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Nonprofiteer
← OSTEOGENESIS IMPERFECTA FOUNDATION INC

Form 990 for tax year 2023

Filed by OSTEOGENESIS IMPERFECTA FOUNDATION INC.

Totals

Total revenue
$2,271,920
Total expenses
$2,451,085
Contributions and grants received
$2,105,123
Grants paid
$663,333
Program service revenue
$80,195
Investment income
$57,062
Other revenue
$29,540
Total assets, end of year
$2,125,391
Total liabilities, end of year
$547,455
Net assets or fund balances, end of year
$1,577,936
Program services expenses (Part IX)
$1,878,708
Management and general expenses
$438,971
Fundraising expenses
$133,406
Program service expenses (Part III)
$1,878,708

Program services were 76.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $99

  • 1b · Membership dues

    $19,820

  • 1c · Fundraising events

    $247,014

  • 1e · Government grants (contributions)

    $351,976

  • 1f · All other contributions, gifts and grants

    $1,486,214

  • 1g · Noncash contributions included above

    $400

  • 2a · Program service revenue: CONFERENCE

    total $80,195 · related or exempt $80,195

  • 3 · Investment income

    total $48,310 · excluded $48,310

  • 7a · Gross sales of assets other than inventory

    securities $273,598

  • 7b · Less cost or other basis and sales expenses

    securities $264,846

  • 7c · Gain or loss

    securities $8,752

  • 7d · Net gain or loss

    total $8,752 · excluded $8,752

  • 8a · Fundraising events: gross income

    $225,361

  • 8a · Fundraising events: contributions included on line 1c

    $247,014

  • 8b · Fundraising events: direct expenses

    $209,313

  • 8c · Net income from fundraising events

    total $16,048 · excluded $16,048

  • 10a · Gross sales of inventory

    $1,258

  • 10b · Cost of goods sold

    $266

  • 10c · Net income from sales of inventory

    total $992 · related or exempt $992

  • 11a · Other revenue: MISCELLANEOUS INCOME

    total $12,500 · related or exempt $12,500

  • 11e · Other revenue, total

    $12,500

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $335,510 · program services $335,510

  • 2 · Grants to domestic individuals

    total $327,823 · program services $327,823

  • 5 · Compensation of officers, directors and key employees

    total $257,422 · program services $182,572 · management and general $35,222 · fundraising $39,628

  • 7 · Other salaries and wages

    total $741,079 · program services $526,020 · management and general $161,166 · fundraising $53,893

  • 8 · Pension plan contributions

    total $8,610 · program services $10,015 · management and general $238 · fundraising -$1,643

  • 9 · Other employee benefits

    total $91,537 · program services $64,966 · management and general $18,860 · fundraising $7,711

  • 10 · Payroll taxes

    total $71,642 · program services $47,770 · management and general $17,225 · fundraising $6,647

  • 11c · Fees: accounting

    total $19,632 · management and general $19,632

  • 11f · Fees: investment management

    total $11,425 · management and general $11,425

  • 11g · Fees: other

    total $17,572 · program services $15,374 · management and general $1,503 · fundraising $695

  • 13 · Office expenses

    total $19,916 · program services $14,132 · management and general $3,955 · fundraising $1,829

  • 14 · Information technology

    total $32,650 · program services $6,319 · management and general $25,513 · fundraising $818

  • 16 · Occupancy

    total $60,262 · program services $42,767 · management and general $11,961 · fundraising $5,534

  • 17 · Travel

    total $53,446 · program services $37,929 · management and general $10,609 · fundraising $4,908

  • 19 · Conferences, conventions and meetings

    total $216,646 · program services $205,973 · management and general $10,673

  • 20 · Interest

    total $2,933 · management and general $2,933

  • 22 · Depreciation, depletion and amortization

    total $9,504 · program services $6,746 · management and general $1,885 · fundraising $873

  • 23 · Insurance

    total $8,578 · program services $4,815 · management and general $931 · fundraising $2,832

  • 24a · Other expenses: MISCELLANEOUS

    total $69,065 · management and general $69,065

  • 24b · Other expenses: BANK FEES

    total $22,908 · management and general $19,695 · fundraising $3,213

  • 24c · Other expenses: POSTAGE & DELIVERY

    total $17,658 · program services $12,530 · management and general $3,506 · fundraising $1,622

  • 24d · Other expenses: DUES AND SUBSCRIPTIONS

    total $15,250 · program services $10,823 · management and general $3,027 · fundraising $1,400

  • 24e · All other expenses

    total $40,017 · program services $26,624 · management and general $9,947 · fundraising $3,446

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $153,116 · end of year $163,870

  • 2 · Savings and temporary cash investments

    beginning of year $10,398 · end of year $111,584

  • 3 · Pledges and grants receivable

    beginning of year $444,565 · end of year $21,968

  • 4 · Accounts receivable

    beginning of year $12,500 · end of year $13,703

  • 8 · Inventories for sale or use

    beginning of year $7,602 · end of year $7,336

  • 9 · Prepaid expenses and deferred charges

    beginning of year $35,704 · end of year $74,763

  • 10a · Land, buildings and equipment: cost or other basis

    $47,710

  • 10b · Land, buildings and equipment: accumulated depreciation

    $38,906

  • 10c · Land, buildings and equipment, net

    beginning of year $5,988 · end of year $8,804

  • 11 · Investments: publicly traded securities

    beginning of year $1,501,581 · end of year $1,599,239

  • 14 · Intangible assets

    beginning of year $8,182 · end of year $602

  • 15 · Other assets

    beginning of year $166,529 · end of year $123,522

  • 17 · Accounts payable and accrued expenses

    beginning of year $145,717 · end of year $111,792

  • 18 · Grants payable

    beginning of year $304,013 · end of year $117,500

  • 19 · Deferred revenue

    beginning of year $44,094 · end of year $186,935

  • 24 · Unsecured notes and loans payable

    beginning of year $25,000 · end of year $25,000

  • 25 · Other liabilities

    beginning of year $152,094 · end of year $106,228

  • 27 · Net assets without donor restrictions

    beginning of year -$586 · end of year $24,518

  • 28 · Net assets with donor restrictions

    beginning of year $1,675,833 · end of year $1,553,418

Mission and programs · 2023

Mission

OUR MISSION IS TO IMPROVE THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY OI THROUGH RESEARCH TO FIND TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THERE ARE AT LEAST FOUR DISTINCT FORMS OF OSTEOGENESIS IMPERFECTA REPRESENTING EXTREME VARIATIONS IN SEVERITY AND AFFECTING 20,000 TO 40,000 PEOPLE IN THE UNITED STATES.

Activities or mission (Part I)

OSTEOGENESIS IMPERFECTA FOUNDATION, INC. (THE FOUNDATION OR OIF) IS A GEORGIA NON-STOCK CORPORATION INCORPORATED IN 1970 WITH THE PRIMARY PURPOSE OF IMPROVING THE QUALITY OF LIFE FOR PEOPLE AFFECTED BY THE BONE DISORDER OSTEOGENESIS IMPERFECTA (OI) THROUGH RESEARCH INTO TREATMENTS AND A CURE, EDUCATION, AWARENESS, AND MUTUAL SUPPORT. THE FOUNDATION'S HEADQUARTERS ARE LOCATED IN GAITHERSBURG, MARYLAND.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $741,676 · Grants $446,250

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $771,614 · Grants $217,083

  • OIF CONFERENCES: OIF NATIONAL CONFERENCE - THE OIF HOSTED ITS NATIONAL CONFERENCE AT THE HILTON OMAHA IN OMAHA, NEBRASKA FROM JULY 19TH -21ST. THIS WAS THE FIRST IN-PERSON NATIONAL CONFERENCE SINCE 2018. THE MEETING DREW MORE THAN 500 ATTENDEES, 100 OF WHOM RECEIVED FINANCIAL SUPPORT FROM THE OIF THROUGH THE IMPACT GRANT PROGRAM AND KASPER/KENDALL CONFERENCE SCHOLARSHIP FUND. PROGRAM HIGHLIGHTS INCLUDED THE UNBREAKABLE SPIRIT WALK-N-WHEEL, WOMEN'S FORUM, OI RESEARCH UPDATE, PAIN PANEL, FITNESS AND OI, TALENT SHOW, PEER-TO-PEER SESSIONS, MEDICAL CONSULTATIONS, AND CLOSING DINNER AND DANCE. THE NEXT OIF NATIONAL CONFERENCE WILL BE HELD ON JULY 23-26, 2026, IN ORLANDO, FLORIDA.OIF REGIONAL CONFERENCES - THIS PAST YEAR, THE OIF HOSTED TWO REGIONAL CONFERENCES IN NASHVILLE, TN AND MONTREAL, QC. NEARLY 100 OI COMMUNITY MEMBERS AND MEDICAL PROFESSIONALS ATTENDED EACH MEETING TO CONNECT AND DISCUSS A RANGE OF OI RELATED TOPICS. TOPICS AT THE EVENTS INCLUDED PAIN MANAGEMENT, TREATMENT OPTIONS FOR ADULTS AND CHILDREN, PHYSICAL THERAPY, ORTHOPEDICS, DENTAL ISSUES AND MORE. COMING IN 2025, THE OIF WILL BE HOSTING THREE MORE REGIONAL CONFERENCES IN ATLANTA, GEORGIA, DENVER, COLORADO AND PORTLAND, OREGON. CHECK OUT WWW.OIF.ORG/CONFERENCES TO KEEP UP TO DATE WITH UPCOMING EVENTS.

    Expenses $192,751 · Revenue $80,195

  • Expenses $172,667 · Revenue $13,492

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • TED TRAHAN

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • KENNETH FINKEL

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • CHRISTINE WYMAN ROSSI

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • SHARON MUTNICK

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • MICHELLE FYNAN

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • FRANCIS GLORIEUX

    FOUNDATION MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KAREN BRAITMAYER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • BILLY HUANG

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • WENDY E SACKS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JAMES SHARPLES

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MICHAEL SHERIDAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • V REID SUTTON MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • TRACY SMITH HART

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $227,892
    From this org
    $200,484
    From related orgs
    $0
    Other
    $27,408
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $200,484
    Bonus
    $0
    Other
    $0
    Deferred
    $16,942
    Nontaxable benefits
    $10,466
    Filer's total
    $227,892

  • KATHERINE E CARTER

    CHIEF PROGRAM OFFICER

    Total calculated
    $136,145
    From this org
    $129,557
    From related orgs
    $0
    Other
    $6,588
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
12 February 2025
IRS schema version
2023v6.0
Source object
202510439349300846

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