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Nonprofiteer
← EPILEPSY INSTITUTE

Form 990 for tax year 2024

Filed by EPILEPSY INSTITUTE.

Totals

Total revenue
$1,592,389
Total expenses
$1,671,527
Contributions and grants received
$469,528
Grants paid
$0
Program service revenue
$1,178,063
Investment income
$361
Other revenue
-$55,563
Total assets, end of year
$613,281
Total liabilities, end of year
$915,463
Net assets or fund balances, end of year
-$302,182
Program services expenses (Part IX)
$1,289,720
Management and general expenses
$209,555
Fundraising expenses
$172,252
Program service expenses (Part III)
$1,289,720

Program services were 77.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $288,375

  • 1f · All other contributions, gifts and grants

    $181,153

  • 2a · Program service revenue: MEDICAID AND FEES

    total $626,551 · related or exempt $626,551

  • 2b · Program service revenue: GOVERNMENT CONTRACTS

    total $551,512 · related or exempt $551,512

  • 3 · Investment income

    total $361 · excluded $361

  • 8a · Fundraising events: gross income

    $75,668

  • 8a · Fundraising events: contributions included on line 1c

    $288,375

  • 8b · Fundraising events: direct expenses

    $136,731

  • 8c · Net income from fundraising events

    total -$61,063 · excluded -$61,063

  • 11a · Other revenue: OTHER REVENUE

    total $5,500 · excluded $5,500

  • 11e · Other revenue, total

    $5,500

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $186,887 · program services $115,870 · management and general $71,017

  • 7 · Other salaries and wages

    total $678,402 · program services $564,612 · management and general $17,557 · fundraising $96,233

  • 9 · Other employee benefits

    total $133,565 · program services $111,153 · management and general $3,471 · fundraising $18,941

  • 10 · Payroll taxes

    total $54,682 · program services $45,516 · management and general $1,406 · fundraising $7,760

  • 11a · Fees: management

    total $76,661 · program services $60,318 · management and general $1,852 · fundraising $14,491

  • 11b · Fees: legal

    total $27,545 · management and general $27,545

  • 11c · Fees: accounting

    total $36,965 · program services $27,161 · management and general $334 · fundraising $9,470

  • 11d · Fees: lobbying

    total $30,000 · management and general $30,000

  • 11g · Fees: other

    total $180,466 · program services $170,020 · management and general $10,433 · fundraising $13

  • 13 · Office expenses

    total $30,162 · program services $25,602 · management and general $2,851 · fundraising $1,709

  • 16 · Occupancy

    total $116,977 · program services $99,313 · management and general $11,464 · fundraising $6,200

  • 17 · Travel

    total $12,162 · program services $1,754 · management and general $5,413 · fundraising $4,995

  • 19 · Conferences, conventions and meetings

    total $23,327 · program services $17,781 · management and general $2,772 · fundraising $2,774

  • 20 · Interest

    total $15,070 · management and general $15,070

  • 22 · Depreciation, depletion and amortization

    total $3,161 · management and general $3,161

  • 23 · Insurance

    total $33,879 · program services $28,763 · management and general $3,320 · fundraising $1,796

  • 24a · Other expenses: MISCELLANEOUS

    total $12,728 · program services $10,085 · management and general $1,889 · fundraising $754

  • 24b · Other expenses: CONSUMER EXPENSE

    total $11,700 · program services $11,700

  • 24c · Other expenses: FUNDRAISING

    total $7,116 · fundraising $7,116

  • 24d · Other expenses: PRINTING & REPRODUCTION

    total $72 · program services $72

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $53,282 · end of year $84,865

  • 4 · Accounts receivable

    beginning of year $479,093 · end of year $320,246

  • 9 · Prepaid expenses and deferred charges

    beginning of year $20,431 · end of year $17,582

  • 10a · Land, buildings and equipment: cost or other basis

    $27,686

  • 10b · Land, buildings and equipment: accumulated depreciation

    $26,106

  • 10c · Land, buildings and equipment, net

    beginning of year $4,741 · end of year $1,580

  • 15 · Other assets

    beginning of year $116,426 · end of year $189,008

  • 17 · Accounts payable and accrued expenses

    beginning of year $183,308 · end of year $276,291

  • 24 · Unsecured notes and loans payable

    beginning of year $590,416 · end of year $422,973

  • 25 · Other liabilities

    beginning of year $123,293 · end of year $216,199

  • 27 · Net assets without donor restrictions

    beginning of year -$229,149 · end of year -$302,182

  • 28 · Net assets with donor restrictions

    beginning of year $6,105 · end of year $0

Mission and programs · 2024

Mission

PROVIDE PSYCHOTHERAPY COUNSELING, CASE MANAGEMENT, VOCATIONAL COUNSELING AND PLACEMENT ASSISTANCE, EDUCATIONAL MATERIALS, COMMUNITY EDUCATION, ADVOCACY AND INFORMATION AND REFERRAL, TO PEOPLE WITH EPILEPSY AND TO THEIR FAMILIES.

  • CONSULTATION AND TREATMENT OF PATIENTS WITH EPILEPSY.

    Expenses $1,289,720 · Revenue $1,178,063

As filed on the 2024 return.

Listed in Part VII

  • Robert Brody

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Matthew Persanis

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Jennifer Bahrenburg

    SECRETARY

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Priscilla Orr

    TREASURER

    Total calculated
    $117,038
    From this org
    $0
    From related orgs
    $117,038
    Other
    $0
    Hours/week
    0.1 + 0.5 related

  • Pamela Conford

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Sandra Dammann

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Christine Johnston

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Yan Ni

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Mina Sallis

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Linda Sampson

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Blanca Vazquez

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.1 + 0.5 related

  • Elinor Latouche

    EXECUTIVE DIRECTOR (THROUGH 8/2025)

    Total calculated
    $188,915
    From this org
    $148,849
    From related orgs
    $0
    Other
    $40,066
    Hours/week
    35

    Schedule J breakdown matched by us

    Base
    $148,849
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $40,066
    Filer's total
    $188,915

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

  • CLC GROUP SERVICES INC

    501(C)(3) · SUPPORTING, ADVISING, ASSISTING AND PROVIDING STRATEGIC DIRECTION · NY

  • COMMUNITY LIVING CORPORATION

    501(C)(3) · PROVIDE CARE FOR THE DEVELOPMENTALLY DISABLED THROUGH COM. BASED SERVICES · NY

    Directly controlled by CLC GROUP SERVICES INC

  • CLC FUND FOR THE DISABLED INC

    501(C)(3) · SUPPORT/ ASSISTANCE TO COMMUNITY LIVING CORPORATION · NY

    Directly controlled by COMMUNITY LIVING CORPORATION

  • CLC TRANSPORTATION

    501(C)(3) · TRANSPORTATION · NY

    Directly controlled by COMMUNITY LIVING CORPORATION

  • CLC FOUNDATION INC

    501(C)(3) · FINANCIAL SERVICES AND ASSISTANCE TO PEOPLE WITH DISABILITIES · NY

    Directly controlled by CLC GROUP SERVICES INC

  • ADVOCATES FOR THE DISABLED

    501(C)(3) · PROVIDE ADMINISTRATIVE SERVICES TO ORGANIZATIONS · NY

    Directly controlled by CLC GROUP SERVICES INC

Provenance

Return type
form_990
Tax year
2024
Filed
8 May 2026
IRS schema version
2024v5.5
Source object
202601329349300635

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