Form 990 for tax year 2022
Filed by ASSOCIATION FOR CREATINE DEFICIENCIES.
Totals
- Total revenue
- $699,129
- Total expenses
- $599,640
- Contributions and grants received
- $646,962
- Grants paid
- $171,769
- Program service revenue
- $31,078
- Investment income
- $0
- Other revenue
- $21,089
- Total assets, end of year
- $685,374
- Total liabilities, end of year
- $25,423
- Net assets or fund balances, end of year
- $659,951
- Program services expenses (Part IX)
- $497,598
- Management and general expenses
- $65,712
- Fundraising expenses
- $36,330
- Program service expenses (Part III)
- $497,598
Program services were 83.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$64,156
-
1f · All other contributions, gifts and grants
$582,806
-
2a · Program service revenue: Conference
total $31,078 · related or exempt $31,078
-
8a · Fundraising events: contributions included on line 1c
$64,156
-
11a · Other revenue: Other
total $21,089 · related or exempt $21,089
-
11e · Other revenue, total
$21,089
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $171,769 · program services $171,769
-
5 · Compensation of officers, directors and key employees
total $91,345 · program services $81,286 · management and general $3,824 · fundraising $6,235
-
7 · Other salaries and wages
total $28,902 · program services $25,719 · management and general $1,210 · fundraising $1,973
-
10 · Payroll taxes
total $9,141 · program services $8,134 · management and general $383 · fundraising $624
-
11b · Fees: legal
total $12,765 · program services $12,765
-
11c · Fees: accounting
total $35,226 · program services $1,076 · management and general $34,047 · fundraising $103
-
11g · Fees: other
total $84,316 · program services $70,829 · management and general $13,487
-
12 · Advertising and promotion
total $23,182 · program services $1,468 · management and general $1,200 · fundraising $20,514
-
13 · Office expenses
total $19,899 · program services $9,848 · management and general $6,410 · fundraising $3,641
-
14 · Information technology
total $6,496 · program services $1,642 · management and general $2,313 · fundraising $2,541
-
16 · Occupancy
total $1,695 · program services $1,695
-
17 · Travel
total $34,750 · program services $33,206 · management and general $863 · fundraising $681
-
19 · Conferences, conventions and meetings
total $70,172 · program services $70,006 · management and general $148 · fundraising $18
-
23 · Insurance
total $1,827 · management and general $1,827
-
24a · Other expenses: Other
total $8,155 · program services $8,155
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $429,199 · end of year $509,760
-
3 · Pledges and grants receivable
beginning of year $10,000 · end of year $109,689
-
9 · Prepaid expenses and deferred charges
beginning of year $66,106 · end of year $1,153
-
11 · Investments: publicly traded securities
beginning of year $69,207 · end of year $64,772
-
17 · Accounts payable and accrued expenses
beginning of year $9,615 · end of year $25,423
-
27 · Net assets without donor restrictions
beginning of year $249,450 · end of year $358,386
-
28 · Net assets with donor restrictions
beginning of year $315,447 · end of year $301,565
Mission and programs · 2022
Mission
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
-
Providing accurate and up to date information through attendance at Medical & Scientific Symposiums, & etc. Publication of CCDS educational video, etc.; Quarterly website updates. Public awareness campaigns in local communities.Promoting research to improve diagnoses & treatment through advocating federal funding for rare diseases, increasing patient registry enrollment, non-drug research opportunities and outreach. Helping patients & families with CCDS. Quarterly web newsletter, online resource guides & etc.
Expenses $497,598 · Grants $171,769 · Revenue $31,078
As filed on the 2022 return.
Listed in Part VII
-
Heidi Wallis
Executive Director
- Total calculated
- $91,346
- From this org
- $91,346
- From related orgs
- $0
- Other
- $0
- Hours/week
- 25
-
Kim Tuminello
Director of Advocacy
- Total calculated
- $0
- Hours/week
- 10
-
Mikelle Law
Director of Compliance
- Total calculated
- $0
- Hours/week
- 10
-
Randy Allen
Director of Fundraising
- Total calculated
- $0
- Hours/week
- 5
-
Erin Coller
Director of Comm
- Total calculated
- $0
- Hours/week
- 10
-
Laura Trutoiu
Board Chair
- Total calculated
- $0
- Hours/week
- 12
-
Daniel Coller
Vice Board Chair
- Total calculated
- $0
- Hours/week
- 10
-
Celeste Graham
Director of Education
- Total calculated
- $0
- Hours/week
- 5
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$30,000
-
The Hospital for Sick Children
$15,000
-
$10,000
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 23 October 2023
- IRS schema version
- 2022v5.0
- Source object
- 202302969349300785
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