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Nonprofiteer
← NATIONAL DOWN SYNDROME SOCIETY

Form 990 for tax year 2024

Filed by NATIONAL DOWN SYNDROME SOCIETY.

Totals

Total revenue
$4,702,778
Total expenses
$5,721,193
Contributions and grants received
$3,173,086
Grants paid
$172,025
Program service revenue
$370,245
Investment income
$760,829
Other revenue
$398,618
Total assets, end of year
$12,363,529
Total liabilities, end of year
$850,986
Net assets or fund balances, end of year
$11,512,543
Program services expenses (Part IX)
$4,593,932
Management and general expenses
$406,281
Fundraising expenses
$720,980
Program service expenses (Part III)
$4,593,932

Program services were 80.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • KANDI PICKARD

    President & CEO

    Total calculated
    $239,048
    From this org
    $197,048
    From related orgs
    $0
    Other
    $42,000
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $197,048
    Bonus
    not reported
    Other
    not reported
    Deferred
    $358
    Nontaxable benefits
    $41,642
    Filer's total
    $239,048

  • Robert Snow

    Disability Adv

    Total calculated
    $145,001
    From this org
    $97,251
    From related orgs
    $0
    Other
    $47,750
    Hours/week
    40

  • Carlo P Frappolli

    Chairman

    Total calculated
    $0
    Hours/week
    2

  • Thomas Warner

    Vice President

    Total calculated
    $0
    Hours/week
    1.5

  • Janet Eissenstat

    Secretary

    Total calculated
    $0
    Hours/week
    1.5

  • John Short

    Treasurer

    Total calculated
    $0
    Hours/week
    1.5

  • Elizabeth F Goodwin

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Kerry Sette

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • John Cronin

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Misty Holmes

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Marjorie Shavers

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Mark Johnson

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Debbie Morris

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Lisa Pelham

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Thomas Santos

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Schunda Murphy

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Robert Siegel

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Candace Whiting

    Director

    Total calculated
    $0
    Hours/week
    1.5

  • Lauren Wang

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • C Mitch Taylor

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Michael Kulma

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Victoria Tremonti

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Joe Joyce

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Courtney Gaines

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • Ciara Siegel

    Director

    Total calculated
    $0
    Hours/week
    0.7

  • John McGuire

    Director

    Total calculated
    $0
    Hours/week
    0.3

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Compensation survey or study

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
16 March 2026
IRS schema version
2024v5.2
Source object
202610759349301371

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