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Nonprofiteer
← NATIONAL ECZEMA ASSOCIATION

Form 990 for tax year 2023

Filed by NATIONAL ECZEMA ASSOCIATION.

Totals

Total revenue
$7,212,126
Total expenses
$8,122,529
Contributions and grants received
$3,748,923
Grants paid
$616,101
Program service revenue
$3,635,456
Investment income
-$173,298
Other revenue
$1,045
Total assets, end of year
$8,910,198
Total liabilities, end of year
$397,879
Net assets or fund balances, end of year
$8,512,319
Program services expenses (Part IX)
$6,861,252
Management and general expenses
$564,137
Fundraising expenses
$697,140
Program service expenses (Part III)
$6,861,252

Program services were 84.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $3,748,923

  • 2a · Program service revenue: Patient Forums

    total $784,559 · related or exempt $784,559

  • 2b · Program service revenue: Publications

    total $807,051 · unrelated business $807,051

  • 2c · Program service revenue: Seal of Acceptance

    total $2,043,846 · related or exempt $2,043,846

  • 3 · Investment income

    total $144,137 · excluded $144,137

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6d · Net rental income or loss

    total $0

  • 7a · Gross sales of assets other than inventory

    securities $5,168,361

  • 7b · Less cost or other basis and sales expenses

    securities $5,485,796

  • 7c · Gain or loss

    securities -$317,435

  • 7d · Net gain or loss

    total -$317,435 · related or exempt -$317,435

  • 8a · Fundraising events: gross income

    $1,045

  • 8c · Net income from fundraising events

    total $1,045

  • 9c · Net income from gaming

    total $0

  • 10c · Net income from sales of inventory

    total $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $317,020 · program services $317,020

  • 2 · Grants to domestic individuals

    total $82,622 · program services $82,622

  • 3 · Grants to foreign organizations and individuals

    total $216,459 · program services $216,459

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $599,119 · program services $476,871 · management and general $38,795 · fundraising $83,453

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $2,916,312 · program services $2,335,474 · management and general $172,131 · fundraising $408,707

  • 8 · Pension plan contributions

    total $0

  • 9 · Other employee benefits

    total $610,011 · program services $476,557 · management and general $50,057 · fundraising $83,397

  • 10 · Payroll taxes

    total $248,055 · program services $198,444 · management and general $14,883 · fundraising $34,728

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $16,605 · program services $6,630 · management and general $9,450 · fundraising $525

  • 11c · Fees: accounting

    total $96,741 · program services $38,627 · management and general $55,057 · fundraising $3,057

  • 11d · Fees: lobbying

    total $0

  • 11e · Fees: professional fundraising services

    total $0

  • 11f · Fees: investment management

    total $0

  • 11g · Fees: other

    total $90,671 · program services $36,204 · management and general $51,602 · fundraising $2,865

  • 12 · Advertising and promotion

    total $0

  • 13 · Office expenses

    total $42,007 · program services $33,606 · management and general $2,520 · fundraising $5,881

  • 14 · Information technology

    total $265,322 · program services $238,790 · management and general $13,266 · fundraising $13,266

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $142,447 · program services $116,018 · management and general $6,126 · fundraising $20,303

  • 17 · Travel

    total $152,316 · program services $146,224 · management and general $3,046 · fundraising $3,046

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $0

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $396,162 · program services $396,162

  • 23 · Insurance

    total $22,567 · program services $18,054 · management and general $1,354 · fundraising $3,159

  • 24a · Other expenses: Program & Awareness Events

    total $1,344,443 · program services $1,344,443

  • 24b · Other expenses: Recruiting & Development

    total $131,430 · management and general $131,430

  • 24c · Other expenses: Taxes, Licenses & Fees

    total $122,979 · program services $96,827 · management and general $10,494 · fundraising $15,658

  • 24d · Other expenses: Research Expenses

    total $118,751 · program services $118,751

  • 24e · All other expenses

    total $190,490 · program services $167,469 · management and general $3,926 · fundraising $19,095

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,877,922 · end of year $1,407,818

  • 2 · Savings and temporary cash investments

    end of year $0

  • 3 · Pledges and grants receivable

    end of year $0

  • 4 · Accounts receivable

    beginning of year $810,776 · end of year $631,090

  • 5 · Loans and receivables from officers and key people

    end of year $0

  • 6 · Loans and receivables from disqualified persons

    end of year $0

  • 7 · Other notes and loans receivable

    end of year $0

  • 8 · Inventories for sale or use

    end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $124 · end of year $68

  • 10a · Land, buildings and equipment: cost or other basis

    $254,703

  • 10c · Land, buildings and equipment, net

    beginning of year $366,020 · end of year $254,703

  • 11 · Investments: publicly traded securities

    beginning of year $4,662,254 · end of year $4,971,923

  • 12 · Investments: other securities

    end of year $0

  • 13 · Investments: program-related

    end of year $0

  • 14 · Intangible assets

    beginning of year $1,379,584 · end of year $1,632,996

  • 15 · Other assets

    beginning of year $11,600 · end of year $11,600

  • 17 · Accounts payable and accrued expenses

    beginning of year $15,722 · end of year $71,748

  • 19 · Deferred revenue

    beginning of year $200,000 · end of year $50,000

  • 25 · Other liabilities

    beginning of year $390,023 · end of year $276,131

  • 27 · Net assets without donor restrictions

    beginning of year $8,322,667 · end of year $8,352,599

  • 28 · Net assets with donor restrictions

    beginning of year $179,868 · end of year $159,720

Mission and programs · 2023

Mission

NEA is the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise of a better future.

  • Eczema research we doNEAs research team seeks to understand the unique experiences of people with eczema. In 2023, we launched a survey to learn about the burden and unmet needs for types of eczema other than atopic dermatitis. It is our hope that this new data will lead to better care and support.Eczema Expo 2023 in Orlando, FL Eczema Expo is our annual conference and our favorite weekend of the year! We welcomed more than 350 community members to Expo in June 2023. They learned from world-class experts, physicians and researchers about the latest in eczema research and drug development. They also bonded over shared stories and created a community of support and connection. Survey results showed that 88% of attendees felt more connected to the eczema community. Were excited about Eczema Expo in Denver, CO, from June 2730, 2024.Seal of Acceptance adds two new categoriesNEAs Seal of Acceptance is an emblem that certifies that a product has undergone rigorous testing and scientific review where its ingredients and formulation data meet Seal standards for sensitivity, irritation and toxicity. People with eczema rely on the Seal to help inform their choice of personal care and household products. NEA recently added lip care and deodorant categories to better help our community live well with eczema.NEA Ambassadors take actionLast year, NEA Ambassadors participated in nearly 200 advocacy, research or awareness events. They shared their stories with staff at more than 100 legislative offices and asked for support of the Safe Step Act and the HELP Copays Act, which advocate for better access to eczema care. Their efforts resulted in six new cosponsors for these Acts.EczemaWiseEczemaWise is the free eczema tracker app to help manage eczema between doctor visits. For the second year, EczemaWise received multiple top prizes from the eHealthcare Leadership awards. EczemaWise received the Silver prize for Best Mobile App, Best Care/Disease Management and Best Email Content.Eczema Awareness Month 2023For Eczema Awareness Month, NEA featured stories from people with eczema on a billboard in the famous Times Square in New York City! These stories and more were featured in our #onethingabouteczema social media campaign. These posts and videos received nearly 5 million impressions and resulted in greater awareness of eczema.

    Expenses $6,245,151 · Revenue $3,635,456

  • Eczema research we fundLast year, NEA celebrated the 20th anniversary of our research program by awarding nearly $1 million in grants to eczema researchers. Their research will explore the many facets of eczema, including the science behind itch and inflammation, psychosocial burden and new pathways for potential therapies.

    Expenses $616,101 · Grants $616,101

As filed on the 2023 return.

Listed in Part VII

  • Julie Block

    CEO

    Total calculated
    $361,664
    From this org
    $298,000
    From related orgs
    $0
    Other
    $63,664
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $298,000
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    $63,664
    Filer's total
    $361,664

  • Wendy Smith Begolka

    VP Scientific Affr

    Total calculated
    $256,428
    From this org
    $219,167
    From related orgs
    $0
    Other
    $37,261
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $219,167
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    $37,261
    Filer's total
    $256,428

  • Scott Sanford

    COO

    Total calculated
    $237,455
    From this org
    $206,000
    From related orgs
    $0
    Other
    $31,455
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $206,000
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    $31,455
    Filer's total
    $237,455

  • Amber Whiteside

    Dir Mkting & Com

    Total calculated
    $206,481
    From this org
    $180,083
    From related orgs
    $0
    Other
    $26,398
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $180,083
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    $26,398
    Filer's total
    $206,481

  • Melody Sugg

    VP Philanthropy

    Total calculated
    $202,698
    From this org
    $184,000
    From related orgs
    $0
    Other
    $18,698
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $184,000
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    $18,698
    Filer's total
    $202,698

  • Christina Crowley

    Chairwoman

    Total calculated
    $0
    Hours/week
    2

  • Ashley Keyes Jacobs

    Director

    Total calculated
    $0
    Hours/week
    2

  • Amy Chrnelich

    Secretary

    Total calculated
    $0
    Hours/week
    2

  • Nathan Jetter

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lisa Choy

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lynell Doyle

    Director

    Total calculated
    $0
    Hours/week
    2

  • Mike Bristol

    Director

    Total calculated
    $0
    Hours/week
    2

  • Peter Lio

    Director

    Total calculated
    $0
    Hours/week
    2

  • Sarah Young O'Donnell

    CFO

    Total calculated
    $0
    Hours/week
    2

  • Mary Quazzo

    Director

    Total calculated
    $0
    Hours/week
    2

  • Dinesh Shenoy

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lisa Butler

    Sr VP Strat Prg

    Total calculated
    $0
    Hours/week
    40

  • Isabelle Thibau

    Assoc. Dir, Data

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 2 · Substantiation required before reimbursing expenses
  • 3 · Compensation committee
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
21 October 2024
IRS schema version
2023v5.1
Source object
202402959349301940

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