Totals
- Total revenue
- $1,547,111
- Total expenses
- $2,259,826
- Contributions and grants received
- $1,544,925
- Grants paid
- $2,249,574
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $2,186
- Total assets, end of year
- $133,920
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $133,920
- Program services expenses (Part IX)
- $2,249,574
- Management and general expenses
- $10,252
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $2,249,574
Program services were 99.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1e · Government grants (contributions)
$202,675
-
1f · All other contributions, gifts and grants
$1,342,250
-
1g · Noncash contributions included above
$486,500
-
11a · Other revenue: MERCHANDISE SALES & MISC
total $2,186 · related or exempt $2,186
-
11e · Other revenue, total
$2,186
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $2,249,574 · program services $2,249,574
-
11a · Fees: management
total $9,992 · management and general $9,992
-
11b · Fees: legal
total $260 · management and general $260
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $846,635 · end of year $133,920
-
27 · Net assets without donor restrictions
beginning of year $846,635 · end of year $133,920
Mission and programs · 2025
Mission
TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE , SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS , AND EVENTUALLY THEIR MENTAL CAPACITY. THE FUNDS RAISED WILL BE USED FOR GENE THERAPY TREATMENT FOR CHILDREN WITH SPG50.
-
TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.
Expenses $2,249,574 · Grants $2,249,574
-
TO RAISE FUNDS TO HELP WITH THE COSTS OF INDIVIDUALS WITH A ULTR RARE GENETIC DISEASE CALLED SPG50. SPG50 IS A DEGENERATIVE SLOWLY TAKING AWAY CHILDREN'S ABILITY TO WALK AND USE THEIR HANDS AND EVENTUALLY THEIR MENTAL CAPACITY. THE GOAL OF THIS CHARITY WAS TO RAISE ENOUGH FUNDS TO SUPPORT THE GENE THERAPY TO TREAT SPG50. THE FDA APPROVED A CLINICAL TRIAL FOR THAT GENE THERAPHY IN THE US IN AUGUST OF 2022.
As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Devin DwyerDEVIN DWYER
SECRETARY
- Total calculated
- $0
-
Michael J DwyerMICHAEL J DWYER
PRESIDENT
- Total calculated
- $0
-
Adam RafskyADAM RAFSKY
TREASURER
- Total calculated
- $0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$2,221,574
-
CURE AP4
$28,000
Provenance
- Return type
- form_990
- Tax year
- 2025
- Filed
- 21 September 2026
- IRS schema version
- 2025v4.0
- Source object
- 202602649349300130
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