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Nonprofiteer
← ALSTROM SYNDROME INTERNATIONAL

Form 990 for tax year 2025

Filed by ALSTROM SYNDROME INTERNATIONAL.

Totals

Total revenue
$440,037
Total expenses
$233,006
Contributions and grants received
$439,998
Grants paid
$0
Program service revenue
$0
Investment income
$0
Other revenue
$39
Total assets, end of year
$387,522
Total liabilities, end of year
$1,525
Net assets or fund balances, end of year
$385,997
Program services expenses (Part IX)
$121,715
Management and general expenses
$81,355
Fundraising expenses
$29,936
Program service expenses (Part III)
$121,715

Program services were 52.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $99,064

  • 1f · All other contributions, gifts and grants

    $340,934

  • 8a · Fundraising events: contributions included on line 1c

    $99,064

  • 8c · Net income from fundraising events

    total $0

  • 10a · Gross sales of inventory

    $39

  • 10c · Net income from sales of inventory

    total $39 · related or exempt $39

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $38,887 · management and general $38,887

  • 7 · Other salaries and wages

    total $53,728 · program services $53,728

  • 10 · Payroll taxes

    total $2,944 · management and general $2,944

  • 11c · Fees: accounting

    total $5,055 · management and general $5,055

  • 11e · Fees: professional fundraising services

    total $2,461 · fundraising $2,461

  • 11g · Fees: other

    total $10,248 · management and general $10,248

  • 12 · Advertising and promotion

    total $7,124 · management and general $7,124

  • 13 · Office expenses

    total $14,543 · management and general $14,543

  • 16 · Occupancy

    total $592 · management and general $592

  • 17 · Travel

    total $37,773 · program services $37,773

  • 19 · Conferences, conventions and meetings

    total $27,564 · program services $27,564

  • 23 · Insurance

    total $1,467 · management and general $1,467

  • 24a · Other expenses: MEALS & ENTERTAINMENT

    total $2,650 · program services $2,650

  • 24b · Other expenses: COMMUNITY EVENT

    total $27,475 · fundraising $27,475

  • 24c · Other expenses: FEES

    total $376 · management and general $376

  • 24d · Other expenses: AUTO

    total $119 · management and general $119

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $180,967 · end of year $387,522

  • 25 · Other liabilities

    end of year $1,525

  • 27 · Net assets without donor restrictions

    beginning of year $180,967 · end of year $385,997

Mission and programs · 2025

Mission

OUR MISSION IS TO PROVIDE SUPPORT, INFORMATION, AND COORDINATION WORLD-WIDE TO FAMILIES AND PROFESSIONALS EFFECTIVELY TREATING ALSTROM SYNDROME AS WE WORK TOWARD A CURE.

  • EDUCATION: ASI PROVIDED INFORMATION TO FAMILIES, HEALTHCARE PROFESSIONALS, RESEARCHERS, AND THE PUBLIC, REGARDING ALSTROM SYNDROME. OUR HANDBOOK IS AVAILABLE TO SEND TO ALL FAMILIES. OUR OUTREACH FOCUSED ON INCREASING THE AWARENESS AND UPDATING INFORMATION FOR OUR FAMILIES WORLD-WIDE.

    Expenses $40,572

  • RESEARCH: ASI SUPPORTED RESEARCH EFFORTS RELATED TO ALSTROM SYNDROME BY COLLABORATING WITH RESEARCHERS, MEDICAL PROFESSIONALS TO ADVANCE SCIENTIFIC UNDERSTUDY OF THE DISEASE. ACTIVITIES INCLUDED SUPPORTING A REGISTRY, COLLECTING PATIENT INFO, AND WORKING TOWARDS BIOBANK SAMPLE COLLECTION.

    Expenses $40,572

  • FAMILY SUPPORT: ALSTROM SYNDROME INTERNATIONAL PROVIDED SUPPORT AND RESOURCES TO INDIVIDUALS AND FAMILIES AFFECTED BY ALSTROM SYNDROME THROUGH RETREATS, SUPPORT PROGRAMS, NETWORKING, AND DIRECT COMMUNICATION WITH FAMILIES WORLD-WIDE. ASI HELPED CONNECT FAMILIES TO MEDICAL PROFESSIONALS AND COMMUNITY SUPPORT WHILE PROMOTING AWARENESS AND IMPROVING THE QUALIFY OF LIFE FOR THOSE AFFECTED BY THIS RARE DISEASE.

    Expenses $40,571

As filed on the 2025 return.

Listed in Part VII

  • Raquel Tucker

    EXECUTIVE DIRECTOR

    Total calculated
    $37,500
    From this org
    $37,500
    From related orgs
    $0
    Other
    $0
    Hours/week
    0

  • Chase Palmer

    PRESIDENT

    Total calculated
    $19,500
    From this org
    $19,500
    From related orgs
    $0
    Other
    $0
    Hours/week
    0

  • Jennifer Potter

    TREASURER

    Total calculated
    $0
    Hours/week
    0

  • Michael Kirby

    SECRETARY

    Total calculated
    $0
    Hours/week
    0

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2025
Filed
20 July 2026
IRS schema version
2025v4.2
Source object
202632019349301063

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