Totals
- Total revenue
- $386,225
- Total expenses
- $393,306
- Contributions and grants received
- $356,104
- Grants paid
- $0
- Program service revenue
- $27,807
- Investment income
- $2,314
- Other revenue
- $0
- Total assets, end of year
- $122,518
- Total liabilities, end of year
- $10
- Net assets or fund balances, end of year
- $122,508
- Program services expenses (Part IX)
- $284,059
- Management and general expenses
- $90,893
- Fundraising expenses
- $18,354
- Program service expenses (Part III)
- $284,059
Program services were 72.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$250
-
1f · All other contributions, gifts and grants
$355,854
-
2a · Program service revenue: Headache On The Hill
total $25,835 · related or exempt $25,835
-
2b · Program service revenue: Products Sold
total $1,972 · related or exempt $1,972
-
3 · Investment income
total $2,314 · related or exempt $2,314
-
4 · Income from investment of tax-exempt bond proceeds
total $0
-
5 · Royalties
total $0
-
6d · Net rental income or loss
total $0
-
7d · Net gain or loss
total $0
-
8c · Net income from fundraising events
total $0
-
9c · Net income from gaming
total $0
-
10c · Net income from sales of inventory
total $0
-
11e · Other revenue, total
$0
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $0
-
2 · Grants to domestic individuals
total $0
-
3 · Grants to foreign organizations and individuals
total $0
-
4 · Benefits paid to or for members
total $0
-
5 · Compensation of officers, directors and key employees
total $112,956 · program services $83,098 · management and general $19,843 · fundraising $10,015
-
6 · Compensation of disqualified persons
total $0
-
7 · Other salaries and wages
total $5,913 · program services $5,322 · fundraising $591
-
8 · Pension plan contributions
total $0
-
9 · Other employee benefits
total $229 · program services $229
-
10 · Payroll taxes
total $10,720 · program services $8,520 · management and general $2,200
-
11a · Fees: management
total $0
-
11b · Fees: legal
total $2,440 · management and general $2,440
-
11c · Fees: accounting
total $9,738 · management and general $9,738
-
11d · Fees: lobbying
total $21,871 · program services $21,871
-
11e · Fees: professional fundraising services
total $0
-
11f · Fees: investment management
total $0
-
11g · Fees: other
total $13,087 · management and general $13,087
-
12 · Advertising and promotion
total $20,221 · program services $5,679 · management and general $14,542
-
13 · Office expenses
total $1,045 · program services $3 · management and general $1,011 · fundraising $31
-
14 · Information technology
total $17,147 · program services $917 · management and general $16,230
-
15 · Royalties
total $0
-
16 · Occupancy
total $0
-
17 · Travel
total $12,534 · program services $8,995 · management and general $2,679 · fundraising $860
-
18 · Travel or entertainment for public officials
total $0
-
19 · Conferences, conventions and meetings
total $61,914 · program services $58,615 · management and general $203 · fundraising $3,096
-
20 · Interest
total $0
-
21 · Payments to affiliates
total $0
-
22 · Depreciation, depletion and amortization
total $0
-
23 · Insurance
total $3,314 · management and general $3,314
-
24a · Other expenses: Installation Project
total $86,968 · program services $84,000 · fundraising $2,968
-
24b · Other expenses: State Licensing Fees
total $6,684 · program services $6,249 · management and general $435
-
24c · Other expenses: Merchant Fees
total $3,680 · program services $6 · management and general $3,674
-
24d · Other expenses: Printing and Publications
total $1,586 · program services $185 · management and general $608 · fundraising $793
-
24e · All other expenses
total $1,259 · program services $370 · management and general $889
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $129,588 · end of year $53,204
-
2 · Savings and temporary cash investments
end of year $69,314
-
3 · Pledges and grants receivable
end of year $0
-
4 · Accounts receivable
end of year $0
-
5 · Loans and receivables from officers and key people
end of year $0
-
6 · Loans and receivables from disqualified persons
end of year $0
-
7 · Other notes and loans receivable
end of year $0
-
8 · Inventories for sale or use
end of year $0
-
9 · Prepaid expenses and deferred charges
end of year $0
-
10c · Land, buildings and equipment, net
end of year $0
-
11 · Investments: publicly traded securities
end of year $0
-
12 · Investments: other securities
end of year $0
-
13 · Investments: program-related
end of year $0
-
14 · Intangible assets
end of year $0
-
15 · Other assets
end of year $0
-
17 · Accounts payable and accrued expenses
end of year $10
-
27 · Net assets without donor restrictions
beginning of year $129,588 · end of year $122,508
Mission and programs · 2024
Mission
To improve the quality of life of those living with headache disorders through patient and provider education, communications campaigns, and support of early-stage research.
-
National Mall Installation Project (Flags for Headache) Purpose and Activities: The Flags for Headache National Mall Installation Project is a large-scale public awareness and education initiative designed to make the invisible burden of headache disorders visible. Activities included: -Designed and implemented a multi-week flag installation with 30,000 flags on the National Mall in Washington, DC (May 31June 15, 2025). -Created educational signage and a microsite to engage the public in learning about headache disorders. -Mobilizing patients, caregivers, and healthcare professionals to participate as volunteers and share their stories. -Supported home lawn installations and smaller pop-up installations in communities across the country. -Secured over 50 Proclamations for Migraine and Headache Awareness Month on the state and local level. -Secured over 50 buildings and landmarks to shine purple during Migraine and Headache Awareness Month. Accomplishments: -Successfully launched the first annual flag installation. -Reached an estimated 5 million people through earned media, social media, and in-person engagement. -Engaged nationwide participants in awareness-building activities. How it Furthers Exempt Purpose: The installation educates the public, reduces stigma, and raises national visibility for headache disorders as a major public health issue, fulfilling the organizations awareness and community engagement mission.
Expenses $165,368 · Revenue $113,500
-
Headache on the Hill (HOH) Purpose and Activities: Headache on the Hill is a biannual professional development and educational conference for patients, caregivers, and healthcare providers interested in civic engagement. Offered in September 2024 (virtual) and March 2025 (in-person in Washington, DC), HOH provides: -Educational workshops and trainings on topics such as storytelling, social media as an advocacy tool, and preparing for both virtual and in-person meetings with policymakers, and media training. -Community-building activities through affinity groups, fostering peer connections and collective problem-solving. -Wellness programming, including mindfulness sessions, a headache care room at the in-person event, and post-event self-care resources. -Youth-specific programming with art, science, and writing workshops to reduce isolation, build confidence, and introduce advocacy skills. Accomplishments: -156 participants attended the Fall 2024 Virtual HOH. -254 participants attended the Spring 2025 In-Person HOH. -Piloted a youth track with 20 youth participants. -Developed new training modules to strengthen the advocacy community and improve participant readiness for engagement. -Integrated wellness and self-care programming, supporting participants health and resilience. -Supported travel scholarships for low-income participants to attend How it Furthers Exempt Purpose: The program advances the organizations mission by educating and empowering individuals to engage in civic life, fostering a connected patient and caregiver community, and increasing public understanding of headache disorders.
Expenses $103,691 · Revenue $215,835
-
Lunch & Learn Webinar Series Purpose and Activities: The Lunch & Learn program is a virtual education series for patients, caregivers, and healthcare providers, focused on topics like navigating education with headache disorders, understanding the military journey to headache care, and managing access-to-care challenges. Accomplishments: -7 webinars hosted with approximately 900 registrants. -Provided recordings and downloadable resources to extend learning beyond live participants. How it Furthers Exempt Purpose: This program educates the public and patient community, reduces stigma, and equips people living with headache disorders with tools to better manage their condition and engage in civic life.
Expenses $10,000
-
Youth Programming Purpose and Activities: The Youth Program builds community and reduces isolation for young people living with headache disorders or supporting family members living with these conditions. Programming includes: -Art, science, and writing workshops to help youth understand headache disorders and express their experiences. -Community-building sessions to connect participants with peers and provide a supportive environment for sharing. -Civic education. Accomplishments: -20 youth participants engaged in the Spring 2025 pilot program. -Established a framework for an ongoing youth program integrated with HOH and other educational initiatives. How it Furthers Exempt Purpose: By educating and empowering youth, the program fosters future patient leaders and reduces the stigma and isolation associated with headache disorders.
Expenses $5,000 · Revenue $5,000
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Julienne Verdi
Executive Dir.
- Total calculated
- $100,155
- From this org
- $100,155
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
Karla Neville
Director
- Total calculated
- $0
- Hours/week
- 5
-
Mirabella Macias
Director
- Total calculated
- $0
- Hours/week
- 1
-
Sarah Shaw
Director
- Total calculated
- $0
- Hours/week
- 1
-
Annika Ehrlich
President
- Total calculated
- $0
- Hours/week
- 5
-
Amaal Starling
Vice President
- Total calculated
- $0
- Hours/week
- 5
-
Stephanie Nahas-Geiger
Secretary
- Total calculated
- $0
- Hours/week
- 5
-
Alex Doty
Treasurer
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
Alliance for Headache Disorders Advocacy
501(c)6 · Headache Disorder Advocacy · NJ
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 10 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202513179349307086
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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