Totals
- Total revenue
- $1,568,293
- Total expenses
- $1,674,994
- Contributions and grants received
- $887,008
- Grants paid
- $0
- Program service revenue
- $681,285
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $754,715
- Total liabilities, end of year
- $482,737
- Net assets or fund balances, end of year
- $271,978
- Program services expenses (Part IX)
- $1,622,778
- Management and general expenses
- $0
- Fundraising expenses
- $52,216
- Program service expenses (Part III)
- $1,622,778
Program services were 96.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1e · Government grants (contributions)
$343,370
-
1f · All other contributions, gifts and grants
$543,638
-
2a · Program service revenue: CONTRACT REVENUE
total $238,283 · related or exempt $238,283
-
2b · Program service revenue: BIOBANK REVENUES
total $155,493 · related or exempt $155,493
-
2c · Program service revenue: CONSULTING
total $148,939 · related or exempt $148,939
-
2d · Program service revenue: INCUBATOR REVENUE
total $105,214 · related or exempt $105,214
-
2e · Program service revenue: SPECIAL EVENTS
total $31,556 · related or exempt $31,556
-
2f · All other program service revenue
total $1,800 · related or exempt $1,800
Functional expenses
Part IX, the statement of functional expenses.
-
7 · Other salaries and wages
total $998,320 · program services $792,319 · management and general $173,164 · fundraising $32,837
-
9 · Other employee benefits
total $147,035 · program services $115,641 · management and general $26,390 · fundraising $5,004
-
11g · Fees: other
total $38,590 · program services $12,911 · management and general $25,679
-
13 · Office expenses
total $27,270 · program services $20,617 · management and general $6,653
-
14 · Information technology
total $48,059 · program services $40,090 · management and general $7,969
-
16 · Occupancy
total $663 · management and general $663
-
19 · Conferences, conventions and meetings
total $51,809 · program services $51,809
-
22 · Depreciation, depletion and amortization
total $86,548 · management and general $86,548
-
23 · Insurance
total $7,511 · program services $13 · management and general $7,498
-
24a · Other expenses: BIOBANK EXPENSE
total $64,298 · program services $64,298
-
24b · Other expenses: INCUBATOR BENEFITS
total $48,318 · program services $48,318
-
24c · Other expenses: SUBCONTRACTOR
total $42,000 · program services $42,000
-
24d · Other expenses: CONSUMER STIPENDS
total $32,883 · program services $32,883
-
24e · All other expenses
total $81,690 · program services $401,879 · management and general -$334,564 · fundraising $14,375
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $380,814 · end of year $406,138
-
4 · Accounts receivable
beginning of year $104,969 · end of year $45,439
-
9 · Prepaid expenses and deferred charges
beginning of year $7,795 · end of year $1,965
-
10a · Land, buildings and equipment: cost or other basis
$1,154,163
-
10b · Land, buildings and equipment: accumulated depreciation
$854,088
-
10c · Land, buildings and equipment, net
beginning of year $362,980 · end of year $300,075
-
15 · Other assets
beginning of year $2,113 · end of year $1,098
-
17 · Accounts payable and accrued expenses
beginning of year $467,492 · end of year $468,154
-
19 · Deferred revenue
beginning of year $12,500 · end of year $14,583
-
27 · Net assets without donor restrictions
beginning of year $378,679 · end of year $271,978
Mission and programs · 2023
Mission
GENETIC ALLIANCE ENGAGES INDIVIDUALS, FAMILIES, AND COMMUNITIES TO TRANSFORM HEALTH.
-
GENETIC ALLIANCE PROVIDES INTERACTIVE TOOLS TO CREATE, MANAGE AND DISSEMINATE INFORMATION TO EDUCATE INDIVIDUALS, FAMILIES AND COMMUNITIES. THE GOAL OF THIS WORK IS EMPOWERING INDIVIDUALS THROUGH GENETICS AND GENOMICS TO TAKE CHARGE OF THEIR HEALTH.
Expenses $1,220,494 · Revenue $1,036,895
-
TRANSLATIONAL RESEARCH ENDEAVORS OF GENETIC ALLIANCE INCLUDE THE GENETIC ALLIANCE REGISTRY AND BIOBANK, A CROSS DISEASE CLINICAL DATA AND BIOLOGICAL SAMPLE REPOSITORY. THIS AREA ALSO INCLUDES PROGRAMS TO EXAMINE THE READINESS OF GENOMIC APPLICATIONS' INTEGRATION INTO HEALTH.
-
GENETIC ALLIANCE ENDEAVORS TO DIAGNOSE THE WORLD'S UNDER-RESOURCED UNDIAGNOSED AND TO PROVIDE THEM WITH THE SUPPORT THEY NEED. GENETIC ALLIANCE PROVIDES LABS WITH INSTRUMENTS AND REAGENTS. INDIVIDUALS CONTROL ACCESS TO THEIR DATA.
Expenses $402,284 · Revenue $531,397
As filed on the 2023 return.
Listed in Part VII
-
Kemp BattleKEMP BATTLE
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
Julia OrtegaJULIA ORTEGA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Kelly Edwards PhDKELLY EDWARDS PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Sharon F TerrySHARON F TERRY
PRESIDENT/CEO
- Total calculated
- $250,000
- From this org
- $49,167
- From related orgs
- $0
- Other
- $200,833
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $49,167
- Bonus
- $0
- Other
- $0
- Deferred
- $200,833
- Nontaxable benefits
- $0
- Filer's total
- $250,000
-
Usama MalikUSAMA MALIK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Ryan TaftRYAN TAFT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 2 · Substantiation required before reimbursing expenses
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 21 July 2025
- IRS schema version
- 2023v6.0
- Source object
- 202522039349301207
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