Totals
- Total revenue
- $1,379,541
- Total expenses
- $1,085,537
- Contributions and grants received
- $1,376,794
- Grants paid
- $10,637
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $2,747
- Total assets, end of year
- $418,216
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $418,216
- Program services expenses (Part IX)
- $1,057,955
- Management and general expenses
- $27,582
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $777,407
Program services were 97.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$25,058
-
1f · All other contributions, gifts and grants
$1,351,736
-
8a · Fundraising events: contributions included on line 1c
$25,058
-
11d · All other revenue
total $2,747 · excluded $2,747
-
11e · Other revenue, total
$2,747
Functional expenses
Part IX, the statement of functional expenses.
-
2 · Grants to domestic individuals
total $10,637 · program services $10,637
-
5 · Compensation of officers, directors and key employees
total $133,200 · program services $133,200
-
7 · Other salaries and wages
total $38,500 · program services $38,500
-
13 · Office expenses
total $6,633 · program services $6,633
-
14 · Information technology
total $19,945 · program services $19,945
-
17 · Travel
total $22,876 · program services $22,876
-
19 · Conferences, conventions and meetings
total $777,406 · program services $777,406
-
24a · Other expenses: PFIZER PAL PROGRAM
total $30,000 · program services $30,000
-
24b · Other expenses: BANK FEES
total $1,193 · management and general $1,193
-
24c · Other expenses: PRIOR YEARS PROGRAM EXPENSES PAID IN 2024
total $18,758 · program services $18,758
-
24d · Other expenses: STORAGE
total $11,261 · management and general $11,261
-
24e · All other expenses
total $15,128 · management and general $15,128
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $124,212 · end of year $418,216
-
29 · Capital stock, trust principal or current funds
beginning of year $124,212 · end of year $418,216
-
31 · Retained earnings, endowment or other funds
beginning of year $0 · end of year $0
Mission and programs · 2024
Mission
To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy and legislation. Nothing for us without us.
Activities or mission (Part I)
To harness and amplify the power of the patient s voice. Ensuring that the sickle cell patient and caregiver are at the center of research, education, advocacy, policy, and legislation.
-
The Leadership Summit is the primary meeting of the Sickle Cell Consortium (SC3). The meeting convenes SC3 partners to identify and prioritize problems, needs, and gaps in the sickle cell community and then works collectively with other partnered groups to define and execute mutually beneficial and sustainable solutions.
Expenses $212,787
-
The Annual Warriors Convention is the premier patient-powered gathering in the sickle cell community. It serves as a national platform for education, empowerment, and connection, bringing together patients, caregivers, healthcare, professionals, researchers, advocates, and industry partners from across the country.
Expenses $493,018
-
The Caregivers Summit provides a platform for caregivers to obtain support, education, encouragement, and community. It is a place for caregivers to connect and encourage one another.
Expenses $71,602
As filed on the 2024 return.
Listed in Part VII
-
LAKIEA BAILEY
EXECUTIVE DIRECTOR
- Total calculated
- $54,700
- From this org
- $54,700
- From related orgs
- $0
- Other
- $0
- Hours/week
- 160
-
DORIS BAILEY
ASSOCIATE FINANCE DIRECTOR
- Total calculated
- $31,000
- From this org
- $31,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 160
-
RAYMONA HOLLOWAY LAWRENCE
DIRECTOR OF RESEARCH
- Total calculated
- $750
- From this org
- $750
- From related orgs
- $0
- Other
- $0
- Hours/week
- 30
-
MIA ROBINSON
PRESIDENT OF THE GENERAL ASSEMBLY
- Total calculated
- $4,300
- From this org
- $4,300
- From related orgs
- $0
- Other
- $0
- Hours/week
- 30
-
SHARONDA HUDSON
DIRECTOR OF OPERATIONS
- Total calculated
- $25,950
- From this org
- $25,950
- From related orgs
- $0
- Other
- $0
- Hours/week
- 160
-
ERIC NTI FREMPONG
DIRECTOR OF FINANCE
- Total calculated
- $0
- Hours/week
- 10
-
DOMINIQUE GOODSON
ADMINISTRATIVE DIRECTOR
- Total calculated
- $16,500
- From this org
- $16,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 160
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 19 October 2025
- IRS schema version
- 2024v5.2
- Source object
- 202522939349300002
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