributions, gifts and grants
$807,473
-
1g · Noncash contributions included above
$49,835
-
8a · Fundraising events: gross income
$0
-
8a · Fundraising events: contributions included on line 1c
$1,462,684
-
8b · Fundraising events: direct expenses
$0
-
8c · Net income from fundraising events
total $0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $869,907 · program services $869,907
-
5 · Compensation of officers, directors and key employees
total $171,632 · program services $17,163 · management and general $25,745 · fundraising $128,724
-
7 · Other salaries and wages
total $128,737 · program services $12,874 · management and general $19,310 · fundraising $96,553
-
10 · Payroll taxes
total $24,072 · program services $2,407 · management and general $3,611 · fundraising $18,054
-
13 · Office expenses
total $26,154 · program services $2,615 · management and general $3,923 · fundraising $19,616
-
14 · Information technology
total $4,836 · management and general $4,836
-
17 · Travel
total $18,826 · program services $1,882 · management and general $2,824 · fundraising $14,120
-
23 · Insurance
total $22,223 · management and general $5,556 · fundraising $16,667
-
24a · Other expenses: PROMOTIONAL MATERIALS
total $335,077 · program services $33,508 · management and general $0 · fundraising $301,569
-
24b · Other expenses: PROFESSIONAL FEES
total $20,055 · program services $2,006 · management and general $3,008 · fundraising $15,041
-
24c · Other expenses: DUES AND SUBCRIPTIONS
total $5,014 · management and general $5,014
-
24d · Other expenses: POSTAGE
total $2,444 · management and general $2,444
-
24e · All other expenses
total $1,132 · management and general $1,132
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $401,569 · end of year $1,034,867
-
9 · Prepaid expenses and deferred charges
beginning of year $36,000 · end of year $42,750
-
29 · Capital stock, trust principal or current funds
beginning of year $0 · end of year $0
-
30 · Paid-in or capital surplus, or land, building or equipment fund
beginning of year $0 · end of year $0
-
31 · Retained earnings, endowment or other funds
beginning of year $437,569 · end of year $1,077,617
Mission and programs · 2024
Mission
THE ORGANIZATION IS A PARTNERSHIP OF WORLD LEADERS IN ALS RESEARCH AND CARE FOCUSED ON EXPEDITING BREAKTHROUGH TREATMENTS AND ULTIMATELY A CURE FOR ALS WHILE PROVIDING RESOURCES AND EQUIPMENT TO THOSE LIVING WITH THE DISEASE NOW. THE TEAM OF ALS RESEARCHERS, DOCTORS, AND CARE PRACTITIONERS IS UNIQUEFOR ITS LEADERSHIP IN EFFICIENCY, DEDICATION TO INNOVATIVE RESEARCH, AND COMMITMENT TO INCREASING ACCESS TO CARE AND TREATMENT.
Activities or mission (Part I)
THE ORG PARTNERS WITH INSTITUES TO FURTHER RESEARCH AND CARE FOR THOSE SUFFERING FROM ALS
-
THE ORGANIZATION IS A PARTNERSHIP OF WORLD LEADERS IN ALS RESEARCH AND CARE FOCUSED ON EXPEDITING BREAKTHROUGH TREATMENTS AND ULTIMATELY A CURE FOR ALS WHILE PROVIDING RESOURCES AND EQUIPMENT TO THOSE LIVING WITH THE DISEASE NOW. THE TEAM OF ALS RESEARCHERS, DOCTORS, AND CARE PRACTITIONERS IS UNIQUEFOR ITS LEADERSHIP IN EFFICIENCY, DEDICATION TO INNOVATIVE RESEARCH, AND COMMITMENT TO INCREASING ACCESS TO CARE AND TREATMENT.
Expenses $942,362 · Grants $869,907 · Revenue $2,270,157
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Scott GosnellSCOTT GOSNELL
PRESIDENT
- Total calculated
- $0
- Hours/week
- 1
-
Jennifer DimartinoJENNIFER DIMARTINO
EXECUTIVE DIRECTOR, CLERK
- Total calculated
- $171,632
- From this org
- $171,632
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $171,632
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $171,632
-
Michael C BraunMICHAEL C BRAUN
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Mark SullivanMARK SULLIVAN
CHAIRMAN OF THE BOARD
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
None.
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
-
$325,000
TO HELP PROMOTE RESEARCH
-
$325,000
TO HELP PROMOTE RESEARCH
-
$200,000
HELP FURTHER PROVIDE ASSISTANCE TO INDIVIDUALS AND FAMILIES WITH ALS
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 30 January 2026
- IRS schema version
- 2024v5.5
- Source object
- 202610309349301326
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