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← LHON COLLECTIVE

Form 990 for tax year 2024

Filed by LHON COLLECTIVE.

Totals

Total revenue
$219,421
Total expenses
$109,522
Contributions and grants received
$220,097
Grants paid
$106,445
Program service revenue
$0
Investment income
-$676
Other revenue
$0
Total assets, end of year
$117,149
Total liabilities, end of year
$0
Net assets or fund balances, end of year
$117,149
Program services expenses (Part IX)
$106,772
Management and general expenses
$2,750
Fundraising expenses
$0
Program service expenses (Part III)
$106,772

Program services were 97.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $2,921

  • 1f · All other contributions, gifts and grants

    $217,176

  • 1g · Noncash contributions included above

    $111,960

  • 3 · Investment income

    total $228 · unrelated business $228 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $100,000

  • 7b · Less cost or other basis and sales expenses

    securities $100,904

  • 7c · Gain or loss

    securities -$904

  • 7d · Net gain or loss

    total -$904 · related or exempt $0 · unrelated business -$904 · excluded $0

  • 8a · Fundraising events: contributions included on line 1c

    $2,921

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $106,445 · program services $106,445

  • 11c · Fees: accounting

    total $250 · program services $0 · management and general $250 · fundraising $0

  • 13 · Office expenses

    total $155 · program services $0 · management and general $155 · fundraising $0

  • 14 · Information technology

    total $1,815 · program services $0 · management and general $1,815 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $327 · program services $327 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $410 · program services $0 · management and general $410 · fundraising $0

  • 24a · Other expenses: BANK FEES

    total $20 · program services $0 · management and general $20 · fundraising $0

  • 24b · Other expenses: LICENSING AND PERMITS

    total $100 · program services $0 · management and general $100 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $6,225 · end of year $104,859

  • 12 · Investments: other securities

    end of year $12,290

  • 31 · Retained earnings, endowment or other funds

    beginning of year $6,225 · end of year $117,149

Mission and programs · 2024

Mission

TO ACCELERATE PROGRESS TOWARD A CURE FOR LEBER HEREDITARY OPTIC NEUROPATHY (LHON) WHILE IMPROVING THE LIVES OF PEOPLE LIVING WITH LHON

  • CREATED NETWORK OF MEDICAL PROFESSIONALS AND RESEARCHERS WORKING TO DISCOVER CURE

    Expenses $100,000

  • SCIENCE VIDEO PRODUCTION AND PATIENT COMMUNICATION

    Expenses $6,445

  • MEDICAL CONFERENCE EXPENSES

    Expenses $327

As filed on the 2024 return.

Listed in Part VII

  • Malinda Marsh

    CEO

    Total calculated
    $0
    Hours/week
    40

  • J Chris Marsh

    SECRETARY

    Total calculated
    $0
    Hours/week
    10

  • Alison Poincenot

    CFO

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
1 April 2025
IRS schema version
2024v5.1
Source object
202501349349312505

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