Totals
- Total revenue
- $267,828
- Total expenses
- $618,980
- Contributions and grants received
- $264,836
- Grants paid
- $219,107
- Program service revenue
- $0
- Investment income
- $5
- Other revenue
- $2,987
- Total assets, end of year
- $1,147,406
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $1,147,406
- Program services expenses (Part IX)
- $372,408
- Management and general expenses
- $182,636
- Fundraising expenses
- $63,936
- Program service expenses (Part III)
- $372,408
Program services were 60.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$264,836
-
3 · Investment income
total $5 · excluded $5
-
11a · Other revenue: OTHER INCOME
total $2,987 · excluded $2,987
-
11e · Other revenue, total
$2,987
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $124,272 · program services $124,272
-
3 · Grants to foreign organizations and individuals
total $94,835 · program services $94,835
-
7 · Other salaries and wages
total $202,716 · program services $101,358 · management and general $60,815 · fundraising $40,543
-
10 · Payroll taxes
total $87,796 · program services $43,898 · management and general $26,339 · fundraising $17,559
-
11b · Fees: legal
total $18,652 · management and general $18,652
-
11c · Fees: accounting
total $49,965 · management and general $49,965
-
11g · Fees: other
total $20,000 · program services $5,000 · management and general $15,000
-
12 · Advertising and promotion
total $3,496 · program services $1,748 · fundraising $1,748
-
13 · Office expenses
total $1,767 · program services $1,148 · management and general $177 · fundraising $442
-
17 · Travel
total $297 · program services $149 · management and general $89 · fundraising $59
-
23 · Insurance
total $4,524 · management and general $4,524
-
24a · Other expenses: OTHER EVENT EXPENSES
total $9,433 · management and general $7,075 · fundraising $2,358
-
24b · Other expenses: FEES AND CHARGES
total $1,227 · fundraising $1,227
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,496,490 · end of year $747,046
-
2 · Savings and temporary cash investments
beginning of year $656 · end of year $648
-
9 · Prepaid expenses and deferred charges
beginning of year $1,412 · end of year $4,712
-
15 · Other assets
end of year $395,000
-
27 · Net assets without donor restrictions
beginning of year $1,429,288 · end of year $1,085,060
-
28 · Net assets with donor restrictions
beginning of year $69,270 · end of year $62,346
Mission and programs · 2023
Mission
ACCELERATING THE MOST EFFECTIVE GENE THERAPY TREATMENTS FOR CHILDREN WITH ULTRA-RARE DISEASES.
-
ACCELERATING THE MOST EFFECTIVE GENE THERAPY TREATMENTS FOR CHILDREN WITH ULTRA-RARE DISEASES.
Expenses $372,408 · Grants $219,107
As filed on the 2023 return.
Listed in Part VII
-
Jude SamulskiJUDE SAMULSKI
BOARD CHAIRM
- Total calculated
- $0
- Hours/week
- 5
-
Sheila MikhailSHEILA MIKHAIL
EXEC DIR/TRE
- Total calculated
- $0
- Hours/week
- 5
-
Javier GarciaJAVIER GARCIA
SECRETARY
- Total calculated
- $0
- Hours/week
- 5
-
Krystof BankiewiczKRYSTOF BANKIEWICZ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
ASKLEPIOS BIOPHARMACEUTICAL INC
$73,770
PROGRAM SUPPORT
-
PHARMARON
$46,473
PROGRAM SUPPORT
Taxable family on this return
Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.
Related corporations and trusts
Part IV: related organizations taxable as a corporation or trust.
-
ELPIDA THERAPEUTICS
C CORP · RESEARCH · CA
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 14 May 2025
- IRS schema version
- 2023v6.0
- Source object
- 202511359349313476
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