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Nonprofiteer
← AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION

Form 990 for tax year 2022

Filed by AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION.

Totals

Total revenue
$2,407,169
Total expenses
$2,118,198
Contributions and grants received
$2,388,339
Grants paid
$35,500
Program service revenue
$0
Investment income
$9,224
Other revenue
$9,606
Total assets, end of year
$2,744,659
Total liabilities, end of year
$527,411
Net assets or fund balances, end of year
$2,217,248
Program services expenses (Part IX)
$1,901,959
Management and general expenses
$153,756
Fundraising expenses
$62,483
Program service expenses (Part III)
$1,901,959

Program services were 89.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $782,500

  • 1e · Government grants (contributions)

    $118,652

  • 1f · All other contributions, gifts and grants

    $1,487,187

  • 3 · Investment income

    total $9,224 · excluded $9,224

  • 11a · Other revenue: MISCELLANEOUS

    total $7,906 · related or exempt $7,906

  • 11b · Other revenue: CASH BACK BONUS

    total $1,700 · related or exempt $1,700

  • 11e · Other revenue, total

    $9,606

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $35,500 · program services $35,500

  • 5 · Compensation of officers, directors and key employees

    total $246,843 · program services $231,085 · management and general $7,879 · fundraising $7,879

  • 7 · Other salaries and wages

    total $842,494 · program services $794,752 · management and general $30,726 · fundraising $17,016

  • 8 · Pension plan contributions

    total $17,189 · program services $16,060 · management and general $817 · fundraising $312

  • 9 · Other employee benefits

    total $65,600 · program services $61,468 · management and general $2,900 · fundraising $1,232

  • 10 · Payroll taxes

    total $79,355 · program services $73,007 · management and general $3,174 · fundraising $3,174

  • 11b · Fees: legal

    total $21,470 · management and general $21,470

  • 11g · Fees: other

    total $449,656 · program services $389,438 · management and general $40,754 · fundraising $19,464

  • 12 · Advertising and promotion

    total $15,064 · program services $14,419 · management and general $645

  • 13 · Office expenses

    total $22,641 · program services $19,578 · management and general $1,473 · fundraising $1,590

  • 14 · Information technology

    total $10,158 · program services $9,762 · management and general $198 · fundraising $198

  • 16 · Occupancy

    total $56,924 · program services $53,428 · management and general $2,315 · fundraising $1,181

  • 17 · Travel

    total $32,044 · program services $29,882 · management and general $1,122 · fundraising $1,040

  • 19 · Conferences, conventions and meetings

    total $43,118 · program services $40,447 · management and general $1,350 · fundraising $1,321

  • 22 · Depreciation, depletion and amortization

    total $7,465 · program services $4,479 · management and general $1,493 · fundraising $1,493

  • 23 · Insurance

    total $7,100 · program services $3,550 · management and general $1,775 · fundraising $1,775

  • 24a · Other expenses: DUES AND SUBSCRIPTIONS

    total $90,460 · program services $84,340 · management and general $4,603 · fundraising $1,517

  • 24b · Other expenses: BOARD EXPENSES

    total $16,177 · management and general $16,177

  • 24c · Other expenses: HONORARIUMS

    total $14,226 · program services $14,226

  • 24d · Other expenses: EQUIPMENT MAINTENANCE

    total $12,491 · program services $11,367 · management and general $562 · fundraising $562

  • 24e · All other expenses

    total $32,223 · program services $15,171 · management and general $14,323 · fundraising $2,729

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,724,162 · end of year $1,248,091

  • 2 · Savings and temporary cash investments

    beginning of year $512,293 · end of year $1,021,517

  • 10a · Land, buildings and equipment: cost or other basis

    $73,705

  • 10b · Land, buildings and equipment: accumulated depreciation

    $58,281

  • 10c · Land, buildings and equipment, net

    beginning of year $20,292 · end of year $15,424

  • 15 · Other assets

    beginning of year $0 · end of year $459,627

  • 17 · Accounts payable and accrued expenses

    beginning of year $298,470 · end of year $67,784

  • 19 · Deferred revenue

    beginning of year $30,000

  • 25 · Other liabilities

    beginning of year $0 · end of year $459,627

  • 27 · Net assets without donor restrictions

    beginning of year $1,582,340 · end of year $1,949,957

  • 28 · Net assets with donor restrictions

    beginning of year $345,937 · end of year $267,291

Mission and programs · 2022

Mission

TO LEAD THE FIGHT AGAINST AUTOIMMUNE DISEASE BY ADVOCATING AND COLLABORATING TO IMPROVE HEALTHCARE, ADVANCE RESEARCH, AND EMPOWER THE COMMUNITY THROUGH EVERY STEP OF THE JOURNEY.

Activities or mission (Part I)

THE AUTOIMMUNE ASSOCIATION LEADS THE FIGHT AGAINST AUTOIMMUNE DISEASE BY ADVOCATING AND COLLABORATING TO IMPROVE HEALTHCARE, ADVANCE RESEARCH, AND EMPOWER THE COMMUNITY THROUGH EVERY STEP OF THE JOURNEY.

  • AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION'S EDUCATION PROGRAM FOCUSES ON STAKEHOLDER EDUCATION GEARED TOWARDS THOSE LIVING WITH AUTOIMMUNE DISEASE AND THEIR FAMILIES, CAREGIVERS, AND PROVIDERS. AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION SPONSORS NATIONAL BRIEFINGS, SUMMITS, WEBINARS, FORUMS, CONFERENCES, AND SCIENTIFIC MEETINGS THAT PROVIDE TIMELY AND RELAVANT INFORMATION TO THE VARIOUS AUTOIMMUNE DISEASE COMMUNITIES.

    Expenses $865,511 · Grants $500

  • AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION ADVOCATES FOR ISSUES OF IMPORTANCE TO THE AUTOIMMUNE COMMUNITY AT BOTH THE STATE AND FEDERAL LEVEL THROUGH MEDIA CAMPAIGNS, COALITION MEETINGS, LETTERS, ONLINE BRIEFINGS, AND WEBINARS. AMERICAN AUTOIMMUNE AND RELATED DISEASES ASSOCIATION LEADS THE NATIONAL COALITION OF AUTOIMMUNE PATIENT GROUPS, A 50-MEMBER COALITION REPRESENTING AUTOIMMUNE-SPECIFIC PATIENT GROUPS THAT COME TOGETHER TO HIGHLIGHT ISSUES OF IMPORTANCE TO THE AUTOIMMUNE COMMUNITY.

    Expenses $750,197

  • AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION PROMOTES AND FACILITATES RESEARCH THROUGH THE AUTOIMMUNE REGISTRY NETWORK (ARNET) THAT MATCHES PATIENTS WITH CLINICAL TRIALS; DEFINING GAPS TO AUTOIMMUNE DIAGNOSES IN UNDERREPRESENTED COMMUNITIES; AND THROUGH COLLABERATION WITH THE NATIONAL INSTITUTE OF HEALTH.

    Expenses $286,251 · Grants $35,000

As filed on the 2022 return.

Listed in Part VII

  • Anna Ellis

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • Linda Roelans Oszust

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Lilly Stairs

    CHAIRPERSON

    Total calculated
    $60,000
    From this org
    $60,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    2

  • Indie Lee

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Robert Phillips PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Sloane Salzburg

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Mirta Avila Santos

    VICE CHAIRPERSON

    Total calculated
    $0
    Hours/week
    2

  • Scott Williams

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Molly Murray

    PRESIDENT & CEO

    Total calculated
    $195,549
    From this org
    $188,949
    From related orgs
    $0
    Other
    $6,600
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $178,949
    Bonus
    $10,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $6,600
    Filer's total
    $195,549

  • Quardricos Driskell

    VP OF PROGRAMS AND POLICY

    Total calculated
    $115,982
    From this org
    $112,470
    From related orgs
    $0
    Other
    $3,512
    Hours/week
    40

  • Cathleen Cruchon

    VICE PRESIDENT ACCOUNTING

    Total calculated
    $115,169
    From this org
    $108,017
    From related orgs
    $0
    Other
    $7,152
    Hours/week
    40

  • Laura Simpson

    COO

    Total calculated
    $144,854
    From this org
    $137,678
    From related orgs
    $0
    Other
    $7,176
    Hours/week
    40

  • Virginia Ladd

    PRESIDENT (FORMER)

    Total calculated
    $56,216
    From this org
    $52,534
    From related orgs
    $0
    Other
    $3,682
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $52,534
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $3,682
    Filer's total
    $56,216

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
11 June 2024
IRS schema version
2022v5.0
Source object
202411699349300751

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