Form 990 for tax year 2024

Totals

Total revenue

$26,460,643

Total expenses

$17,420,933

Contributions and grants received

$23,443,834

Grants paid

$96,869

Program service revenue

$1,042,274

Investment income

$2,384,189

Other revenue

-$409,654

Total assets, end of year

$93,160,819

Total liabilities, end of year

$3,491,310

Net assets or fund balances, end of year

$89,669,509

Program services expenses (Part IX)

$13,167,799

Management and general expenses

$2,094,413

Fundraising expenses

$2,158,721

Program service expenses (Part III)

$13,167,799

Program services were 75.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2024

• HOUSING THE CHILDREN'S INN AT NIH WAS FOUNDED 35 YEARS AGO TO PROVIDE A COMFORTABLE AND NURTURING "PLACE LIKE HOME" AT NO COST TO FAMILIES WITH CHILDREN PARTICIPATING IN CLINICAL RESEARCH STUDIES FOR THE TREATMENT OF RARE AND SEVERE DISEASES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). TODAY, THE INN SERVES CHILDREN, TEENS AND YOUNG ADULTS UP TO 30 YEARS OLD, AND THEIR FAMILIES, ENSURING ACCESS TO POTENTIALLY LIFESAVING RESEARCH AND RELATED CLINICAL CARE AT THE NIH CLINICAL CENTER. FOR MANY FAMILIES, THE COSTS OF LODGING IN THE WASHINGTON, D.C. METRO AREA WOULD BE A BARRIER TO PARTICIPATING IN CLINICAL RESEARCH WITHOUT THE INN'S FREE HOUSING. NIH SCIENTISTS WORK WITH YOUNG RESEARCH PARTICIPANTS TO PIONEER MEDICAL INNOVATIONS THAT IMPROVE THE LIVES AND SURVIVAL RATES OF YOUNG PEOPLE WORLDWIDE. IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH.THE CHILDREN'S INN FEATURES ACCOMMODATIONS FOR 60 FAMILIES. WHILE MOST FAMILIES SPEND BETWEEN 1-5 NIGHTS AT THE INN PER VISIT, MANY STAY FOR WEEKS, MONTHS OR YEARS TO RECEIVE TREATMENTS SUCH AS GENE THERAPY, IMMUNE THERAPY OR BONE MARROW TRANSPLANTS THAT REQUIRE LENGTHY PREPARATION AND RECUPERATION TIMES. IN AN AVERAGE YEAR, MORE THAN 1,500 FAMILIES WILL STAY AT THE INN. FAMILIES HAVE COME FROM EVERY US STATE AND 106 FOREIGN COUNTRIES.AS A "PLACE LIKE HOME," THE INN MAKES IT POSSIBLE FOR FAMILIES TO ENGAGE IN TYPICAL EVERYDAY ACTIVITIES EASILY AND COMFORTABLYMEAL PREPARATION, HOMEWORK, LAUNDRY, EXERCISE, AND TIME TOGETHER AS A FAMILYWHILE ALSO PROVIDING AMPLE SPACE TO PLAY, RELAX, AND PARTICIPATE IN FUN AND EDUCATIONAL ACTIVITIES. FAMILIES HAVE ACCESS TO THREE FULLY EQUIPPED KITCHENS WITH INDIVIDUAL REFRIGERATOR/FREEZERS AND CABINET SPACE, SHARED LIVING AND DINING ROOMS AND LAUNDRY ROOMS. COMMUNITY PANTRIES ARE STOCKED WITH FREE, NON-PERISHABLE FOODS FOR SIMPLE MEALS, AND TRANSPORTATION TO GROCERY STORES IS PROVIDED THREE TIMES A WEEK. IN ADDITION, EVERY FAMILY IS ELIGIBLE FOR GROCERY GIFT CARDS. THE CHILDREN'S INN HAS MULTIPLE INDOOR PLAY SPACES, A COMPUTER ROOM, AN EDUCATION CENTER, AND AN ART ROOM TO PLAY, LEARN, MAKE FRIENDS AND PARTICIPATE IN THE INN'S WIDE ARRAY OF RECREATIONAL, WELLNESS, AND EDUCATIONAL ACTIVITIES.THE INN'S EXERCISE ROOM PROVIDES THE CHANCE TO WORK OUT ALONE OR AS PART OF INSTRUCTOR-LED GROUP EXERCISE CLASSES. A REFLECTION SPACE PROVIDES FAMILIES A QUIET ROOM TO PRAY OR ENGAGE IN SPIRITUAL ACTIVITIES. WHEN THE WEATHER ALLOWS, THE INN'S LARGE PLAYGROUND IS THE PERFECT PLACE FOR CHILDREN TO MEET OTHER CHILDREN, WHILE THE SPORTS COURT PROVIDES THE OPPORTUNITY TO PRACTICE A VARIETY OF SPORTS. COMMUNITY BIKES, TRIKES, SCOOTERS AND OTHER EQUIPMENT ARE AVAILABLE, AND WALKING PATHS ALLOW FAMILIES TO STROLL. THE INN'S WELCOMING PHYSICAL SPACE AND ITS MANY FAMILY-CENTERED ACTIVITIES MAKE IT EASY FOR FAMILIES TO GET TO KNOW ONE ANOTHER AND FORM DEEP CONNECTIONS THAT LEAD TO LASTING, SUPPORTIVE FRIENDSHIPS REGARDLESS OF AGE OR BACKGROUND. ARRIVING AT THE INN MAY BE THE FIRST TIME A CHILD OR TEEN MAY MEET SOMEONE WITH A SIMILAR RARE DISEASE. IN JUNE 2018, THE INN LAUNCHED ITS MULTIYEAR STRATEGIC PLAN, #INN2025 WHICH IS BUILT ON 3 BOLD PRIORITIES: TO COMPREHENSIVELY TRANSFORM OUR BUILDING, ACCELERATE CUTTING-EDGE PEDIATRIC RESEARCH, AND ADVANCE SUSTAINABILITY & WELLBEING.THE PLAN, LED TO A REIMAGINED PLACE LIKE HOME THAT WILL ACCELERATE THE INN'S IMPACT ON DISCOVERY AND CARE AND BRING NEW CAPABILITIES TO SUPPORT YOUNG PEOPLE AND NIH RESEARCHERS EVERY STEP ALONG THE JOURNEY FROM HOPE TO CURES. THE MASTER PLAN ENVISIONS THE CONSTRUCTION OF A NEW BUILDING, WHICH WILL MAINTAIN A CENTRAL LOCATION ON THE CURRENT SITE OF THE INN AND INCLUDE A TWO-STORY BEACON OF HOPE AT THE ENTRANCE. IN ADDITION TO CREATING 25% MORE SPACE, THE EXISTING BUILDING WILL BE COMPLETELY REFRESHED AND WHEN COMPLETE WILL INCREASE OUR CAPABILITIES TO CARE FOR MORE FAMILIES.CONSTRUCTION BEGAN IN 2025 WITH A CURRENT COST ESTIMATE OF $56,700,000. IN 2025, THE INN'S CAPITAL CAMPAIGN RAISED $17,600,000.DURING THE RENOVATION AND EXPANSION PHASES OF THE PROJECT, THE INN HAS CONTINUED TO FOCUS ON THE COMFORT AND SAFETY OF THE FAMILIES CURRENTLY VISITING. DURING FY25, THE INNS CAPACITY WAS REDUCED TO 23 ROOMS ON SITE AND 11 APARTMENTS IN THE COMMUNITY. DURING FY25:821 PEDIATRIC, TEEN AND YOUNG ADULT PATIENTS AND THEIR FAMILIES VISITED THE INN AND STAYED FOR 14,170 NIGHTS. DUE TO THE COVID-19 PANDEMIC, THIS IS LOWER THAN OUR TYPICAL YEAR WHEN WE SERVE MORE THAN 1,500 FAMILIES. - HOUSING COSTS TO SUPPORT THESE FAMILIES TOTALED $10,163,333. - ADDITIONAL IN-KIND SUPPORT THROUGH PARTNERSHIPS WITH THE NIH, CORPORATE SPONSORS, AND INDIVIDUALS TOTALED $2,711,713. - THE INN WAS SUPPORTED BY A DEDICATED GROUP OF VOLUNTEERS WHO GAVE 6,699 HOURS OF SERVICE WITH AN ESTIMATED VALUE OF $238,030. - THE TOTAL COSTS OF HOUSING SERVICES WAS $13,113,076.ON MARCH 23, 2020, TO REDUCE THE RISK OF TRANSMISSION OF COVID-19 AND ENHANCE STAFF SAFETY, THE NIH SHIFTED TO MISSION-CRITICAL FUNCTIONS. IN 2025 THE INN CONTINUED TO REMOVE OR REDUCE ITS COVID-19 PRECAUTIONS WITH GUIDANCE FROM THE NIH HOSPITAL EPIDEMIOLOGY SERVICES TEAM. CHANGES INCLUDED:- OPTIONAL MASK USAGE AND CONTINUED HEALTH SCREENINGS.- FULL RETURN TO ALLOWING ONSITE VOLUNTEERS AND VOLUNTEER GROUPS AND VISITORS. - A RETURN TO REGULAR WEEKLY GROCERY STORE TRIPS. - NO RESTRICTIONS ON FAMILY USAGE OF COMMUNAL KITCHENS AND SPACES.- FURTHER RE-INSTATEMENT OF BOTH INDOOR AND OUTDOOR ACTIVITIES. - THE INN CONTINUES TO WORK CLOSELY WITH NIH EPIDEMIOLOGISTS TO ADJUST PROCEDURES AS NEEDED.

  Expenses $10,229,071 · Revenue $1,042,274

• RESIDENT SERVICES - THE CHILDREN'S INN AT NIH WAS FOUNDED 35 YEARS AGO TO PROVIDE A COMFORTABLE AND NURTURING "PLACE LIKE HOME" AT NO COST TO FAMILIES WHOSE CHILDREN PARTICIPATE IN CLINICAL RESEARCH STUDIES FOR THE TREATMENT OF RARE AND SEVERE DISEASES AT THE NATIONAL INSTITUTES OF HEALTH (NIH). TODAY, THE INN SERVES CHILDREN, TEENS AND YOUNG ADULTS UP TO 30 YEARS OLD, AS WELL AS THEIR FAMILIES. NIH SCIENTISTS WORK WITH YOUNG RESEARCH PARTICIPANTS TO PIONEER MEDICAL INNOVATIONS THAT IMPROVE THE LIVES AND SURVIVAL RATES OF YOUNG PEOPLE WORLDWIDE. IN ADDITION TO PROVIDING FREE LODGING FOR THE ENTIRE FAMILY, OUR GOALS ARE TO MAKE CHILDHOOD POSSIBLE, RELIEVE THE BURDEN OF ILLNESS ON FAMILIES AND HELP ADVANCE NIH CLINICAL RESEARCH. THROUGH THE FAMILY SUPPORT PROGRAM, THE INN AIMS TO MEET THE VARIOUS NEEDS OF FAMILIES WHO ARE STAYING WITH US BY DEVELOPING AND IMPLEMENTING THERAPEUTIC, RECREATIONAL AND EDUCATIONAL PROGRAMS. KEEPING FAMILIES TOGETHER IS CRUCIAL FOR THEIR HEALTH AND WELL-BEING, ESPECIALLY WHEN FACED WITH A CHILD'S RARE AND SERIOUS ILLNESS. THESE ACTIVITIES NOT ONLY PROVIDE ENTERTAINMENT BUT ALSO HELP FOSTER LASTING RELATIONSHIPS WITH OTHER FAMILIES, CREATING THE INN'S UNIQUE NURTURING AND SUPPORTIVE COMMUNITY. THE INN'S ENVIRONMENT SUPPORTS FAMILY LIFE AND MEETS EVERYDAY NEEDS SUCH AS COOKING A CHILD'S FAVORITE MEAL, SPENDING QUALITY TIME TOGETHER OUTSIDE THE HOSPITAL, AND PARTICIPATING IN RECREATIONAL ACTIVITIES TOGETHER. ALL ACTIVITIES ARE DESIGNED TO BE INCLUSIVE, SO THAT EACH RESIDENT FEELS A SENSE OF BELONGING, SAFETY, CARE AND, MOST IMPORTANTLY, HAS FUN. WHETHER IT BE THROUGH A RELAXING YOGA SESSION, MOVIE NIGHT ON THE PLAYGROUND, OR A SAILING TRIP AROUND CHESAPEAKE BAY, OUR WIDE RANGE OF ACTIVITIES OFFER FAMILIES A CHANCE TO SIMPLY ENJOY THEMSELVES.THE INN'S EDUCATIONAL PROGRAMS SUPPORT THE PATIENT AND THEIR SIBLINGS WITH SCHOOLWORK AND GROUP ACTIVITIES. CHILDREN CAN BE MATCHED WITH INDIVIDUAL TUTORS BASED ON THEIR EDUCATIONAL NEEDS AND LANGUAGE PREFERENCES. EDUCATIONAL ACTIVITIES INCLUDE LEARNING ABOUT TECHNOLOGY OR MEETING CHILDREN'S BOOK AUTHORS WHO LEAD LIVELY DISCUSSIONS ABOUT THE FUN OF READING AND WRITING STORIES. SPECIAL ACTIVITIES FOR PATIENTS AND THEIR SIBLINGS INCLUDE:- CAMP INNCREDIBLE: ALLOWS CHILDREN TO PARTICIPATE IN TYPICAL CAMP ACTIVITIES DURING THE SPRING, SUMMER AND FALL MONTHS. - SIBLING DAY: PROVIDES THE CHANCE FOR SIBLINGS TO LEARN ABOUT THE MEDICAL PROCEDURES THEIR SICK SIBLING MAY UNDERGO AND BE RECOGNIZED AS "SUPER SIBS" FOR THEIR MANY IMPORTANT CONTRIBUTIONS TO THEIR FAMILIES.THE CHILDREN'S INN PROVIDES SUPPORT AND ACTIVITIES FOR OUR TEEN AND YOUNG ADULT RESIDENTS. THE TEEN AND YOUNG ADULT LOUNGE IS DESIGNED FOR AGES 13 AND OLDER TO HAVE THEIR OWN SPACE TO PLAY BOARD AND VIDEO GAMES, READ, STUDY, PARTICIPATE IN ORGANIZED GROUP DISCUSSIONS OR GATHER BEFORE OUTINGS TO LOCAL RESTAURANTS, LIVE CONCERTS AND SHOWS. THE CHANCE TO GET TO KNOW, SOCIALIZE AND MAKE FRIENDS WITH PEERS OF THE SAME AGE FACED WITH CHRONIC OR LIFE-THREATENING DISEASES IS WELCOMED BY OUR YOUNG PEOPLE WHO TYPICALLY HAVE NEVER HAD THE CHANCE TO MEET OTHERS FACED WITH SIMILAR, RARE HEALTH CHALLENGES. EACH YEAR, THE INN PROVIDES TWO DAYS OF SPECIAL ACTIVITIES FOR OUR TEEN RESIDENTS PARTICIPATING IN THE "TEEN RETREAT."THE CHILDREN'S INN IS EXPANDING PROGRAMS AND ACTIVITIES FOR OUR YOUNG ADULTS WHO OFTEN HAVE NOT HAD THE CHANCE TO DEVELOP INDEPENDENT LIVING SKILLS TO THE SAME DEGREE AS THEIR HEALTHY PEERS.. IN 2026, THE INN PLANS TO OPEN A SECOND BUILDING LOCATED DIRECTLY ACROSS THE STREET, WHICH WILL PROVIDE HOUSING DESIGNED FOR OUR YOUNG ADULTS, AGES 18-30. CAREGIVER GATHERINGS LED BY THE CLINICAL CENTER'S NON-DENOMINATIONAL CHAPLAIN PROVIDE PARENTS, GRANDPARENTS AND OTHERS WITH THE CHANCE TO ENGAGE IN DISCUSSIONS, SING SONGS TOGETHER AND EXPLORE THEIR SPIRITUALITY. MANY CAREGIVERS REPORT THEY FIND SOLACE AND INSPIRATION IN CONVERSATIONS WITH THE CHAPLAIN AND OTHER FAMILIES. HAVING THE OPPORTUNITY TO EXPRESS AND DISCUSS THE DIFFICULTIES OF THEIR SITUATION STRENGTHENS FAMILIES' BONDS AND THE INN'S NURTURING COMMUNITY. EXERCISE IS ANOTHER MEANINGFUL WAY FOR CAREGIVERS TO PRACTICE SELF-CARE. THE INN'S EXERCISE ROOM PROVIDES WEIGHTS AND CARDIAC EQUIPMENT FOR AN EASY WAY TO STAY IN SHAPE AND DE-STRESS. THE INN OFFERS FREE FITNESS CLASSES TAUGHT BY CERTIFIED TRAINERS THREE TIMES A WEEK. THE INN'S STAFF PROVIDES A WIDE RANGE OF RECREATIONAL FIELD TRIPS TO TOURIST ATTRACTIONS, LOCAL MUSEUMS, ART STUDIOS, SPORTING EVENTS, RESTAURANTS, CONCERTS, MUSICALS AND OTHER FAMILY-FRIENDLY PERFORMANCES. ON-SITE ACTIVITIES FOR THE ENTIRE FAMILY INCLUDE: - CHRISTMAS IN JULY WHICH IS A SPECIAL SUMMERTIME VISIT FROM SANTA WHO BRINGS GIFTS AND SURPRISES FOR THE WHOLE FAMILY. - HOLIDAY DECORATIONS AND VISITS FROM SANTA AND THE ELVES, TRANSFORM THE INN INTO A MAGICAL PLACE DURING DECEMBER. EVERY CHILD AND FAMILY MEMBER CAN CREATE A WISH LIST, AND SANTA AND HIS ELVES ENSURE WISHES ARE FILLED TO THE BEST EXTENT POSSIBLE.- SUMMER CONCERT SERIES FEATURES LOCAL SINGERS AND BANDS WHO PROVIDE FUN AND ENTERTAINMENT FOR EVERY FAMILY MEMBER. MEALS SERVED BY VOLUNTEERS OR INN STAFF PROVIDE FAMILIES THE OPPORTUNITY TO REST AND RELAX WITH THEIR CHILD AFTER LONG DAYS OF TRAVEL OR MEDICAL APPOINTMENTS WITHOUT THE WORRY OF COOKING. SHARED MEALS BRING FAMILIES TOGETHER WHERE THEY CAN MEET ONE ANOTHER AND BOND. TO SUPPORT FAMILIES, THE INN SERVES BREAKFAST EACH DAY, WHILE CORPORATE AND COMMUNITY VOLUNTEERS PROVIDE DINNERS UP TO 4 NIGHTS OF THE WEEK, AS WELL AS SUNDAY BRUNCH. THE INN ALSO SERVES LUNCH TO SUPPORT FAMILIES FURTHER . WE ALSO INCLUDE MEAL OPTIONS FOR VARIOUS DIETARY RESTRICTIONS AND MEET STRICT FOOD STANDARDS FOR OUR TRANSPLANT PATIENTS. THE EXPANDED OPTIONS INCLUDE GLUTEN-FREE, FAT-FREE AND DAIRY-FREE MEALS, FRESH FRUIT AND VEGETABLES, AND VEGETARIAN OPTIONS. ALL SERVICES ARE PROVIDED FREE OF CHARGE. FOR FAMILIES WISHING TO COOK, OUR TEAM ORGANIZES TRIPS TO THE GROCERY STORE ONCE A WEEK AND PROVIDES GROCERY GIFT CARDS TO EACH FAMILY WHO PARTICIPATES. ADDITIONALLY, NON-PERISHABLE ITEMS FOR QUICK MEALS ARE AVAILABLE IN OUR COMMUNITY PANTRIES. OUR KITCHENS HAVE INDIVIDUAL REFRIGERATORS/ FREEZERS AND PANTRY SPACE FOR EASY, HYGIENIC FOOD STORAGE.TO ASSIST NON-ENGLISH-SPEAKING FAMILIES, TUTORING IS AVAILABLE FREE OF CHARGE. MULTILINGUAL STAFF AND PHONE-ACCESSIBLE TRANSLATION SERVICES ARE ALSO AVAILABLE TO HELP FAMILIES COMMUNICATE. A GROUP OF DEDICATED VOLUNTEERS SUPPORTS THE INN'S STAFF BY MANAGING THE WELCOME DESK, CHECKING FAMILIES IN AND OUT OF THE INN, STOCKING THE KITCHENS, ORGANIZING IN-KIND DONATIONS AND OFFERING INFORMATION TO FAMILIES ABOUT LOCAL CULTURE AND TOURIST ATTRACTIONS, PUBLIC TRANSPORTATION AND MORE. IN FY2025:- 781 RECREATIONAL, EDUCATIONAL AND THERAPEUTIC ACTIVITIES FOR CHILDREN, TEENS, YOUNG ADULTS AND THEIR CAREGIVERS WERE OFFERED.- RESIDENT SUPPORT SERVICES COSTS TOTALED: $2,920,584.- ADDITIONAL IN-KIND SUPPORT TOTALED: $591,226.- VOLUNTEERS PROVIDED 1,890 HOURS OF SERVICE, VALUED AT: $37,139. - TOTAL MANAGED EFFORT RESIDENT SERVICES AND FAMILY PROGRAMS WAS: $3,548,949.

  Expenses $2,938,728 · Grants $96,869

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Provenance

Return type

form_990

Tax year

2024

Filed

9 October 2025

IRS schema version

2024v5.2

Source object

202533179349310758

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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