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← NECROTIZING ENTEROCOLITIS SOCIETY

Form 990 for tax year 2023

Filed by NECROTIZING ENTEROCOLITIS SOCIETY.

Totals

Total revenue
$351,309
Total expenses
$399,939
Contributions and grants received
$309,005
Grants paid
$21,050
Program service revenue
$0
Investment income
$34,417
Other revenue
$7,887
Total assets, end of year
$955,432
Total liabilities, end of year
$18,002
Net assets or fund balances, end of year
$937,430
Program services expenses (Part IX)
$287,132
Management and general expenses
$56,805
Fundraising expenses
$56,002
Program service expenses (Part III)
$287,132

Program services were 71.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $1,648

  • 1f · All other contributions, gifts and grants

    $307,357

  • 1g · Noncash contributions included above

    $16,445

  • 3 · Investment income

    total $34,417 · excluded $34,417

  • 8a · Fundraising events: contributions included on line 1c

    $1,648

  • 11a · Other revenue: Other

    total $7,887 · related or exempt $7,887

  • 11e · Other revenue, total

    $7,887

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $21,050 · program services $21,050

  • 5 · Compensation of officers, directors and key employees

    total $56,500 · program services $43,510 · management and general $3,593 · fundraising $9,397

  • 7 · Other salaries and wages

    total $152,585 · program services $117,502 · management and general $9,704 · fundraising $25,379

  • 10 · Payroll taxes

    total $19,516 · program services $15,029 · management and general $1,241 · fundraising $3,246

  • 11c · Fees: accounting

    total $9,658 · management and general $9,658

  • 11g · Fees: other

    total $18,042 · program services $10,750 · fundraising $7,292

  • 12 · Advertising and promotion

    total $7,009 · program services $5,436 · management and general $1,489 · fundraising $84

  • 13 · Office expenses

    total $39,677 · program services $3,514 · management and general $28,390 · fundraising $7,773

  • 17 · Travel

    total $12,252 · program services $12,252

  • 19 · Conferences, conventions and meetings

    total $60,920 · program services $58,089 · fundraising $2,831

  • 23 · Insurance

    total $2,730 · management and general $2,730

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $975,702 · end of year $946,695

  • 4 · Accounts receivable

    beginning of year $29,000 · end of year $8,737

  • 17 · Accounts payable and accrued expenses

    beginning of year $18,642 · end of year $18,002

  • 27 · Net assets without donor restrictions

    beginning of year $986,060 · end of year $928,693

  • 28 · Net assets with donor restrictions

    end of year $8,737

Mission and programs · 2023

Mission

The NEC Society is a Clinician-Family collaborative organization specifically focused on the understanding, prevention and treatment of necrotizing enterocolitis.

  • In 2023, the NEC Society reached more patient-families affected by necrotizing enterocolitis (NEC) than ever before. We also hosted North Americas only conference on NEC, which brought together more than 200 participants from 9 countires and 35 US states. In partnership with our Scientific Advisory Council and Board of Directors, we published more than 200 research articles on NEC. We also released a storybook for bereaved families, titled Forever Our Little One. Our communitys strength inspires us to work tirelessly toward a world without the devastation of NEC. We invite you to learn more here: https://necsociety.org/wp-content/uploads/2023/12/NEC-Society-Case-Statement-2024.pdf

    Expenses $136,644 · Grants $20,750

  • The NEC Symposium is the only conference in North America focused on necrotizing enterocolitis and the only NEC meeting in the world that unities the patient-family and clinician-scientist community. The NEC Symposium, hosted in partnership with Cincinnati Childrens Hospital, presented 20 educational sessions to more than 200 participants from 9 countries and 35 US states. The conference aimed to transform our newly established NEC Research Priorities into actionable research projects. The collaborations, research, and advocacy stemming from the 2023 NEC Symposium will reverberate in the NICU community for years. We invite you to learn more here: https://necsociety.org/2023-nec-symposium/

    Expenses $93,542

  • The NEC Society provided educational resourcers of empowerment and comfort, including storybooks, to more than 500 families with a child recently diagnosed with NEC or who recently lost their child to NEC. The NEC Biorepository enrolled more than 300 infants, bringing us closer to understanding how and why this disease occurs so we can learn how to prevent the disease. The NEC Society also presented at and participated in the Pediatric Academic Socieities Meeting, the American Academy of Pediatrics Meeting, and conferneces around North America througout the year to advance the science of NEC and urgency of our work. We also continued to expand our patient-family and clinician-scientist communities through the NEC Research Incubator.

    Expenses $56,946 · Grants $300

As filed on the 2023 return.

Listed in Part VII

  • Jennifer Canvasser

    Executive Director

    Total calculated
    $56,319
    From this org
    $56,319
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • Kari Gregerson

    Director

    Total calculated
    $0
    Hours/week
    1
  • Jenny Quinn

    Director

    Total calculated
    $0
    Hours/week
    1
  • Noelle Sechrest

    Director

    Total calculated
    $0
    Hours/week
    1
  • Stephanie Ruidiaz

    Director

    Total calculated
    $0
    Hours/week
    1
  • Nicola Juri

    Director

    Total calculated
    $0
    Hours/week
    1
  • Simone Rosito

    Director

    Total calculated
    $0
    Hours/week
    1
  • Martin Blakely

    Director

    Total calculated
    $0
    Hours/week
    1
  • Samir Gadepalli

    Director

    Total calculated
    $0
    Hours/week
    1
  • Adam Masin

    Vice-Chair

    Total calculated
    $0
    Hours/week
    1
  • Rebecca Meuninck

    Chair

    Total calculated
    $0
    Hours/week
    1
  • Lindsay Pollak

    Treasurer

    Total calculated
    $0
    Hours/week
    1
  • Jolene Jacob

    Secretary

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
3 July 2024
IRS schema version
2023v5.1
Source object
202411909349300721

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