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Nonprofiteer
← PULMONARY HYPERTENSION ASSOCIATION INC

Form 990 for tax year 2024

Filed by PULMONARY HYPERTENSION ASSOCIATION INC.

Totals

Total revenue
$8,460,561
Total expenses
$8,868,474
Contributions and grants received
$5,831,537
Grants paid
$310,000
Program service revenue
$1,318,127
Investment income
$998,508
Other revenue
$312,389
Total assets, end of year
$24,745,734
Total liabilities, end of year
$3,409,576
Net assets or fund balances, end of year
$21,336,158
Program services expenses (Part IX)
$6,308,713
Management and general expenses
$1,631,306
Fundraising expenses
$928,455
Program service expenses (Part III)
$6,308,713

Program services were 71.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $350,737

  • 1f · All other contributions, gifts and grants

    $5,480,800

  • 2a · Program service revenue: MEETINGS AND REGISTRATION

    total $468,038 · related or exempt $468,038

  • 2b · Program service revenue: ACCREDITATION INCOME

    total $438,900 · related or exempt $438,900

  • 2c · Program service revenue: MEMBERSHIP DUES

    total $286,689 · related or exempt $286,689

  • 2d · Program service revenue: REGISTRY AND DATA ENGAGEMENT SERV

    total $124,500 · related or exempt $124,500

  • 3 · Investment income

    total $801,028 · excluded $801,028

  • 6a · Gross rents

    real property $79,974

  • 6b · Less rental expenses

    real property $10,282

  • 6c · Rental income or loss

    real property $69,692

  • 6d · Net rental income or loss

    total $69,692 · excluded $69,692

  • 7a · Gross sales of assets other than inventory

    securities $4,232,215

  • 7b · Less cost or other basis and sales expenses

    securities $4,034,735

  • 7c · Gain or loss

    securities $197,480

  • 7d · Net gain or loss

    total $197,480 · excluded $197,480

  • 8a · Fundraising events: gross income

    $27,620

  • 8a · Fundraising events: contributions included on line 1c

    $350,737

  • 8b · Fundraising events: direct expenses

    $133,606

  • 8c · Net income from fundraising events

    total -$105,986 · excluded -$105,986

  • 10a · Gross sales of inventory

    $1,186

  • 10b · Cost of goods sold

    $2,234

  • 10c · Net income from sales of inventory

    total -$1,048 · excluded -$1,048

  • 11a · Other revenue: ADVERTISING REVENUE

    total $349,731 · unrelated business $262,031 · excluded $87,700

  • 11e · Other revenue, total

    $349,731

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $310,000 · program services $310,000

  • 5 · Compensation of officers, directors and key employees

    total $512,155 · program services $337,122 · management and general $100,286 · fundraising $74,747

  • 7 · Other salaries and wages

    total $3,051,324 · program services $2,005,197 · management and general $601,028 · fundraising $445,099

  • 8 · Pension plan contributions

    total $95,022 · program services $64,902 · management and general $16,089 · fundraising $14,031

  • 9 · Other employee benefits

    total $256,627 · program services $175,282 · management and general $43,451 · fundraising $37,894

  • 10 · Payroll taxes

    total $254,456 · program services $168,778 · management and general $48,181 · fundraising $37,497

  • 11b · Fees: legal

    total $3,704 · management and general $3,704

  • 11c · Fees: accounting

    total $24,624 · management and general $24,624

  • 11d · Fees: lobbying

    total $47,832 · program services $47,832

  • 11f · Fees: investment management

    total $78,519 · management and general $78,519

  • 11g · Fees: other

    total $614,980 · program services $541,174 · management and general $69,107 · fundraising $4,699

  • 12 · Advertising and promotion

    total $79,729 · program services $77,460 · fundraising $2,269

  • 13 · Office expenses

    total $319,027 · program services $186,093 · management and general $63,091 · fundraising $69,843

  • 14 · Information technology

    total $453,470 · program services $105,969 · management and general $297,186 · fundraising $50,315

  • 16 · Occupancy

    total $243,285 · program services $148,819 · management and general $57,610 · fundraising $36,856

  • 17 · Travel

    total $180,729 · program services $100,741 · management and general $42,894 · fundraising $37,094

  • 19 · Conferences, conventions and meetings

    total $1,259,492 · program services $1,163,632 · management and general $36,125 · fundraising $59,735

  • 22 · Depreciation, depletion and amortization

    total $105,425 · management and general $105,425

  • 23 · Insurance

    total $24,887 · management and general $24,887

  • 24a · Other expenses: PROGRAM EXPENSE

    total $429,721 · program services $379,832 · management and general $112 · fundraising $49,777

  • 24b · Other expenses: MEDICAL EDUCATION

    total $414,200 · program services $414,200

  • 24c · Other expenses: ACCREDITATION FEES

    total $75,845 · program services $75,845

  • 24d · Other expenses: DUES AND SUBSCRIPTIONS

    total $16,013 · program services $5,717 · management and general $1,704 · fundraising $8,592

  • 24e · All other expenses

    total $17,408 · program services $118 · management and general $17,283 · fundraising $7

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,898,517 · end of year $677,754

  • 2 · Savings and temporary cash investments

    beginning of year $128,777 · end of year $1,708

  • 3 · Pledges and grants receivable

    beginning of year $1,160,864 · end of year $1,656,606

  • 4 · Accounts receivable

    beginning of year $82,979 · end of year $80,691

  • 9 · Prepaid expenses and deferred charges

    beginning of year $234,162 · end of year $251,296

  • 10a · Land, buildings and equipment: cost or other basis

    $1,561,306

  • 10b · Land, buildings and equipment: accumulated depreciation

    $762,570

  • 10c · Land, buildings and equipment, net

    beginning of year $593,935 · end of year $798,736

  • 11 · Investments: publicly traded securities

    beginning of year $18,676,539 · end of year $17,558,674

  • 12 · Investments: other securities

    beginning of year $223,812 · end of year $2,233,986

  • 15 · Other assets

    beginning of year $1,525,658 · end of year $1,486,283

  • 17 · Accounts payable and accrued expenses

    beginning of year $770,321 · end of year $744,960

  • 19 · Deferred revenue

    beginning of year $649,695 · end of year $650,100

  • 25 · Other liabilities

    beginning of year $2,203,289 · end of year $2,014,516

  • 27 · Net assets without donor restrictions

    beginning of year $9,399,350 · end of year $8,572,286

  • 28 · Net assets with donor restrictions

    beginning of year $11,502,588 · end of year $12,763,872

Mission and programs · 2024

Mission

TO EXTEND AND IMPROVE THE LIVES OF THOSE AFFECTED BY PULMONARY HYPERTENSION (PH).

  • IN 2024, PHA PRODUCED A VARIETY OF EDUCATIONAL RESOURCES FOR PH PATIENTS AND THEIR FAMILIES INCLUDING A TWICE-MONTHLY PODCAST THAT LAUNCHED IN AUGUST, IN-PERSON LEARNING DAYS IN HOUSTON AND PHOENIX AND SPANISH TRANSLATIONS OF ALL 16 BROCHURES IN OUR PH AND ASSOCIATED CONDITIONS SERIES.PHA SUPPORT GROUPS HELD 405 MEETINGS SERVING 5,174 ATTENDEES (NON-UNIQUE). PHA LAUNCHED A PEER-MENTORS PROGRAM IN 2024 THAT MATCHED 64 MENTOR-MENTEE PAIRS. PH ADVOCATES SENT MORE THAN 2,000 MESSAGES TO CONGRESS, REACHING 345 LEGISLATIVE OFFICES.

    Expenses $5,403,998 · Grants $310,000 · Revenue $754,727

  • PULMONARY HYPERTENSION ASSOCIATION REGISTRY (PHAR): ACCREDITED PHCC'S HAVE AN OPPORTUNITY TO PARTICIPATE IN PHAR AS BOTH A QUALITY IMPROVEMENT PROCESS AND RESEARCH ACTIVITY. A PATIENT REGISTRY IS AN ORGANIZED SYSTEM THAT COLLECTS DATA TO EVALUATE CERTAIN OUTCOMES FOR A POPULATION OF PEOPLE WITH A MEDICAL CONDITION AND IS A USEFUL TOOL FOR QUALITY IMPROVEMENT OF CARE AND FOR RESEARCH OF RARE DISEASES SUCH AS PH. PHAR COLLECTS DATA FROM WHO GROUP 1 PH (PULMONARY ARTERIAL HYPERTENSIONPAH) AND WHO GROUP 4 PH (CHRONIC THROMBOEMBOLIC PULMONARY HYPERTENSIONCTEPH) WHO ARE STARTING EVALUATION AND/OR TREATMENT AT AN ACCREDITED PHCC. DATA IS COLLECTED IN CONJUNCTION WITH ROUTINE PH CARE TEAM VISITS APPROXIMATELY EVERY 3-6 MONTHS. AT THE END OF 2024, THERE WERE 96 ACCREDITED PHCC'S AND 74 CENTERS PARTICIPATING PHAR WITH 3,442 PATIENTS EVER ENROLLED IN PHAR.

    Expenses $904,715 · Revenue $563,400

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Traci Stewart RN Msn Chfn

    CHAIR

    Total calculated
    $0
    Hours/week
    3
  • Mitchell Koppelman PhD

    CHAIR ELECT

    Total calculated
    $0
    Hours/week
    3
  • Mike Lentz

    TREASURER

    Total calculated
    $0
    Hours/week
    3
  • Nicole Creech

    SECRETARY

    Total calculated
    $0
    Hours/week
    3
  • Tony Lahnston

    IMMEDIATE PAST CHAIR

    Total calculated
    $0
    Hours/week
    3
  • Todd Bull MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Charles Burger MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Colleen Connor

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Ramona Doyle MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Mardi Gomberg-Maitland

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Tisha Kivett

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Michelle Liu MD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Melissa Magness

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Mike Naple

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Monica Penaranda

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Jody Petry

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Diane Ramirez

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Doug Taylor

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Matt Wall

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Kelly Wiegele

    TRUSTEE

    Total calculated
    $0
    Hours/week
    3
  • Delphine Yung MD

    TREASURER

    Total calculated
    $0
    Hours/week
    3
  • Matias Granato

    PRESIDENT & CEO

    Total calculated
    $330,025
    From this org
    $316,682
    From related orgs
    $0
    Other
    $13,343
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $316,664
    Bonus
    $0
    Other
    $18
    Deferred
    $12,498
    Nontaxable benefits
    $845
    Filer's total
    $330,025
  • Teresita Esposito

    VP - FINANCE & OPERATIONS

    Total calculated
    $182,130
    From this org
    $173,967
    From related orgs
    $0
    Other
    $8,163
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $172,467
    Bonus
    $1,500
    Other
    $0
    Deferred
    $6,823
    Nontaxable benefits
    $1,340
    Filer's total
    $182,130
  • Kevin Heyen

    VP - DEVELOPMENT

    Total calculated
    $182,315
    From this org
    $174,823
    From related orgs
    $0
    Other
    $7,492
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $173,311
    Bonus
    $1,500
    Other
    $12
    Deferred
    $6,765
    Nontaxable benefits
    $727
    Filer's total
    $182,315
  • Elizabeth Joseloff

    VP - QUALITY CARE & RESEARCH

    Total calculated
    $179,014
    From this org
    $162,392
    From related orgs
    $0
    Other
    $16,622
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $160,840
    Bonus
    $1,500
    Other
    $52
    Deferred
    $6,560
    Nontaxable benefits
    $10,062
    Filer's total
    $179,014
  • Karen Smaalders

    VP - COMMUNICATIONS & MARKETING

    Total calculated
    $163,379
    From this org
    $149,656
    From related orgs
    $0
    Other
    $13,723
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $148,156
    Bonus
    $1,500
    Other
    $0
    Deferred
    $6,004
    Nontaxable benefits
    $7,719
    Filer's total
    $163,379
  • Katherine Kroner

    VP - ADVOCACY & PATIENT ENGAGEMENT

    Total calculated
    $165,667
    From this org
    $158,331
    From related orgs
    $0
    Other
    $7,336
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $155,813
    Bonus
    $2,500
    Other
    $18
    Deferred
    $6,065
    Nontaxable benefits
    $1,271
    Filer's total
    $165,667
  • Lavina Grover

    VP - MEETINGS (THRU AUGUST)

    Total calculated
    $126,369
    From this org
    $121,263
    From related orgs
    $0
    Other
    $5,106
    Hours/week
    37.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
14 November 2025
IRS schema version
2024v5.2
Source object
202503189349304995

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