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Nonprofiteer
← CHILDRENS CARDIOMYOPATHY FOUNDATION INC

Form 990 for tax year 2025

Filed by CHILDRENS CARDIOMYOPATHY FOUNDATION INC.

Totals

Total revenue
$996,165
Total expenses
$714,539
Contributions and grants received
$931,483
Grants paid
$0
Program service revenue
$0
Investment income
$94,430
Other revenue
-$29,748
Total assets, end of year
$3,323,283
Total liabilities, end of year
$34,634
Net assets or fund balances, end of year
$3,288,649
Program services expenses (Part IX)
$508,171
Management and general expenses
$113,107
Fundraising expenses
$93,261
Program service expenses (Part III)
$508,171

Program services were 71.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $557,794

  • 1f · All other contributions, gifts and grants

    $373,689

  • 3 · Investment income

    total $94,430 · excluded $94,430

  • 8a · Fundraising events: gross income

    $129,058

  • 8a · Fundraising events: contributions included on line 1c

    $557,794

  • 8b · Fundraising events: direct expenses

    $158,806

  • 8c · Net income from fundraising events

    total -$29,748

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $328,535 · program services $229,020 · management and general $38,881 · fundraising $60,634

  • 7 · Other salaries and wages

    total $165,512 · program services $116,339 · management and general $26,545 · fundraising $22,628

  • 10 · Payroll taxes

    total $14,810 · program services $10,410 · management and general $2,375 · fundraising $2,025

  • 11g · Fees: other

    total $75,818 · program services $51,248 · management and general $19,374 · fundraising $5,196

  • 13 · Office expenses

    total $11,637 · program services $9,302 · management and general $1,168 · fundraising $1,167

  • 17 · Travel

    total $5,315 · program services $5,315

  • 19 · Conferences, conventions and meetings

    total $37,069 · program services $37,069

  • 23 · Insurance

    total $6,443 · program services $3,221 · management and general $1,611 · fundraising $1,611

  • 24a · Other expenses: WEBSITE

    total $50,845 · program services $40,676 · management and general $10,169

  • 24b · Other expenses: FEES

    total $12,984 · management and general $12,984

  • 24c · Other expenses: PATIENT SUPPORT

    total $4,746 · program services $4,746

  • 24d · Other expenses: EDUCATION AND AWARENESS

    total $825 · program services $825

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $270,862 · end of year $472,701

  • 3 · Pledges and grants receivable

    end of year $20,000

  • 11 · Investments: publicly traded securities

    beginning of year $2,587,745 · end of year $2,830,582

  • 17 · Accounts payable and accrued expenses

    beginning of year $30 · end of year $34,634

  • 27 · Net assets without donor restrictions

    beginning of year $2,858,577 · end of year $3,288,649

Mission and programs · 2025

Mission

TO ACCELERATE THE SEARCH FOR A CURE BY STIMULATING AND SUPPORTING PROMISING RESEARCH ON PEDIATRIC CARDIOMYOPATHY, BY EDUCATING AND ASSISTING PHYSICIANS AND PATIENTS ON THE COMPLEXITIES OF THE DISEASE, AND BY INCREASING AWARENESS AND ADVOCACY ON BEHALF OF AFFECTED CHILDREN AND THEIR FAMILIES.

  • SUPPORT INNOVATIVE RESEARCH RELEVANT TO THE CAUSE, DIAGNOSIS AND/OR TREATMENT OF PEDIATRIC CARDIOMYOPATHY THROUGH RESEARCH GRANT AWARDS AND RESEARCH COLLABORATIONS WITH THE NATIONAL CARDIOMYOPATHY REGISTRY.

    Expenses $121,350

  • HEIGHTEN AWARENESS OF PEDIATRIC CARDIOMYOPATHY AMONG THE GENERAL PUBLIC, PATIENT AND MEDICAL COMMUNITY AND DEVELOP ACCESSIBLE EDUCATIONAL MATERIALS TO MEET THEIR NEEDS.

    Expenses $119,221

  • OFFER SUPPORT SERVICES, RESOURCES AND NETWORKING OPPORTUNITIES TO HELP FAMILIES WITH AFFECTED CHILDREN COPE WITH THE CHALLENGES OF LIVING WITH PEDIATRIC CARDIOMYOPATHY.

    Expenses $143,051

  • GENERATE WIDESPREAD AWARENESS OF THE DISEASE AMONG GOVERNMENT, MEDICAL AND LAY COMMUNITIES TO PROMOTE INCREASED FOCUS AND FUNDING ON RESEARCH.

    Expenses $124,549

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Kathy Swenson

    EXECUTIVE DI

    Total calculated
    $225,807
    From this org
    $21,603
    From related orgs
    $204,204
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    not reported + $204,204 related
    Bonus
    not reported
    Other
    $21,603
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $21,603 + $204,204 related

  • Lisa Yue

    PRESIDENT

    Total calculated
    $86,000
    From this org
    $0
    From related orgs
    $86,000
    Other
    $0
    Hours/week
    40

  • Won Choi

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Carney Hawks

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Carolyn Kong

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Brian Nold MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Eddie Yu

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Raymond Yue

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2025
Filed
27 March 2026
IRS schema version
2025v4.0
Source object
202620899349301002

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