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Nonprofiteer
← THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

Form 990 for tax year 2024

Filed by THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION.

Totals

Total revenue
$14,420,554
Total expenses
$11,559,795
Contributions and grants received
$12,345,385
Grants paid
$1,942,719
Program service revenue
$302,568
Investment income
$1,935,108
Other revenue
-$162,507
Total assets, end of year
$60,143,025
Total liabilities, end of year
$3,243,046
Net assets or fund balances, end of year
$56,899,979
Program services expenses (Part IX)
$9,461,273
Management and general expenses
$464,967
Fundraising expenses
$1,633,555
Program service expenses (Part III)
$9,461,273

Program services were 81.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • RITA CHOULA

    CHAIR

    Total calculated
    $0
    Hours/week
    4

  • GAIL ANDERSON

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    4

  • VALERIE SNOW

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • JULIE KELLY

    TREASURER

    Total calculated
    $0
    Hours/week
    4

  • HALIMA AMJAD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • KYLE BIRMINGHAM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • HELEN-ANN COMSTOCK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • JOE ESPOSITO

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    2

  • JILL GOLDMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KRISTIN HOLLOWAY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHOSHANA KRILOW

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • JOSEPH MARQUEZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LENN MARQUEZ

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    3

  • KATHY MELE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • DON NEWHOUSE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • GIRISH PATANGAY

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    3

  • DAVID PFEIFER

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    3

  • KRISTIN SCHNEEMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • MARG SUTHERLAND

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ABRAR TANVEER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KIM TORRES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JARY LARSEN

    DIRECTOR (THRU 5/4/25)

    Total calculated
    $0
    Hours/week
    4

  • SUSAN L-J DICKINSON

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $350,014
    From this org
    $320,026
    From related orgs
    $0
    Other
    $29,988
    Hours/week
    36 + 4 related

    Schedule J breakdown matched by us

    Base
    $319,630
    Bonus
    $0
    Other
    $396
    Deferred
    $9,493
    Nontaxable benefits
    $20,495
    Filer's total
    $350,014

  • MITCH APPLESON

    CHIEF OPERATING OFFICER

    Total calculated
    $283,585
    From this org
    $255,015
    From related orgs
    $0
    Other
    $28,570
    Hours/week
    38 + 2 related

    Schedule J breakdown matched by us

    Base
    $254,955
    Bonus
    $0
    Other
    $60
    Deferred
    $7,798
    Nontaxable benefits
    $20,772
    Filer's total
    $283,585

  • PENNY DACKS

    SR DIRECTOR OF SCIENTIFIC INITIATIVES

    Total calculated
    $244,063
    From this org
    $226,491
    From related orgs
    $0
    Other
    $17,572
    Hours/week
    30 + 10 related

    Schedule J breakdown matched by us

    Base
    $226,431
    Bonus
    $0
    Other
    $60
    Deferred
    $6,777
    Nontaxable benefits
    $10,795
    Filer's total
    $244,063

  • SHARON DENNY

    SR DIRECTOR OF PROGRAMS

    Total calculated
    $200,290
    From this org
    $174,174
    From related orgs
    $0
    Other
    $26,116
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $173,778
    Bonus
    $0
    Other
    $396
    Deferred
    $5,187
    Nontaxable benefits
    $20,929
    Filer's total
    $200,290

  • PETER WITZLEB

    DIRECTOR OF IT

    Total calculated
    $174,899
    From this org
    $168,866
    From related orgs
    $0
    Other
    $6,033
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $168,728
    Bonus
    $0
    Other
    $138
    Deferred
    $5,028
    Nontaxable benefits
    $1,005
    Filer's total
    $174,899

  • SHANA DODGE

    DIRECTOR OF RESEARCH ENGAGEMENT

    Total calculated
    $167,945
    From this org
    $152,910
    From related orgs
    $0
    Other
    $15,035
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $152,850
    Bonus
    $0
    Other
    $60
    Deferred
    $4,563
    Nontaxable benefits
    $10,472
    Filer's total
    $167,945

  • PHILLIP JOHN WEICHEL

    SR DIRECTOR OF ADVANCEMENT

    Total calculated
    $200,203
    From this org
    $157,933
    From related orgs
    $0
    Other
    $42,270
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,567
    Bonus
    $0
    Other
    $366
    Deferred
    $4,935
    Nontaxable benefits
    $37,335
    Filer's total
    $200,203

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

  • THE FTD DISORDERS REGISTRY LLC

    501(C)(3) · PROVIDES PATIENT REGISTRY FOR THOSE AFFECTED BY FTD · DE

    Directly controlled by THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

Provenance

Return type
form_990
Tax year
2024
Filed
14 October 2025
IRS schema version
2024v5.2
Source object
202542899349301639

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