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← BLUEFIELD PROJECT TO CURE FRONTOTEMPORAL DEMENTIA

Form 990 for tax year 2022

Filed by BLUEFIELD PROJECT TO CURE FRONTOTEMPORAL DEMENTIA.

What the amendment changed

Compared with the return it replaced , filed 12 July 2023. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Listed only on the later return

  • Laura Mitic Phd

Totals

Total revenue
$2,859,465
Total expenses
$7,386,966
Contributions and grants received
$1,445,266
Grants paid
$4,272,328
Program service revenue
$522
Investment income
$1,413,677
Other revenue
$0
Total assets, end of year
$29,690,825
Total liabilities, end of year
$355,873
Net assets or fund balances, end of year
$29,334,952
Program services expenses (Part IX)
$7,049,219
Management and general expenses
$334,420
Fundraising expenses
$3,327
Program service expenses (Part III)
$7,049,219

Program services were 95.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $1,445,266

  • 2a · Program service revenue: Program fees

    total $522 · related or exempt $522

  • 3 · Investment income

    total $1,413,677 · excluded $1,413,677

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0

  • 5 · Royalties

    total $0

  • 6d · Net rental income or loss

    total $0

  • 7d · Net gain or loss

    total $0

  • 8c · Net income from fundraising events

    total $0

  • 9c · Net income from gaming

    total $0

  • 10c · Net income from sales of inventory

    total $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $3,134,091 · program services $3,134,091

  • 2 · Grants to domestic individuals

    total $0

  • 3 · Grants to foreign organizations and individuals

    total $1,138,237 · program services $1,138,237

  • 4 · Benefits paid to or for members

    total $0

  • 5 · Compensation of officers, directors and key employees

    total $368,000 · program services $295,434 · management and general $71,246 · fundraising $1,320

  • 6 · Compensation of disqualified persons

    total $0

  • 7 · Other salaries and wages

    total $350,850 · program services $281,667 · management and general $67,926 · fundraising $1,257

  • 8 · Pension plan contributions

    total $58,000 · program services $46,563 · management and general $11,229 · fundraising $208

  • 9 · Other employee benefits

    total $59,733 · program services $47,954 · management and general $11,564 · fundraising $215

  • 10 · Payroll taxes

    total $29,071 · program services $23,338 · management and general $5,628 · fundraising $105

  • 11a · Fees: management

    total $0

  • 11b · Fees: legal

    total $30,032 · program services $30,032

  • 11c · Fees: accounting

    total $13,587 · management and general $13,587

  • 11d · Fees: lobbying

    total $0

  • 11e · Fees: professional fundraising services

    total $0

  • 11f · Fees: investment management

    total $87,184 · management and general $87,184

  • 11g · Fees: other

    total $47,185 · program services $37,437 · management and general $9,748

  • 12 · Advertising and promotion

    total $0

  • 13 · Office expenses

    total $16,529 · program services $8,146 · management and general $8,383

  • 14 · Information technology

    total $3,787 · program services $781 · management and general $3,006

  • 15 · Royalties

    total $0

  • 16 · Occupancy

    total $34,050 · program services $30,073 · management and general $3,804 · fundraising $173

  • 17 · Travel

    total $72,216 · program services $32,201 · management and general $40,015

  • 18 · Travel or entertainment for public officials

    total $0

  • 19 · Conferences, conventions and meetings

    total $171,930 · program services $171,930

  • 20 · Interest

    total $0

  • 21 · Payments to affiliates

    total $0

  • 22 · Depreciation, depletion and amortization

    total $0

  • 23 · Insurance

    total $9,802 · program services $8,653 · management and general $1,100 · fundraising $49

  • 24a · Other expenses: Neurofilament surveillance

    total $1,362,682 · program services $1,362,682

  • 24b · Other expenses: Registry AFTD amd FTD

    total $400,000 · program services $400,000

  • 24e · All other expenses

    total $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $698,153 · end of year $557,417

  • 2 · Savings and temporary cash investments

    beginning of year $1,406,526 · end of year $1,291,342

  • 3 · Pledges and grants receivable

    beginning of year $1,151,446 · end of year $805,098

  • 4 · Accounts receivable

    end of year $0

  • 5 · Loans and receivables from officers and key people

    end of year $0

  • 6 · Loans and receivables from disqualified persons

    end of year $0

  • 7 · Other notes and loans receivable

    end of year $0

  • 8 · Inventories for sale or use

    end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $16,588 · end of year $24,571

  • 10c · Land, buildings and equipment, net

    end of year $0

  • 11 · Investments: publicly traded securities

    end of year $0

  • 12 · Investments: other securities

    beginning of year $34,612,838 · end of year $26,760,888

  • 13 · Investments: program-related

    end of year $0

  • 14 · Intangible assets

    end of year $0

  • 15 · Other assets

    beginning of year $151,400 · end of year $251,509

  • 17 · Accounts payable and accrued expenses

    beginning of year $79,145 · end of year $249,326

  • 25 · Other liabilities

    beginning of year $110,461 · end of year $106,547

  • 27 · Net assets without donor restrictions

    beginning of year $36,044,552 · end of year $28,764,088

  • 28 · Net assets with donor restrictions

    beginning of year $1,802,793 · end of year $570,864

Mission and programs · 2022

Mission

frontal lobe of the brain and may extend back to the temporal lobe. FTD is the second most common early-onset dementia after Alzheimer's disease.

Activities or mission (Part I)

The Organization's primary mission is to help find a cure for Frontotemporal dementia (FTD). The Bluefield Project was founded by a family group whose lives have been directly impacted by FTD. FTD is a clinical syndrome caused by degeneration of the [continued on page 2]

  • The Bluefield Project is an effort to find a treatment or cure for frontotemporal dementia (FTD) by funding FTD-related research. By privately funding basic, translational and clinical FTD-related research, the donor group that established The Bluefield Project has significantly increased the number of labs studying FTD. The Consortium for Frontotemporal Dementia Research, funded in part by The Bluefield Project, applies a business model to research by incentivizing the sharing of data and reagents, thereby accelerating discovery. FTD encompasses a group of complex neurodegenerative diseases characterized by progressive deterioration of the frontotemporal lobes and resultant loss of decision-making abilities and control of behavior, emotion, and language.

    Expenses $7,049,219 · Grants $4,272,328 · Revenue $522

As filed on the 2022 return.

Listed in Part VII

  • Bruce Miller MD

    Director

    Total calculated
    $410,000
    From this org
    $410,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    4

    Schedule J breakdown matched by us

    Base
    $10,000
    Bonus
    not reported
    Other
    $400,000
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $410,000

  • Rodney Pearlman PhD

    President

    Total calculated
    $368,000
    From this org
    $368,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $368,000
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $368,000

  • Robert V Farese Jr MD

    Director

    Total calculated
    $321,891
    From this org
    $321,891
    From related orgs
    $0
    Other
    $0
    Hours/week
    4

    Schedule J breakdown matched by us

    Base
    not reported
    Bonus
    not reported
    Other
    $321,891
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $321,891

  • Laura Mitic Phd

    Chief Scientific

    Total calculated
    $194,069
    From this org
    $57,750
    From related orgs
    $136,319
    Other
    $0
    Hours/week
    10 + 30 related

    Schedule J breakdown matched by us

    Base
    $57,750 + $136,319 related
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $57,750 + $136,319 related

  • Alexandra Nicholson

    Assoc Dir Rsrch

    Total calculated
    $121,888
    From this org
    $121,888
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Ian Massey PhD

    Director

    Total calculated
    $10,000
    From this org
    $10,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    4

    Schedule J breakdown matched by us

    Base
    $10,000
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $10,000

  • Robin Richards Donohoe

    Board Chair

    Total calculated
    $0
    Hours/week
    4

  • Christopher Donohoe

    Secty/Treasurer

    Total calculated
    $0
    Hours/week
    4

  • Roy Richards Jr

    Director

    Total calculated
    $0
    Hours/week
    4

  • Williamson Bradford MD

    Director

    Total calculated
    $0
    Hours/week
    4

  • Karen Chen PhD

    Director

    Total calculated
    $0
    Hours/week
    4

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2022
Filed
15 March 2024
IRS schema version
2022v5.0
Source object
202430759349300223

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