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← ALLIANCE FOR CHILDHOOD DISEASES

Form 990 for tax year 2024

Filed by ALLIANCE FOR CHILDHOOD DISEASES.

Totals

Total revenue
$70,978,889
Total expenses
$60,662,986
Contributions and grants received
$4,784,794
Grants paid
$63,200
Program service revenue
$64,907,881
Investment income
$132,525
Other revenue
$1,153,689
Total assets, end of year
$36,472,202
Total liabilities, end of year
$18,664,472
Net assets or fund balances, end of year
$17,807,730
Program services expenses (Part IX)
$57,390,070
Management and general expenses
$2,404,066
Fundraising expenses
$868,850
Program service expenses (Part III)
$57,390,070

Program services were 94.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $170,423

  • 1f · All other contributions, gifts and grants

    $4,614,371

  • 2a · Program service revenue: NET PATIENT REVENUE

    total $64,907,881 · related or exempt $64,907,881

  • 3 · Investment income

    total $132,525 · excluded $132,525

  • 8a · Fundraising events: gross income

    $599,430

  • 8a · Fundraising events: contributions included on line 1c

    $170,423

  • 8b · Fundraising events: direct expenses

    $395,378

  • 8c · Net income from fundraising events

    total $204,052 · excluded $204,052

  • 11a · Other revenue: DRUG REBATES

    total $525,000 · excluded $525,000

  • 11b · Other revenue: MISCELLANEOUS

    total $382,922 · excluded $382,922

  • 11c · Other revenue: RESEARCH & HONORARIUMS

    total $41,715 · excluded $41,715

  • 11e · Other revenue, total

    $949,637

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $63,200 · program services $63,200

  • 5 · Compensation of officers, directors and key employees

    total $2,106,229 · program services $1,267,035 · management and general $709,713 · fundraising $129,481

  • 7 · Other salaries and wages

    total $12,939,218 · program services $11,946,033 · management and general $642,422 · fundraising $350,763

  • 8 · Pension plan contributions

    total $321,567 · program services $294,181 · management and general $17,960 · fundraising $9,426

  • 9 · Other employee benefits

    total $1,302,085 · program services $1,142,378 · management and general $120,244 · fundraising $39,463

  • 10 · Payroll taxes

    total $1,024,913 · program services $902,117 · management and general $91,908 · fundraising $30,888

  • 11b · Fees: legal

    total $172,127 · program services $97,381 · management and general $67,271 · fundraising $7,475

  • 11c · Fees: accounting

    total $59,250 · management and general $59,250

  • 11g · Fees: other

    total $793,609 · program services $577,483 · management and general $111,672 · fundraising $104,454

  • 12 · Advertising and promotion

    total $16,439 · program services $5,774 · management and general $444 · fundraising $10,221

  • 13 · Office expenses

    total $523,902 · program services $430,415 · management and general $62,685 · fundraising $30,802

  • 14 · Information technology

    total $873,154 · program services $665,415 · management and general $165,515 · fundraising $42,224

  • 16 · Occupancy

    total $2,201,479 · program services $2,072,176 · management and general $62,878 · fundraising $66,425

  • 17 · Travel

    total $109,095 · program services $91,675 · management and general $7,057 · fundraising $10,363

  • 19 · Conferences, conventions and meetings

    total $119,017 · program services $99,108 · management and general $14,646 · fundraising $5,263

  • 22 · Depreciation, depletion and amortization

    total $1,115,062 · program services $1,086,564 · management and general $14,001 · fundraising $14,497

  • 23 · Insurance

    total $278,469 · program services $262,420 · management and general $12,676 · fundraising $3,373

  • 24a · Other expenses: DRUGS

    total $35,512,275 · program services $35,512,275

  • 24b · Other expenses: MEDICAL SUPPLIES

    total $777,691 · program services $777,691

  • 24c · Other expenses: BANK FEES & SERVICE CHA

    total $241,524 · management and general $234,536 · fundraising $6,988

  • 24d · Other expenses: CREDENTIALING & LISCENS

    total $59,014 · program services $55,427 · management and general $2,399 · fundraising $1,188

  • 24e · All other expenses

    total $53,667 · program services $41,322 · management and general $6,789 · fundraising $5,556

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,331,717 · end of year $2,818,445

  • 2 · Savings and temporary cash investments

    end of year $8,520,302

  • 3 · Pledges and grants receivable

    beginning of year $1,541,920 · end of year $1,902,841

  • 4 · Accounts receivable

    beginning of year $4,988,687 · end of year $12,186,965

  • 8 · Inventories for sale or use

    beginning of year $662,264 · end of year $752,881

  • 9 · Prepaid expenses and deferred charges

    beginning of year $690,682 · end of year $663,694

  • 10a · Land, buildings and equipment: cost or other basis

    $4,309,219

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,814,076

  • 10c · Land, buildings and equipment, net

    beginning of year $1,590,047 · end of year $1,495,143

  • 14 · Intangible assets

    beginning of year $2,467,500 · end of year $1,837,500

  • 15 · Other assets

    beginning of year $8,015,665 · end of year $6,294,431

  • 17 · Accounts payable and accrued expenses

    beginning of year $3,473,876 · end of year $9,863,913

  • 19 · Deferred revenue

    end of year $5,040

  • 25 · Other liabilities

    beginning of year $11,322,779 · end of year $8,795,519

  • 27 · Net assets without donor restrictions

    beginning of year $5,119,460 · end of year $15,605,502

  • 28 · Net assets with donor restrictions

    beginning of year $2,372,367 · end of year $2,202,228

Mission and programs · 2024

Mission

TO ADVANCE CURES AND TREATMENT OF CHILDHOOD CANCER AND OTHER RARE DISEASES.

Activities or mission (Part I)

TO ADDRESS THE SPECIALIZED HEALTHCARE NEEDS OF CHILDREN, ADULTS, AND FAMILIES. AS A CENTER FOR CLINICAL RESEARCH, WE PROVIDE ACCESS TO GROUNDBREAKING THERAPIES AND TREATMENTS DESIGNED TO CONTROL, CURE, AND MANAGE ALL FORMS OF CHILDHOOD CANCERS AND OTHER RARE DISEASES.

  • CURE 4 THE KIDS (C4K) PROVIDES COMPASSIONATE, MULTIDISCIPLINARY CARE TO CHILDREN AND YOUNG ADULTS. SERVICES INCLUDE PERSONALIZED TREATMENT PLANS, ON-SITE DIAGNOSTICS, IN-HOUSE PHARMACY ACCESS, AND PARTICIPATION IN CLINICAL TRIALS. C4K'S COMMITMENT TO QUALITY IS REFLECTED IN ITS ACCREDITATIONS FROM BOTH THE JOINT COMMISSION AND THE COLLEGE OF AMERICAN PATHOLOGISTS (CAP). C4K'S SUPPORT EXTENDS BEYOND MEDICAL TREATMENT, OFFERING FAMILIES EMOTIONAL, EDUCATIONAL, AND FINANCIAL RESOURCES THROUGHOUT THEIR HEALTHCARE JOURNEY. C4K'S HIGHLY SPECIALIZED TEAM OF HEALTHCARE PROVIDERS DELIVER EVIDENCED-BASED CARE IN A STATE-OF-THE-ART FACILITY WHERE PATIENTS RECEIVE THE SUPPORT AND DIGNITY THEY DESERVE.C4K OFFERS A WIDE RANGE OF HIGHLY SPECIALIZED PEDIATRIC SERVICES DESIGNED TO CARE FOR CHILDREN WITH COMPLEX MEDICAL NEEDS. ITS ONCOLOGY TEAM FOCUSES ON TREATING CANCERS SUCH AS LEUKEMIA, BRAIN TUMORS, AND OTHER SOLID TUMORS, PROVIDING THERAPIES AND ACCESS TO CUTTING-EDGE CLINICAL TRIALS. IN HEMATOLOGY, CHILDREN WITH BLOOD DISORDERS INCLUDING HEMOPHILIA AND SICKLE CELL DISEASE RECEIVE COMPREHENSIVE CARE, SUPPORTED BY ON-SITE DISPENSING AND ADMINISTRATION OF VITAL FACTOR MEDICATIONS. RHEUMATOLOGY SERVICES HELP DIAGNOSE AND MANAGE AUTOIMMUNE CONDITIONS LIKE JUVENILE ARTHRITIS AND LUPUS, WHILE THE GENETICS DEPARTMENT PROVIDES THOROUGH EVALUATIONS AND COUNSELING FOR RARE INHERITED DISORDERS, ASSISTING FAMILIES WITH BOTH CURRENT MANAGEMENT AND FUTURE PLANNING. C4K'S ORTHOPEDICS SPECIALISTS ADDRESS BONE AND JOINT CONDITIONS, WHETHER COMMON OR LINKED TO CANCER AND GENETIC DISEASES. RECOGNIZING THE EMOTIONAL TOLL OF SERIOUS ILLNESS, BEHAVIORAL HEALTH SERVICES EXTEND PSYCHOLOGICAL, COGNITIVE, AND SOCIAL SUPPORT TO PATIENTS AND FAMILIES. PHYSICAL THERAPY PROGRAMS ARE TAILORED TO RESTORE MOBILITY AND STRENGTH IMPACTED BY DISEASE OR TREATMENT, AND INFUSION SERVICES ENSURE SAFE AND COMFORTABLE DELIVERY OF CHEMOTHERAPY, BIOLOGICS, AND SPECIALTY MEDICATIONS.THE CLINIC IS ALSO A HUB FOR CLINICAL RESEARCH, OFFERING CHILDREN ACCESS TO INNOVATIVE THERAPIES AND EXPERIMENTAL TREATMENTS THAT PUSH THE BOUNDARIES OF PEDIATRIC CARE. A DEDICATED PATIENT PHARMACY PROVIDES INDIVIDUALIZED MEDICATION MANAGEMENT AND COMPASSIONATE CLINICAL SUPPORT. TO FURTHER STREAMLINE CARE, AN ON-SITE LABORATORY DELIVERS SAME-DAY DIAGNOSTIC TESTING, ENSURING TIMELY RESULTS THAT GUIDE CRITICAL MEDICAL DECISIONS.

    Expenses $57,390,070 · Grants $63,200 · Revenue $64,907,881

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Annette Logan-Parker

    FOUNDER AND CHIEF ADVOCACY AND INNOVATION OFFICER

    Total calculated
    $855,687
    From this org
    $828,513
    From related orgs
    $0
    Other
    $27,174
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $708,122
    Bonus
    $120,391
    Other
    $0
    Deferred
    $10,350
    Nontaxable benefits
    $16,824
    Filer's total
    $855,687

  • Renee Coffman

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • David Leake

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Farhan Naqvi

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1

  • Cory Frey

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1

  • Leean Hernandez

    TRUSTEE

    Total calculated
    $0
    Hours/week
    1

  • Christine Tonn

    CEO

    Total calculated
    $878,253
    From this org
    $840,979
    From related orgs
    $0
    Other
    $37,274
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $775,979
    Bonus
    $65,000
    Other
    $0
    Deferred
    $9,893
    Nontaxable benefits
    $27,381
    Filer's total
    $878,253

  • Doyne Pickett

    CFO

    Total calculated
    $372,289
    From this org
    $335,799
    From related orgs
    $0
    Other
    $36,490
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $295,799
    Bonus
    $40,000
    Other
    $0
    Deferred
    $9,109
    Nontaxable benefits
    $27,381
    Filer's total
    $372,289

  • Joseph Lasky III

    MEDICAL DIRECTOR

    Total calculated
    $521,546
    From this org
    $483,815
    From related orgs
    $0
    Other
    $37,731
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $443,815
    Bonus
    $40,000
    Other
    $0
    Deferred
    $10,350
    Nontaxable benefits
    $27,381
    Filer's total
    $521,546

  • Waseem Alhushki

    DIRECTOR OF ONCOLOGY

    Total calculated
    $442,003
    From this org
    $418,718
    From related orgs
    $0
    Other
    $23,285
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $398,718
    Bonus
    $20,000
    Other
    $0
    Deferred
    $6,461
    Nontaxable benefits
    $16,824
    Filer's total
    $442,003

  • David Stewart

    MEDICAL DOCTOR

    Total calculated
    $636,344
    From this org
    $598,613
    From related orgs
    $0
    Other
    $37,731
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $578,613
    Bonus
    $20,000
    Other
    $0
    Deferred
    $10,350
    Nontaxable benefits
    $27,381
    Filer's total
    $636,344

  • Sumit Gupta

    DIRECTOR OF NEURO-ONCOLOGY PEDIATRIC HEMATOLOGY/ON

    Total calculated
    $305,352
    From this org
    $279,278
    From related orgs
    $0
    Other
    $26,074
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $259,278
    Bonus
    $20,000
    Other
    $0
    Deferred
    $8,009
    Nontaxable benefits
    $18,065
    Filer's total
    $305,352

  • Saumya Joshi

    MEDICAL DOCTOR

    Total calculated
    $373,259
    From this org
    $346,425
    From related orgs
    $0
    Other
    $26,834
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $296,425
    Bonus
    $50,000
    Other
    $0
    Deferred
    $10,010
    Nontaxable benefits
    $16,824
    Filer's total
    $373,259

  • Alan Ikeda MD

    FORMER CHIEF MEDICAL OFFICER

    Total calculated
    $630,000
    From this org
    $630,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    0

    Schedule J breakdown matched by us

    Base
    $0
    Bonus
    $0
    Other
    $630,000
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $630,000

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
9 October 2025
IRS schema version
2024v5.2
Source object
202522829349301672

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