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← SHARING DOWN SYNDROME ARIZONA

Form 990 for tax year 2025

Filed by SHARING DOWN SYNDROME ARIZONA.

Totals

Total revenue
$153,759
Total expenses
$191,004
Contributions and grants received
$179,931
Grants paid
$0
Program service revenue
$0
Investment income
$2,369
Other revenue
-$28,541
Total assets, end of year
$160,579
Total liabilities, end of year
$10,530
Net assets or fund balances, end of year
$150,049
Program services expenses (Part IX)
$126,462
Management and general expenses
$53,238
Fundraising expenses
$11,304
Program service expenses (Part III)
$126,462

Program services were 66.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $71,989

  • 1f · All other contributions, gifts and grants

    $107,942

  • 3 · Investment income

    total $2,369 · excluded $2,369

  • 8a · Fundraising events: gross income

    $1,047

  • 8a · Fundraising events: contributions included on line 1c

    $71,989

  • 8b · Fundraising events: direct expenses

    $29,588

  • 8c · Net income from fundraising events

    total -$28,541 · excluded -$28,541

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $43,776 · program services $39,398 · management and general $2,189 · fundraising $2,189

  • 7 · Other salaries and wages

    total $40,191 · program services $10,048 · management and general $26,124 · fundraising $4,019

  • 10 · Payroll taxes

    total $6,785 · program services $6,785

  • 11c · Fees: accounting

    total $6,521 · management and general $6,521

  • 11g · Fees: other

    total $11,907 · program services $7,036 · management and general $971 · fundraising $3,900

  • 12 · Advertising and promotion

    total $21,948 · program services $10,974 · management and general $10,974

  • 13 · Office expenses

    total $31,503 · program services $27,712 · management and general $3,665 · fundraising $126

  • 16 · Occupancy

    total $17,240 · program services $13,792 · management and general $2,586 · fundraising $862

  • 17 · Travel

    total $26 · program services $26

  • 23 · Insurance

    total $2,079 · program services $1,663 · management and general $208 · fundraising $208

  • 24a · Other expenses: PARENT SUPPORT SUPPLIES

    total $9,028 · program services $9,028

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $88,068 · end of year $49,343

  • 2 · Savings and temporary cash investments

    beginning of year $108,868 · end of year $111,236

  • 17 · Accounts payable and accrued expenses

    beginning of year $9,642 · end of year $10,530

  • 27 · Net assets without donor restrictions

    beginning of year $187,294 · end of year $150,049

Mission and programs · 2025

Mission

THE MISSION OF SHARING DOWN SYNDROME ARIZONA IS TO EDUCATE, EMPOWER, AND GIVE HOPE TO INDIVIDUALS WHO HAVE DOWN SYNDROME SO THEY MAY GROW UP TO BECOME INDEPENDENT SELF ADVOCATES.

  • PARENT SUPPORT: OUR PARENT SUPPORT PROGRAM HELPS FAMILIES IN MANY AREAS. WE HOLD PARENT MEETINGS AND WORKSHOPS TO ADDRESS ISSUES RELEVANT TO DOWN SYNDROME, INCLUDING EDUCATIONAL, MEDICAL, SEXUAL ISSUES, AND MENTAL WELL-BEING IN ADULTS WITH DOWN SYNDROME. OUR TEAM VISITS NEW PARENTS AT BIRTHING HOSPITALS TO HELP FAMILIES BEGIN THEIR JOURNEY AND PROVIDE SUPPORT THROUGHOUT THEIR LIVES.

    Expenses $113,816

  • OUTREACH AND ADVOCACY: EACH YEAR WE BRING SPEAKERS WHO HAVE DOWN SYNDROME AND THEIR PARENTS TO SELF-ADVOCATE TO THE MAYO CLINIC. WE ALSO DO THE SAME AT ARIZONA STATE UNIVERSITY IN AN EFFORT TO GIVE A TRUE FEELING OF WHO CHILDREN WITH DOWN SYNDROME ARE AND WHAT THEY CAN ACCOMPLISH.

    Expenses $6,323

  • SOCIAL EVENTS: OUR OGANIZATION HOLDS A NUMBER OF INCLUSIVE EVENTS DEDICATED TO SPREADING AWARENESS. THESE EVENTS INCLUDE THE ANNUAL SHARING DOWN SYNDROME WALK, CHRISTMAS PARTY, NEW PARENT DESSERT NIGHTS, GILBERT WATER TOWER LIGHTING FOR WORLD DOWN SYNDROME DAY, AND PIZZA WITH THE POLICE.

    Expenses $6,323

As filed on the 2025 return.

Listed in Part VII

  • Curtis Johnson

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • Gina Barreras

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Kevin Huff

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Seth Johnson

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • Shannon Ringenbach

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Dave Case

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Gina Johnson

    EXECUTIVE DIRECTOR

    Total calculated
    $43,776
    From this org
    $43,776
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2025
Filed
14 May 2026
IRS schema version
2025v4.1
Source object
202611359349307941

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