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Nonprofiteer
← EPILEPSY FOUNDATION OF MINNESOTA INC

Form 990 for tax year 2022

Filed by EPILEPSY FOUNDATION OF MINNESOTA INC.

Totals

Total revenue
$7,765,703
Total expenses
$2,968,182
Contributions and grants received
$9,815,876
Grants paid
$28,660
Program service revenue
$46,973
Investment income
$130,930
Other revenue
-$2,228,076
Total assets, end of year
$9,009,057
Total liabilities, end of year
$580,521
Net assets or fund balances, end of year
$8,428,536
Program services expenses (Part IX)
$1,899,305
Management and general expenses
$467,558
Fundraising expenses
$601,319
Program service expenses (Part III)
$1,899,305

Program services were 64.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $345,018

  • 1e · Government grants (contributions)

    $1,120,439

  • 1f · All other contributions, gifts and grants

    $8,350,419

  • 1g · Noncash contributions included above

    $2,611,017

  • 2a · Program service revenue: PROGRAM REVENUE

    total $46,973 · related or exempt $46,973

  • 3 · Investment income

    total $104,999 · excluded $104,999

  • 7a · Gross sales of assets other than inventory

    securities $1,077,896

  • 7b · Less cost or other basis and sales expenses

    securities $1,051,965

  • 7c · Gain or loss

    securities $25,931

  • 7d · Net gain or loss

    total $25,931 · excluded $25,931

  • 8a · Fundraising events: gross income

    $41,250

  • 8a · Fundraising events: contributions included on line 1c

    $345,018

  • 8b · Fundraising events: direct expenses

    $138,454

  • 8c · Net income from fundraising events

    total -$97,204 · excluded -$97,204

  • 10a · Gross sales of inventory

    $2,581,270

  • 10b · Cost of goods sold

    $4,728,880

  • 10c · Net income from sales of inventory

    total -$2,147,610 · excluded -$2,147,610

  • 11a · Other revenue: MISC INCOME

    total $16,738 · related or exempt $16,738

  • 11e · Other revenue, total

    $16,738

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $28,660 · program services $28,660

  • 5 · Compensation of officers, directors and key employees

    total $497,686 · program services $350,691 · management and general $137,914 · fundraising $9,081

  • 7 · Other salaries and wages

    total $1,148,792 · program services $828,147 · management and general $54,616 · fundraising $266,029

  • 8 · Pension plan contributions

    total $44,793 · program services $35,552 · management and general $1,904 · fundraising $7,337

  • 9 · Other employee benefits

    total $108,854 · program services $86,396 · management and general $4,627 · fundraising $17,831

  • 10 · Payroll taxes

    total $105,534 · program services $83,555 · management and general $1,944 · fundraising $20,035

  • 11c · Fees: accounting

    total $29,525 · program services $9,272 · management and general $10,256 · fundraising $9,997

  • 11f · Fees: investment management

    total $23,523 · management and general $23,523

  • 11g · Fees: other

    total $284,313 · program services $89,283 · management and general $98,764 · fundraising $96,266

  • 12 · Advertising and promotion

    total $64,194 · program services $26,529 · management and general $1,124 · fundraising $36,541

  • 13 · Office expenses

    total $137,703 · program services $60,997 · management and general $8,761 · fundraising $67,945

  • 14 · Information technology

    total $109,252 · program services $50,853 · management and general $33,733 · fundraising $24,666

  • 16 · Occupancy

    total $55,328 · program services $39,859 · management and general $5,617 · fundraising $9,852

  • 17 · Travel

    total $47,539 · program services $33,971 · management and general $3,044 · fundraising $10,524

  • 19 · Conferences, conventions and meetings

    total $44,423 · program services $33,144 · management and general $10,341 · fundraising $938

  • 20 · Interest

    total $642 · management and general $642

  • 22 · Depreciation, depletion and amortization

    total $48,430 · program services $12,780 · management and general $35,650

  • 23 · Insurance

    total $27,114 · program services $22,284 · management and general $4,830

  • 24a · Other expenses: FEES & DUES

    total $136,857 · program services $99,123 · management and general $15,898 · fundraising $21,836

  • 24b · Other expenses: STAFF DEVELOPMENT

    total $18,653 · program services $4,881 · management and general $13,459 · fundraising $313

  • 24c · Other expenses: HEALTH AND WELLNESS

    total $4,553 · program services $2,578 · management and general $847 · fundraising $1,128

  • 24d · Other expenses: UNCOLLECTIBLE PLEDGES

    total $1,000 · fundraising $1,000

  • 24e · All other expenses

    total $814 · program services $750 · management and general $64

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,262,472 · end of year $676,604

  • 3 · Pledges and grants receivable

    beginning of year $44,000 · end of year $20,000

  • 4 · Accounts receivable

    beginning of year $157,355 · end of year $153,526

  • 9 · Prepaid expenses and deferred charges

    beginning of year $86,288 · end of year $82,933

  • 10a · Land, buildings and equipment: cost or other basis

    $334,790

  • 10b · Land, buildings and equipment: accumulated depreciation

    $296,965

  • 10c · Land, buildings and equipment, net

    beginning of year $52,618 · end of year $37,825

  • 11 · Investments: publicly traded securities

    beginning of year $3,102,230 · end of year $7,290,782

  • 15 · Other assets

    beginning of year $0 · end of year $747,387

  • 17 · Accounts payable and accrued expenses

    beginning of year $282,452 · end of year $327,283

  • 24 · Unsecured notes and loans payable

    beginning of year $422,115

  • 25 · Other liabilities

    beginning of year $0 · end of year $253,238

  • 27 · Net assets without donor restrictions

    beginning of year $3,932,704 · end of year $3,278,628

  • 28 · Net assets with donor restrictions

    beginning of year $67,692 · end of year $5,149,908

Mission and programs · 2022

Mission

THE EFMN ENVISIONS A WORLD WHERE PEOPLE WITH SEIZURES REALIZE THEIR FULL POTENTIAL. EFMN OFFERS PROGRAMS THAT SERVE PEOPLE AFFECTED BY EPILEPSY AND RAISES PUBLIC AWARENESS OF THE CONDITION.

Activities or mission (Part I)

THE EPILEPSY FOUNDATION OF MN LEADS THE FIGHT TO OVERCOME THE CHALLENGES OF LIVING WITH EPILEPSY & TO ACCELERATE THERAPIES TO STOP SEIZURES, FIND CURES AND SAVE LIVES.

  • CONNECT: EPILEPSY FOUNDATION OF MINNESOTA (EFMN) CONNECTS PEOPLE IMPACTED BY EPILEPSY TO EPILEPSY INFORMATION AND EACH OTHER THROUGH PROGRAMMING DESIGNED TO MEET THEIR UNIQUE NEEDS. PROGRAMS INCLUDE PEER-BASED SUPPORT GROUPS FOR PEOPLE WITH EPILEPSY, CAREGIVERS OF PEOPLE WITH EPILEPSY, TEENS WITH EPILEPSY, AND THOSE WHO HAVE LOST A LOVED ONE TO EPILEPSY. EFMN ALSO PROVIDES RECREATIONAL PROGRAMMING FOR CHILDREN AND YOUTH WITH EPILEPSY. IN 2022, EFMN HELPED 416 PARENTS, YOUTH, AND ADULTS IMPACTED BY EPILEPSY FIND COMMUNITY IF PEER CONNECT GROUPS.

    Expenses $1,263,430 · Grants $28,660 · Revenue $63,211

  • EDUCATE: EPILEPSY FOUNDATION OF MINNESOTA (EFMN) CREATES EPILEPSY SAFE AND SUPPORTIVE COMMUNITIES BY PROVIDING NO-COST SEIZURE RECOGNITION AND RESPONSE TRAINING TO SCHOOLS, CHILDCARE CENTERS, WORKPLACES, CARE FACILITIES, AND OTHER COMMUNITY ORGANIZATIONS. THESE TRAININGS EDUCATE PEOPLE ABOUT EPILEPSY AND TEACH THEM HOW TO KEEP OTHERS SAFE DURING A SEIZURE. IN 2022, EFMN TRAINED 14,107 INDIVIDUALS IN SEIZURE RECOGNITION AND RESPONSE.

    Expenses $328,288 · Revenue $500

  • EMPOWER: EPILEPSY FOUNDATION OF MINNESOTA (EFMN) PROVIDES DIRECT SUPPORT TO PEOPLE IMPACTED BY EPILEPSY, THROUGH OUR INFORMATION SERVICES PROGRAM. INDIVIDUALS CAN CALL, EMAIL, OR SUBMIT AN ONLINE FORM REQUESTING SUPPORT OR INFORMATION, INCLUDING HELP NAVIGATING EPILEPSY-RELATED BARRIERS TO EDUCATION, EMPLOYMENT, HEALTHCARE, AND DAILY LIFE. OUR TEAM PROVIDES CUSTOMIZED, COMPREHENSIVE SUPPORT AND FOLLOWS ALONG WITH EACH INDIVIDUAL, AS NEEDED, TO ENSURE THEIR NEEDS ARE MET. IN 2022, EFMN SUPPORTED 862 PEOPLE WITH EPILEPSY AND CAREGIVERS OF PEOPLE WITH EPILEPSY. EFMN ALSO PROVIDES MONTHLY INFORMATION WEBINARS, SHARING UP-TO-DATE INFORMATION ABOUT EPILEPSY, AVAILABLE THERAPIES, AND STRATEGIES FOR MANAGING LIFE WITH EPILEPSY.

    Expenses $307,587

As filed on the 2022 return.

Listed in Part VII

  • Paul Reineck

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Trisha Zeller

    PRESIDENT

    Total calculated
    $0
    Hours/week
    3
  • Anna Milz

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Erica Holzer

    SECRETARY

    Total calculated
    $0
    Hours/week
    2
  • Bill Atwell

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Paul Delaney

    TREASURER

    Total calculated
    $0
    Hours/week
    2
  • Mark Devaraj

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Rachel Dyrud

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Luke Falk

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Zack Frisk

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Barbara Jaquet-Kalinoski

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Ann Jones

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Angela Marino

    MEMBER AT LARGE (THRU 4/22)

    Total calculated
    $0
    Hours/week
    1
  • Stephanie Megal

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Katie O'Sullivan

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    3
  • Patricia Penovich MD

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    2
  • Chris Poshek

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Angela Garin

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Sharon Roberg-Perez

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Karen Silgen

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Brett Spark

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Jeff Sunberg

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Julia Valente MD

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Kristen Thoen

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    1
  • Glen Lloyd

    EXECUTIVE DIRECTOR

    Total calculated
    $181,625
    From this org
    $180,949
    From related orgs
    $0
    Other
    $676
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $180,949
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $676
    Filer's total
    $181,625
  • Anthony Sconza

    ASSOC EXEC DIR, OPS

    Total calculated
    $156,844
    From this org
    $156,112
    From related orgs
    $0
    Other
    $732
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,112
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $732
    Filer's total
    $156,844
  • Jenna Carter

    ASSOC EXEC DIR, MISSION &

    Total calculated
    $145,094
    From this org
    $144,362
    From related orgs
    $0
    Other
    $732
    Hours/week
    40
  • Angela Marino

    ASSOC EXEC DIR, ADVANCEMENT (5/22 - PRESENT)

    Total calculated
    $95,023
    From this org
    $85,870
    From related orgs
    $0
    Other
    $9,153
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
CERTAIN EMPLOYEES ARE ELIGIBLE FOR ANNUAL DISCRETIONARY BONUSES. THE AMOUNT AND PAYMENT OF THE AWARD IS MADE AT THE DISCRETION OF THE BOARD OF DIRECTORS.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2022
Filed
12 September 2023
IRS schema version
2022v5.0
Source object
202322729349301532

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