Totals
- Total revenue
- $272,377
- Total expenses
- $723,250
- Contributions and grants received
- $272,377
- Grants paid
- $0
- Program service revenue
- $0
- Investment income
- $0
- Other revenue
- $0
- Total assets, end of year
- $314,143
- Total liabilities, end of year
- $12,094
- Net assets or fund balances, end of year
- $302,049
- Program services expenses (Part IX)
- $563,755
- Management and general expenses
- $159,495
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $563,755
Program services were 77.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$272,377
Functional expenses
Part IX, the statement of functional expenses.
-
7 · Other salaries and wages
total $146,368 · program services $73,184 · management and general $73,184
-
10 · Payroll taxes
total $12,256 · program services $6,128 · management and general $6,128
-
11b · Fees: legal
total $23,351 · management and general $23,351
-
11c · Fees: accounting
total $3,710 · management and general $3,710
-
11g · Fees: other
total $357,594 · program services $357,286 · management and general $308
-
13 · Office expenses
total $1,788 · management and general $1,788
-
14 · Information technology
total $51,026 · management and general $51,026
-
19 · Conferences, conventions and meetings
total $125,163 · program services $125,163
-
23 · Insurance
total $1,994 · program services $1,994
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $756,445 · end of year $314,143
-
17 · Accounts payable and accrued expenses
beginning of year $3,523 · end of year $12,094
-
31 · Retained earnings, endowment or other funds
beginning of year $752,922 · end of year $302,049
Mission and programs · 2022
Mission
OUR MISSION IS TO CONNECT FAMILIES, RESOURCES, AND THE MEDICAL COMMUNITY TO ADVANCE RESEARCH FOR A CURE TO DDX3X GENE MUTATIONS. OUR ULTIMATE GOAL OVER THE COMING YEARS IS TO ACCELERATE BRAIN FUNCTION IN INDIVIDUALS AFFECTED BY DDX3X THROUGH ADVANCES IN GENE THERAPY AND PHARMACEUTICALS.
-
RAISE AWARENESS OF DDX3X DISEASE BY HOLDING FAMILY CONFERENCES, EVENTS, TRAINING SESSIONS AND DISEASE AWARENESS TYPE GATHERINGS.
-
RAISE AWARENESS OF DDX3X DISEASE BY HOLDING FAMILY CONFERENCES, EVENTS, TRAINING SESSIONS AND DISEASE AWARENESS TYPE GATHERINGS.
Expenses $563,755
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Elizabeth BergerELIZABETH BERGER
SECRETARY, T
- Total calculated
- $0
- Hours/week
- 20
-
Elizabeth BucciniELIZABETH BUCCINI
PRESIDENT
- Total calculated
- $0
- Hours/week
- 20
-
Robert BucciniROBERT BUCCINI
OTHER BOARD
- Total calculated
- $0
- Hours/week
- 10
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 7 May 2024
- IRS schema version
- 2022v5.0
- Source object
- 202441289349304009
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