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Nonprofiteer
← THE FAMILIESCN2A FOUNDATION INC

Form 990 for tax year 2025

Filed by THE FAMILIESCN2A FOUNDATION INC.

Totals

Total revenue
$2,240,971
Total expenses
$2,232,098
Contributions and grants received
$2,076,981
Grants paid
$1,135,458
Program service revenue
$113,331
Investment income
$50,659
Other revenue
$0
Total assets, end of year
$3,695,761
Total liabilities, end of year
$109,382
Net assets or fund balances, end of year
$3,586,379
Program services expenses (Part IX)
$2,028,782
Management and general expenses
$84,456
Fundraising expenses
$118,860
Program service expenses (Part III)
$2,028,782

Program services were 90.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $202,348

  • 1f · All other contributions, gifts and grants

    $1,874,633

  • 1g · Noncash contributions included above

    $677,374

  • 2a · Program service revenue: SUMMER CONFERENCE

    total $113,331 · related or exempt $113,331

  • 3 · Investment income

    total $50,659 · excluded $50,659

  • 8a · Fundraising events: gross income

    $103,512

  • 8a · Fundraising events: contributions included on line 1c

    $202,348

  • 8b · Fundraising events: direct expenses

    $103,512

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $908,866 · program services $908,866

  • 3 · Grants to foreign organizations and individuals

    total $226,592 · program services $226,592

  • 5 · Compensation of officers, directors and key employees

    total $149,778 · program services $112,334 · management and general $7,489 · fundraising $29,955

  • 7 · Other salaries and wages

    total $208,221 · program services $156,166 · management and general $10,411 · fundraising $41,644

  • 10 · Payroll taxes

    total $30,445 · program services $22,834 · management and general $1,522 · fundraising $6,089

  • 11c · Fees: accounting

    total $24,400 · program services $12,200 · management and general $12,200

  • 11g · Fees: other

    total $73,207 · program services $72,296 · management and general $182 · fundraising $729

  • 12 · Advertising and promotion

    total $36,054 · program services $18,026 · management and general $9,014 · fundraising $9,014

  • 13 · Office expenses

    total $58,587 · program services $13,017 · management and general $14,141 · fundraising $31,429

  • 17 · Travel

    total $29,356 · program services $14,678 · management and general $14,678

  • 19 · Conferences, conventions and meetings

    total $460,265 · program services $460,265

  • 23 · Insurance

    total $2,467 · management and general $2,467

  • 24a · Other expenses: MERCHANDISE

    total $8,610 · program services $4,574 · management and general $4,036

  • 24b · Other expenses: STAFF DEVELOPMENT

    total $5,486 · program services $2,743 · management and general $2,743

  • 24c · Other expenses: ASSISTANCE PROGRAMS

    total $4,191 · program services $4,191

  • 24d · Other expenses: FEES AND PERMITS

    total $2,938 · management and general $2,938

  • 24e · All other expenses

    total $2,635 · management and general $2,635

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,017,710 · end of year $266,873

  • 2 · Savings and temporary cash investments

    beginning of year $3,533 · end of year $425,791

  • 3 · Pledges and grants receivable

    end of year $50,000

  • 4 · Accounts receivable

    beginning of year $11,400 · end of year $2,275

  • 6 · Loans and receivables from disqualified persons

    end of year $54,802

  • 9 · Prepaid expenses and deferred charges

    beginning of year $12,550 · end of year $149,277

  • 11 · Investments: publicly traded securities

    beginning of year $2,342,230 · end of year $2,475,282

  • 15 · Other assets

    beginning of year $222,514 · end of year $271,461

  • 17 · Accounts payable and accrued expenses

    beginning of year $68,606 · end of year $109,382

  • 27 · Net assets without donor restrictions

    beginning of year $1,401,823 · end of year $1,411,809

  • 28 · Net assets with donor restrictions

    beginning of year $2,139,508 · end of year $2,174,570

Mission and programs · 2025

Mission

THE FAMILIESCN2A'S MISSION IS TO IMPROVE LIVES OF THOSE AFFECTED BY SCN2A RELATED DISORDERS THROUGH RESEARCH, PUBLIC AWARENESS, FAMILY SUPPORT AND PATIENT ADVOCACY.

Activities or mission (Part I)

THE FAMILIESCN2A IS DEDICATED TO FINDING EFFECTIVE TREATMENTS AND ULTIMATELY A CURE FOR SCN2A RELATED AUTISM AND EPILEPSY DISORDERS. THE FAMILIESCN2A FOUNDATION RAISES PUBLIC AWARENESS, PROVIDES PATIENT ADVOCACY, AND SUPPORTS CLINICAL RESEARCH, GENETIC RESEARCH, AND EARLY DETECTION.

  • PROVIDING ADVANCED RESEARCH TOWARDS EARLY DETECTION, TREATMENTS, AND A CURE FOR SCN2A DISORDERS.

    Expenses $1,568,517 · Grants $1,135,458

  • THE SUMMER SEMINAR IS A FAMILY-FOCUSED GATHERING, WHERE FAMILIES COME TOGETHER AND LEARN ABOUT SCN2A-RELATED TOPICS AND TREATMENTS, AS WELL AS SHARE EXPERIENCES.

    Expenses $460,265 · Revenue $113,331

As filed on the 2025 return.

Listed in Part VII

  • LEAH SCHUST MYERS

    EXECUTIVE DI

    Total calculated
    $124,778
    From this org
    $124,778
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • JEFFREY COTTRELL

    CHIEF SCIENT

    Total calculated
    $25,000
    From this org
    $25,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • JENNIFER BURKE

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • MERY OMAN

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • MICHELLE LEWIS

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • MICHAEL VASEY

    TREASURER

    Total calculated
    $0
    Hours/week
    5

  • CARLA FORBES

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • EMILY PARK

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MAURA BRAGG

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • WILL HUTSON

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • ROGER PREMO

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • GEOFF WHITMAN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • ELOISE AUSTIN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
1 May 2026
IRS schema version
2025v4.0
Source object
202641829349301119

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