Form 990 for tax year 2024

Totals

Total revenue

$3,202,762

Total expenses

$2,398,183

Contributions and grants received

$3,091,305

Grants paid

$241,615

Program service revenue

$0

Investment income

$111,457

Other revenue

$0

Total assets, end of year

$5,881,919

Total liabilities, end of year

$85,964

Net assets or fund balances, end of year

$5,795,955

Program services expenses (Part IX)

$1,925,108

Management and general expenses

$135,472

Fundraising expenses

$337,603

Program service expenses (Part III)

$1,925,108

Program services were 80.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• PATIENT SERVICES AND SUPPORT: ALS UNITED OHIO PROVIDES A WIDE RANGE OF SERVICES TO PEOPLE WHO HAVE BEEN DIAGNOSED WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) OR LOU GEHRIG'S DISEASE AND TO THEIR FAMILY MEMBERS. SERVICES INCLUDE CASE MANAGEMENT BY MEDICAL AND HEALTHCARE PROFESSIONALS WHO ASSIST PATIENTS, SPOUSES, AND CAREGIVERS IN KNOWING HOW TO PREPARE AND DEAL WITH VARIOUS ASPECTS (PHYSICAL, PSYCHO-SOCIAL, AND FINANCIAL) OF BEING DIAGNOSED WITH THIS DEVASTATING, TERMINAL ILLNESS. IN ADDITION, THE ORGANIZATION PROVIDES EQUIPMENT LOANS, MONTHLY SUPPORT GROUPS, STAFFING AND PARTNERING WITH ALS CLINICS (OHIOHEALTH IN COLUMBUS AND UNIVERSITY OF CINCINNATI), A PATIENT GRANT PROGRAM AND CHILDREN'S ALS RESOURCES. ALL OF THESE SERVICES ARE PROVIDED, FREE OF CHARGE. DURING THIS PERIOD, OVER 587 PEOPLE LIVING WITH ALS WERE SERVED; 903 INDIVIDUALS ATTENDED TEN MONTHLY SUPPORT GROUP MEETINGS; 85 CHILD AND TEEN BACKPACKS PROVIDED; 482 PATIENT VISITS TO 2 MULTIDISCIPLINARY ALS CLINICS, AND 1,017 PIECES OF EQUIPMENT LOANED AND PURCHASED FOR PATIENTS. DURING FISCAL YEAR 2025, THE ORGANIZATION WAS ABLE TO CONTINUE ITS PATIENT GRANT PROGRAM. TOTAL GRANTS PROVIDED EQUALED 222,020. GRANTS ARE AWARDED BASED UPON ELIGIBILITY APPLICATIONS THAT ARE REVIEWED AND APPROVED BY THE ORGANIZATION'S STAFF.

  Expenses $1,439,135 · Grants $241,615

• PUBLIC AWARENESS: ALS UNITED OHIO PROVIDES IN-SERVICE TRAINING TO HEALTHCARE PROVIDERS SO THEY ARE BETTER PREPARED TO CARE FOR ALS PATIENTS. STAFF AND VOLUNTEERS SPEAK TO COMMUNITY ORGANIZATIONS, SCHOOL GROUPS, AND THE GENERAL PUBLIC ABOUT ALS AND THE NEED FOR LOCAL SERVICES, SUPPORT AND ABOUT THE NEED FOR RESEARCH TO FIND EFFECTIVE TREATMENTS AND A CURE FOR ALS. THE ORGANIZATION'S STAFF WORK WITH LOCAL RADIO STATIONS, NEWSPAPERS/PUBLICATIONS AND TELEVISION STATIONS TO ACQUIRE COVERAGE WHEN POSSIBLE TO EDUCATE THE GENERAL PUBLIC ABOUT ALS, OUR FREE SERVICES AND TO ENCOURAGE THE PUBLIC TO ATTEND OUR CHAPTER-SPONSORED EVENTS. THE ORGANIZATION PARTNERS WITH LOCAL ATHLETIC TEAMS - MAJOR LEAGUE AND MINOR LEAGUE BASEBALL) TO HOST LOU GEHRIG DAY EVENTS TO HONOR AN INDIVIDUAL WITH ALS, TO PROVIDE INFORMATION ABOUT THE DISEASE AND TO DIRECT OTHERS WITH ALS TO THE FREE SERVICES THE ORGANIZATION PROVIDES.

  Expenses $362,702

• ADVOCACY AND RESEARCH: ALS UNITED OHIO SUPPORTS SCIENTIFIC RESEARCH GRANTS TO FIND THE CAUSE, TREATMENTS AND CURE FOR ALS. IN ADDITION TO FINANCIAL SUPPORT, THE ALS UNITED OHIO ACTIVELY DEVELOPS RELATIONSHIPS WITH LOCAL ALS RESEARCHERS, INVITING THEM TO PRESENT THEIR NEW PROJECTS AND THEIR FINDINGS TO ALS UNITED OHIO SUPPORT GROUPS AND TO WRITE ARTICLES FOR POSTING IN THE ORGANIZATION'S NEWSLETTER. THE ORGANIZATION ALSO FACILITATES OPPORTUNITIES FOR LOCAL ALS RESEARCHERS TO EDUCATE PATIENTS ABOUT SPECIFIC RESEARCH PROJECTS AND DRUG TRIALS AND TO RECRUIT PATIENTS TO VOLUNTARILY PARTICIPATE IN THOSE EFFORTS. THE ORGANIZATION PARTNERS WITH ALS VOLUNTEERS TO EDUCATE MEMBERS OF THE THE OHIO CONGRESSIONAL DELEGATION ABOUT ALS AND THE NEED TO INCREASE AWARENESS AND RESOURCES TO PEOPLE AFFECTED BY THIS DISEASE. THE ORGANIZATION'S STAFF AND VOLUNTEERS MEET WITH VARIOUS STATE OF OHIO LEGISLATORS TO EDUCATE THEM ABOUT ALS, ABOUT THE FREE SERVICES WE PROVIDE IN THE COMMUNITY AND THE NEED FOR ADDITIONAL RESOURCES TO HELP SUPPORT PEOPLE IN OHIO WITH ALS.

  Expenses $123,271

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type

form_990

Tax year

2024

Filed

10 November 2025

IRS schema version

2024v5.0

Source object

202533179349306748

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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