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← DIABETES RESEARCH INSTITUTE FOUNDATION INC

Form 990 for tax year 2023

Filed by DIABETES RESEARCH INSTITUTE FOUNDATION INC.

Totals

Total revenue
$9,491,932
Total expenses
$14,123,317
Contributions and grants received
$5,960,883
Grants paid
$8,232,074
Program service revenue
$0
Investment income
$655,055
Other revenue
$2,875,994
Total assets, end of year
$26,391,689
Total liabilities, end of year
$1,746,872
Net assets or fund balances, end of year
$24,644,817
Program services expenses (Part IX)
$9,188,528
Management and general expenses
$1,889,218
Fundraising expenses
$3,045,571
Program service expenses (Part III)
$9,188,528

Program services were 65.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $23,150

  • 1f · All other contributions, gifts and grants

    $5,937,733

  • 1g · Noncash contributions included above

    $43,502

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $734,792 · excluded $734,792

  • 6a · Gross rents

    real property $87,481

  • 6c · Rental income or loss

    real property $87,481 · personal property $0

  • 6d · Net rental income or loss

    total $87,481 · excluded $87,481

  • 7a · Gross sales of assets other than inventory

    securities $3,828,400

  • 7b · Less cost or other basis and sales expenses

    securities $3,908,137

  • 7c · Gain or loss

    securities -$79,737 · other assets $0

  • 7d · Net gain or loss

    total -$79,737 · excluded -$79,737

  • 8a · Fundraising events: gross income

    $5,248,086

  • 8a · Fundraising events: contributions included on line 1c

    $23,150

  • 8b · Fundraising events: direct expenses

    $2,459,573

  • 8c · Net income from fundraising events

    total $2,788,513 · excluded $2,788,513

  • 11d · All other revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $8,232,074 · program services $8,232,074

  • 5 · Compensation of officers, directors and key employees

    total $688,750 · program services $105,684 · management and general $139,993 · fundraising $443,073

  • 7 · Other salaries and wages

    total $1,862,300 · program services $285,758 · management and general $378,525 · fundraising $1,198,017

  • 8 · Pension plan contributions

    total $201,920 · program services $31,715 · management and general $69,555 · fundraising $100,650

  • 9 · Other employee benefits

    total $126,570 · program services $17,137 · management and general $21,426 · fundraising $88,007

  • 10 · Payroll taxes

    total $181,906 · program services $21,881 · management and general $47,618 · fundraising $112,407

  • 11b · Fees: legal

    total $23,551 · program services $917 · management and general $20,090 · fundraising $2,544

  • 11c · Fees: accounting

    total $57,324 · management and general $57,324

  • 11e · Fees: professional fundraising services

    total $420,690 · fundraising $420,690

  • 11f · Fees: investment management

    total $173,461 · management and general $173,461

  • 11g · Fees: other

    total $174,924 · program services $41,319 · management and general $133,605 · fundraising $0

  • 12 · Advertising and promotion

    total $259,614 · program services $158,361 · fundraising $101,253

  • 13 · Office expenses

    total $132,637 · program services $20,547 · management and general $53,061 · fundraising $59,029

  • 16 · Occupancy

    total $365,419 · program services $11,842 · management and general $252,675 · fundraising $100,902

  • 17 · Travel

    total $68,175 · program services $14,498 · management and general $8,105 · fundraising $45,572

  • 19 · Conferences, conventions and meetings

    total $19,238 · program services $6,306 · management and general $12,709 · fundraising $223

  • 22 · Depreciation, depletion and amortization

    total $41,918 · program services $17,358 · management and general $18,687 · fundraising $5,873

  • 23 · Insurance

    total $50,445 · program services $816 · management and general $49,629

  • 24a · Other expenses: CONTRACTUAL SERVICES

    total $684,524 · program services $217,970 · management and general $172,792 · fundraising $293,762

  • 24b · Other expenses: MISCELLANEOUS

    total $140,768 · program services $79 · management and general $86,265 · fundraising $54,424

  • 24c · Other expenses: DUES & SUBSCRIPTIONS

    total $107,618 · program services $4,028 · management and general $84,445 · fundraising $19,145

  • 24d · Other expenses: BAD DEBT EXPENSE

    total $63,044 · management and general $63,044

  • 24e · All other expenses

    total $46,447 · program services $238 · management and general $46,209 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $706,400 · end of year $188,199

  • 3 · Pledges and grants receivable

    beginning of year $1,739,676 · end of year $1,447,943

  • 4 · Accounts receivable

    end of year $215,010

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $842,342 · end of year $548,523

  • 10a · Land, buildings and equipment: cost or other basis

    $745,765

  • 10b · Land, buildings and equipment: accumulated depreciation

    $643,741

  • 10c · Land, buildings and equipment, net

    beginning of year $85,598 · end of year $102,024

  • 11 · Investments: publicly traded securities

    beginning of year $24,367,249 · end of year $23,671,269

  • 12 · Investments: other securities

    beginning of year $0

  • 13 · Investments: program-related

    beginning of year $0

  • 15 · Other assets

    beginning of year $423,563 · end of year $218,721

  • 17 · Accounts payable and accrued expenses

    beginning of year $865,321 · end of year $978,146

  • 18 · Grants payable

    beginning of year $57,565 · end of year $599,088

  • 19 · Deferred revenue

    beginning of year $50,000 · end of year $106,775

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $230,405 · end of year $62,863

  • 27 · Net assets without donor restrictions

    beginning of year $3,819,796 · end of year $3,866,431

  • 28 · Net assets with donor restrictions

    beginning of year $23,141,741 · end of year $20,778,386

Mission and programs · 2023

Mission

TO PROVIDE THE DIABETES RESEARCH INSTITUTE WITH THE FUNDING TO CURE DIABETES NOW.

  • THE DIABETES RESEARCH INSTITUTE FOUNDATION FUNDS BASIC, PRE-CLINICAL AND PATIENT-BASED RESEARCH STUDIES, INCLUDING CLINICAL STUDIES, SEVERAL OF WHICH ARE SIMULTANEOUSLY UNDERWAY AT THE DIABETES RESEARCH INSTITUTE (DRI) AND OTHER COLLABORATING RESEARCH FACILITIES. SUPPORT FROM THE DIABETES RESEARCH INSTITUTE FOUNDATION HAS ENABLED THE INTRODUCTION OF AFFINITY GROUPS AT THE DRI, A NEW STRATEGIC TOOL TO ACCELERATE THE FUTURE OF TYPE 1 DIABETES RESEARCH. THESE GROUPS ARE DESIGNED TO FOSTER COLLABORATION, ENCOURAGE INNOVATIVE THINKING AND STREAMLINE PROBLEM-SOLVING. THROUGH THESE NEW AFFINITY GROUPS, EXPERTS AND SPECIALISTS ACROSS DISCIPLINES, INCLUDING SURGEONS, ENGINEERS, IMMUNOLOGISTS, CHEMISTS AND ENDOCRINOLOGISTS, COME TOGETHER TO FOCUS ON THREE CRITICAL AREAS: IMMUNOLOGY/IMMUNE MODULATION, DEVICES TO SUPPORT ISLET TRANSPLANTATION AND INSULIN-PRODUCING BETA CELL ROBUSTNESS AND AUGMENTATION. IN THE AREA OF IMMUNOLOGY, DRIF HAS FUNDED DRI RESEARCH PROJECTS THAT FOCUS ON ESTABLISHING IMMUNE TOLERANCE AND REVERSING AUTOIMMUNITY, THE BODY'S DESTRUCTION OF THE INSULIN-PRODUCING CELLS WHICH CAUSES THE ONSET OF THE DISEASE. ONE SUCH STUDY INVOLVES THE MONOCLONAL ANTIBODY AT-1501 WHICH WAS TESTED IN PRECLINICAL MODELS, LEADING TO LONG-TERM GRAFT SURVIVAL IN BOTH ISLET AND KIDNEY TRANSPLANTS, CONFIRMING ITS IMMUNOSUPPRESSIVE POTENTIAL. ANOTHER EXCITING STUDY INVOLVES THE USE OF "LIPONANO CLUSTERS" WHICH PROVIDE CONTINUOUS DELIVERY OF ANTI-INFLAMMATORY COMPOUNDS TO TRANSPLANTED INSULIN-PRODUCING CELLS, REDUCING INFLAMMATION AND PROTECTING THESE CELLS FROM BEING ATTACKED BY THE IMMUNE SYSTEM. IN THE AREA OF DEVICES, DRIF-FUNDED RESEARCHERS ARE FOCUSED ON REFINING STRATEGIES FOR HIDING AND PROTECTING INSULIN-PRODUCING CELLS FROM THE ATTACK BY THE IMMUNE SYSTEM WITH THE USE OF ENCAPSULATION AND HOUSING DEVICES FOR CELLS. DRI RESEARCHERS ARE ADVANCING CONFORMAL COATING TECHNOLOGY COMBINED WITH THE CELL POUCH SYSTEM TO PROTECT ISLET CELLS. DRI RESEARCHERS ARE ALSO WORKING TO DEVELOP THE IMMUNOSUPPRESSION-FREE VASCULARIZED DEVICE FOR ISLET TRANSPLANTATION (VADIT), AN INNOVATIVE APPROACH THAT INTEGRATES A VASCULARIZED DEVICE WITH A TISSUE-BASED DRUG DELIVERY SYSTEM TO ENABLE ISLET TRANSPLANTATION WITHOUT THE NEED FOR LIFELONG IMMUNOSUPPRESSION. ADDITIONALLY, DRI SCIENTISTS ARE STUDYING PATENTED FASL TECHNOLOGY, COMBINING A SYNTHETIC FORM OF THE PROTEIN FASL WITH A SPECIAL MICROGEL TO SAFELY PROTECT TRANSPLANTED ISLETS AND INDUCE LOCAL IMMUNE TOLERANCE. ANOTHER MAJOR RESEARCH AREA THAT DRIF SUPPORTS IS THE DEVELOPMENT OF AN UNLIMITED SUPPLY OF INSULIN-PRODUCING CELLS. DRIF-FUNDED STUDIES HAVE LED TO SIGNIFICANT PROGRESS IN STIMULATING THE REGENERATION OF PANCREATIC STEM CELLS INTO INSULIN-PRODUCING CELLS USING A SINGLE FDA-APPROVED MOLECULE, BMP-7. THIS SIGNIFICANT FINDING OPENS TO DOOR TO A NATURAL CELL SUPPLY BANK WITHIN THE PATIENT'S BODY, ADDRESSING SEVERAL ONGOING CHALLENGES FOR CURING THE DISEASE. THE DRIF HAS FUNDED INTERNATIONAL RESEARCHER TRAINING AND KEY COLLABORATIVE PROGRAMS THAT HELP ACCELERATE RESEARCH PROGRESS THROUGH THE SHARING OF IDEAS AND ADVANCEMENTS. DRIF ALSO HOSTS AND PARTICIPATES IN A VARIETY OF INFORMATIONAL WORKSHOPS FOR PEOPLE WITH DIABETES AND THEIR FAMILIES FOCUSING ON THE LATEST ADVANCES TOWARD A CURE AND THE NEWEST DIABETES MANAGEMENT TECHNIQUES. THROUGH ITS WEBSITE DIABETESRESEARCH.ORG, THE DRIF PROVIDES 'NEWS YOU CAN USE RESEARCH UPDATES FOR THOSE LIVING WITH DIABETES AND THEIR FAMILY MEMBERS IN THE FORM OF E-NEWSLETTERS, VIDEOS, EMAIL ANNOUNCEMENTS AND INFORMATION VIA SOCIAL MEDIA.

    Expenses $8,232,074 · Grants $8,232,074

  • COMMUNITY DIABETES EDUCATION. THE DIABETES RESEARCH INSTITUTE FOUNDATION PROVIDES INFORMATION TO THE PUBLIC VIA ITS WEBSITE, LITERATURE, SPEAKERS, CONFERENCES, PRINT INTERVIEWS AND TOLL FREE NUMBER 800-321-3437. THE PUBLIC GAINS KNOWLEDGE ABOUT DIABETES, DIABETES CARE, NUTRITION AND RESEARCH TOWARD FINDING A CURE FOR DIABETES.

    Expenses $956,454

As filed on the 2023 return.

Listed in Part VII

  • BONNIE INSERRA

    MEMBER AT LARGE

    Total calculated
    $0
    Hours/week
    5
  • BRUCE SIEGEL

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • CHARLES RIZZO

    AT LARGE

    Total calculated
    $0
    Hours/week
    5
  • HAROLD DORAN JR

    IMMEDIATE PAST BOARD CHAIRMAN

    Total calculated
    $0
    Hours/week
    5
  • JOHN DOSCAS

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    5
  • MARC S GOODMAN

    AT LARGE

    Total calculated
    $0
    Hours/week
    5
  • MATTHEW STUBBS

    SECRETARY

    Total calculated
    $0
    Hours/week
    5
  • WILLIAM FISHLINGER

    BOARD CHAIRMAN

    Total calculated
    $0
    Hours/week
    5
  • BRUCE WALLER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • ELEANOR KOSOW

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • ESTHER GOODMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • JILL VINER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • LINDSEY INSERRA-HUGHES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • MARC GOLDFARB

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • MARLENE BERG

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • RAMON POO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • RICARDO SALMON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • RICHARD TONKINSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • ROGER SILVERSTEIN

    DIRECTOR (AS OF 07/2023)

    Total calculated
    $0
    Hours/week
    1
  • RONALD DARLING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • SCARLETT LEUNG

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • SEAN MCGARVEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • STEPHEN RIZZO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • MICHAEL BURTON

    CHIEF EXECUTIVE OFFICER (AS OF 07/2023)

    Total calculated
    $348,430
    From this org
    $318,750
    From related orgs
    $0
    Other
    $29,680
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $286,750
    Bonus
    $20,000
    Other
    $12,000
    Deferred
    $18,128
    Nontaxable benefits
    $11,552
    Filer's total
    $348,430
  • SAMANTHA DAVIS

    CHIEF FINANCIAL OFFICER

    Total calculated
    $243,295
    From this org
    $160,000
    From related orgs
    $0
    Other
    $83,295
    Hours/week
    60

    Schedule J breakdown matched by us

    Base
    $160,000
    Bonus
    $0
    Other
    $0
    Deferred
    $72,434
    Nontaxable benefits
    $10,861
    Filer's total
    $243,295
  • AMY POWERS

    CHIEF DEVELOPMENT OFFICER

    Total calculated
    $233,461
    From this org
    $210,000
    From related orgs
    $0
    Other
    $23,461
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $210,000
    Bonus
    $0
    Other
    $0
    Deferred
    $12,600
    Nontaxable benefits
    $10,861
    Filer's total
    $233,461
  • JESSICA SINNES

    ASSISTANT VP, PHILANTHROPY

    Total calculated
    $134,620
    From this org
    $127,000
    From related orgs
    $0
    Other
    $7,620
    Hours/week
    50
  • JILL SHAPIRO-MILLER

    EXECUTIVE VICE PRESIDENT

    Total calculated
    $210,463
    From this org
    $198,550
    From related orgs
    $0
    Other
    $11,913
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $198,550
    Bonus
    $0
    Other
    $0
    Deferred
    $11,913
    Nontaxable benefits
    $0
    Filer's total
    $210,463
  • JOANN FLICK

    DIRECTOR OF MAJOR GIFTS

    Total calculated
    $158,340
    From this org
    $135,960
    From related orgs
    $0
    Other
    $22,380
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $135,960
    Bonus
    $0
    Other
    $0
    Deferred
    $4,079
    Nontaxable benefits
    $18,301
    Filer's total
    $158,340
  • MICHAEL MYERS

    CHIEF COMMUNICATIONS OFFICER

    Total calculated
    $160,849
    From this org
    $147,115
    From related orgs
    $0
    Other
    $13,734
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $147,115
    Bonus
    $0
    Other
    $0
    Deferred
    $8,827
    Nontaxable benefits
    $4,907
    Filer's total
    $160,849
  • THOMAS KARLYA

    EXECUTIVE VICE PRESIDENT

    Total calculated
    $224,071
    From this org
    $207,000
    From related orgs
    $0
    Other
    $17,071
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $207,000
    Bonus
    $0
    Other
    $0
    Deferred
    $6,210
    Nontaxable benefits
    $10,861
    Filer's total
    $224,071

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2023
Filed
14 May 2025
IRS schema version
2023v6.0
Source object
202521339349309377

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