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← EHE FOUNDATION

Form 990 for tax year 2024

Filed by EHE FOUNDATION.

Totals

Total revenue
$585,109
Total expenses
$814,338
Contributions and grants received
$499,381
Grants paid
$416,254
Program service revenue
$0
Investment income
$85,728
Other revenue
$0
Total assets, end of year
$1,850,328
Total liabilities, end of year
$321,776
Net assets or fund balances, end of year
$1,528,552
Program services expenses (Part IX)
$721,771
Management and general expenses
$48,109
Fundraising expenses
$44,458
Program service expenses (Part III)
$721,771

Program services were 88.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $499,381

  • 3 · Investment income

    total $85,728 · excluded $85,728

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $411,254 · program services $411,254

  • 2 · Grants to domestic individuals

    total $5,000 · program services $5,000

  • 5 · Compensation of officers, directors and key employees

    total $106,503 · program services $87,332 · management and general $8,520 · fundraising $10,651

  • 7 · Other salaries and wages

    total $85,867 · program services $70,410 · management and general $6,870 · fundraising $8,587

  • 9 · Other employee benefits

    total $12,862 · program services $10,547 · management and general $1,029 · fundraising $1,286

  • 10 · Payroll taxes

    total $14,484 · program services $11,877 · management and general $1,159 · fundraising $1,448

  • 11c · Fees: accounting

    total $9,085 · management and general $9,085

  • 11f · Fees: investment management

    total $7,084 · management and general $7,084

  • 11g · Fees: other

    total $105,900 · program services $86,838 · management and general $8,472 · fundraising $10,590

  • 12 · Advertising and promotion

    total $2,720 · program services $2,230 · fundraising $490

  • 13 · Office expenses

    total $30,725 · program services $23,404 · management and general $4,032 · fundraising $3,289

  • 17 · Travel

    total $8,688 · program services $7,124 · management and general $1,564

  • 19 · Conferences, conventions and meetings

    total $4,130 · program services $4,130

  • 23 · Insurance

    total $1,429 · program services $1,143 · management and general $286

  • 24a · Other expenses: INDIRECT FUNDRAISING

    total $8,107 · fundraising $8,107

  • 24b · Other expenses: DUES & SUBSCRIPTIONS

    total $400 · program services $400

  • 24c · Other expenses: ALL OTHER

    total $100 · program services $82 · management and general $8 · fundraising $10

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $105,814 · end of year $168,942

  • 2 · Savings and temporary cash investments

    beginning of year $865,160 · end of year $715,626

  • 3 · Pledges and grants receivable

    beginning of year $50,000

  • 4 · Accounts receivable

    beginning of year $28,579 · end of year $57,857

  • 11 · Investments: publicly traded securities

    beginning of year $852,868 · end of year $907,903

  • 17 · Accounts payable and accrued expenses

    beginning of year $76,830 · end of year $38,876

  • 18 · Grants payable

    beginning of year $100,000 · end of year $282,900

  • 27 · Net assets without donor restrictions

    beginning of year $1,478,491 · end of year $1,381,452

  • 28 · Net assets with donor restrictions

    beginning of year $247,100 · end of year $147,100

Mission and programs · 2024

Mission

TO FIND TREATMENTS AND A CURE FOR THE RARE CANCER, EPITHELIOID HEMANGIOENDOTHELIOMA (EHE), BY ADVANCING RESEARCH AND DRIVING COLLABORATION BETWEEN PATIENTS, RESEARCHERS, AND CLINICIANS.

  • RESEARCH: THE EHE FOUNDATION FUNDED RESEARCH PROJECTS IN BASIC AND TRANSLATIONAL SCIENCE AIMED TO ADVANCE KNOWLEDGE IN THE DISEASE, ENABLING THE IDENTIFICATION OF EFFECTIVE TREATMENTS FOR EHE. IN ADDITION TO FUNDING EXTERNAL RESEARCH, THE FOUNDATION FUNDED AND ADVANCED PATIENT-LED RESEARCH INITIATIVES INCLUDING BIOBANKING OF EHE BIOSPECIMENS, DEVELPMENT OF A GLOBAL PATIENT REGISTRY, AND EXPANDING EHE CELL-LINE DEVELOPMENT. THE FOUNDATION CONTINUED ITS GROWTH OF A GLOBAL PATIENT-LED RESEARCH NETWORK, INCLUDING CLINICIAN-SCIENTISTS, RESEARCHERS, AND ADVOCATES IN A SCIENTIFIC SYMPOSIUM.

    Expenses $666,778 · Grants $416,254

  • PATIENT SERVICES: THE EHE FOUNDATION HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT EHE, INCLUDING PHYSICIANS EXPERIENCED IN TREATING EHE, AND TREATMENT OPTIONS BY DEVELOPING AND PUBLISHING EDUCATIONAL CONTENT, HOSTING EDUCATIONAL CONFERENCES, AND PROVIDING ONLINE AND 1:1 PEER SUPPORT.

    Expenses $54,993

As filed on the 2024 return.

Listed in Part VII

  • Denise Robinson

    EXEC DIR/DIR

    Total calculated
    $106,503
    From this org
    $105,698
    From related orgs
    $0
    Other
    $805
    Hours/week
    40

  • Jenni Kovach

    PRESIDENT

    Total calculated
    $0
    Hours/week
    7

  • Sarah Bright

    TREASURER

    Total calculated
    $0
    Hours/week
    3

  • Amy Baghdadi

    SECRETARY

    Total calculated
    $0
    Hours/week
    3

  • Leeann Conner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    25

  • David Casimir

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

  • Guy Weinberg

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

  • John McFadden

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    3

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
17 July 2025
IRS schema version
2024v5.0
Source object
202502109349300045

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