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Nonprofiteer
← ALS THERAPY DEVELOPMENT FOUNDATION INC

Form 990 for tax year 2024

Filed by ALS THERAPY DEVELOPMENT FOUNDATION INC.

Totals

Total revenue
$13,406,171
Total expenses
$12,879,065
Contributions and grants received
$11,328,179
Grants paid
$0
Program service revenue
$1,312,529
Investment income
$465,979
Other revenue
$299,484
Total assets, end of year
$23,052,170
Total liabilities, end of year
$4,418,122
Net assets or fund balances, end of year
$18,634,048
Program services expenses (Part IX)
$11,714,119
Management and general expenses
$544,279
Fundraising expenses
$620,667
Program service expenses (Part III)
$11,714,119

Program services were 91.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $5,134,455

  • 1e · Government grants (contributions)

    $682,269

  • 1f · All other contributions, gifts and grants

    $5,511,455

  • 1g · Noncash contributions included above

    $150,209

  • 2a · Program service revenue: PHARMACEUTICAL CONTRACTS

    total $1,312,529 · related or exempt $1,312,529

  • 3 · Investment income

    total $465,979 · excluded $465,979

  • 8a · Fundraising events: gross income

    $1,474,117

  • 8a · Fundraising events: contributions included on line 1c

    $5,134,455

  • 8b · Fundraising events: direct expenses

    $1,174,633

  • 8c · Net income from fundraising events

    total $299,484 · excluded $299,484

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $414,933 · program services $331,947 · management and general $41,493 · fundraising $41,493

  • 7 · Other salaries and wages

    total $4,149,414 · program services $3,837,067 · management and general $226,446 · fundraising $85,901

  • 8 · Pension plan contributions

    total $132,524 · program services $121,935 · management and general $7,436 · fundraising $3,153

  • 9 · Other employee benefits

    total $556,596 · program services $510,750 · management and general $31,566 · fundraising $14,280

  • 10 · Payroll taxes

    total $342,113 · program services $312,535 · management and general $20,181 · fundraising $9,397

  • 11b · Fees: legal

    total $261,399 · program services $216,955 · management and general $44,444

  • 11c · Fees: accounting

    total $37,352 · management and general $37,352

  • 11e · Fees: professional fundraising services

    total $26,875 · fundraising $26,875

  • 11g · Fees: other

    total $421,951 · program services $348,702 · management and general $33,282 · fundraising $39,967

  • 12 · Advertising and promotion

    total $48,241 · program services $314 · fundraising $47,927

  • 13 · Office expenses

    total $228,471 · program services $181,954 · management and general $8,400 · fundraising $38,117

  • 14 · Information technology

    total $678,532 · program services $588,964 · management and general $3,379 · fundraising $86,189

  • 16 · Occupancy

    total $1,505,161 · program services $1,436,922 · management and general $57,054 · fundraising $11,185

  • 17 · Travel

    total $1,216 · program services $1,116 · fundraising $100

  • 19 · Conferences, conventions and meetings

    total $135,540 · program services $40,488 · fundraising $95,052

  • 20 · Interest

    total $20,118 · program services $20,118

  • 22 · Depreciation, depletion and amortization

    total $263,248 · program services $246,529 · management and general $11,495 · fundraising $5,224

  • 23 · Insurance

    total $88,988 · program services $81,129 · management and general $5,302 · fundraising $2,557

  • 24a · Other expenses: TESTING AND LAB EXPENSE

    total $3,340,639 · program services $3,340,639

  • 24b · Other expenses: MISCELLANEOUS

    total $130,105 · program services $42,512 · management and general $11,708 · fundraising $75,885

  • 24c · Other expenses: PROGRAM SUPPLIES AND MA

    total $68,119 · program services $29,277 · management and general $1,618 · fundraising $37,224

  • 24d · Other expenses: DUES AND SUBSCRIPTIONS

    total $23,700 · program services $21,905 · management and general $1,745 · fundraising $50

  • 24e · All other expenses

    total $3,830 · program services $2,361 · management and general $1,378 · fundraising $91

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $282,198 · end of year $408,496

  • 2 · Savings and temporary cash investments

    beginning of year $6,415,329 · end of year $4,143,356

  • 3 · Pledges and grants receivable

    beginning of year $455,824 · end of year $389,277

  • 4 · Accounts receivable

    beginning of year $97,420 · end of year $327,321

  • 9 · Prepaid expenses and deferred charges

    beginning of year $297,565 · end of year $191,952

  • 10a · Land, buildings and equipment: cost or other basis

    $3,652,876

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,925,366

  • 10c · Land, buildings and equipment, net

    beginning of year $393,002 · end of year $727,510

  • 11 · Investments: publicly traded securities

    beginning of year $7,976,815 · end of year $13,446,822

  • 14 · Intangible assets

    beginning of year $875,678 · end of year $970,777

  • 15 · Other assets

    beginning of year $3,218,820 · end of year $2,446,659

  • 17 · Accounts payable and accrued expenses

    beginning of year $426,183 · end of year $567,204

  • 19 · Deferred revenue

    beginning of year $153,454 · end of year $85,556

  • 25 · Other liabilities

    beginning of year $4,422,082 · end of year $3,765,362

  • 27 · Net assets without donor restrictions

    beginning of year $14,810,932 · end of year $18,159,048

  • 28 · Net assets with donor restrictions

    beginning of year $200,000 · end of year $475,000

Mission and programs · 2024

Mission

OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.

Activities or mission (Part I)

WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.

  • ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.

    Expenses $11,714,119 · Revenue $1,312,529

As filed on the 2024 return.

Listed in Part VII

  • Fernando Vieira

    CEO AND CSO

    Total calculated
    $414,933
    From this org
    $386,901
    From related orgs
    $0
    Other
    $28,032
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $386,901
    Bonus
    $0
    Other
    $0
    Deferred
    $7,702
    Nontaxable benefits
    $20,330
    Filer's total
    $414,933

  • Lynne Nieto

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    2.5

  • Steven Perrin PhD

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2.5

  • Theodore Reich JD CPA

    TREASURER AND BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Dr Stanley H Appel MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Alexander Cappello

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Dr Spiros Jamas Scd

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • James Allen Heywood

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • John B Heywood PhD Scd

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Rob Rodin

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Paul Sallaberry

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Robert Sepucha

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Jenny Dwyer

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Mike Smith

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Julie Swan

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Kent Jackson Bransford MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Andrew Niblock

    BOARD MEMBER (LEFT IN DEC 2024)

    Total calculated
    $0
    Hours/week
    2.5

  • Tom Engellenner

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • Alan Gill

    VP OF RESEARCH

    Total calculated
    $208,730
    From this org
    $188,954
    From related orgs
    $0
    Other
    $19,776
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $188,954
    Bonus
    $0
    Other
    $0
    Deferred
    $7,514
    Nontaxable benefits
    $12,262
    Filer's total
    $208,730

  • Carol Hamilton

    VP OF DEVELOPMENT

    Total calculated
    $187,133
    From this org
    $172,628
    From related orgs
    $0
    Other
    $14,505
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $172,628
    Bonus
    $0
    Other
    $0
    Deferred
    $6,959
    Nontaxable benefits
    $7,546
    Filer's total
    $187,133

  • Theo Hatzipetros

    DIRECTOR OF PHARMACOLOGY

    Total calculated
    $169,553
    From this org
    $155,581
    From related orgs
    $0
    Other
    $13,972
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $155,581
    Bonus
    $0
    Other
    $0
    Deferred
    $6,426
    Nontaxable benefits
    $7,546
    Filer's total
    $169,553

  • Kyle R Denton

    DIRECTOR, CELL BIOLOGY

    Total calculated
    $185,088
    From this org
    $158,381
    From related orgs
    $0
    Other
    $26,707
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $158,381
    Bonus
    $0
    Other
    $0
    Deferred
    $6,377
    Nontaxable benefits
    $20,330
    Filer's total
    $185,088

  • Meghan Buco

    SENIOR DIRECTOR OF MARKETING & COMMUNICATIONS

    Total calculated
    $155,820
    From this org
    $135,001
    From related orgs
    $0
    Other
    $20,819
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $135,001
    Bonus
    $0
    Other
    $0
    Deferred
    $5,602
    Nontaxable benefits
    $15,217
    Filer's total
    $155,820

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
25 June 2025
IRS schema version
2024v5.2
Source object
202501779349300810

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