Totals
- Total revenue
- $2,066,070
- Total expenses
- $554,594
- Contributions and grants received
- $1,107,241
- Grants paid
- $0
- Program service revenue
- $954,412
- Investment income
- $4,417
- Other revenue
- $0
- Total assets, end of year
- $3,081,868
- Total liabilities, end of year
- $251,554
- Net assets or fund balances, end of year
- $2,830,314
- Program services expenses (Part IX)
- $298,146
- Management and general expenses
- $243,844
- Fundraising expenses
- $12,604
- Program service expenses (Part III)
- $298,146
Program services were 53.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,107,241
-
1g · Noncash contributions included above
$502,021
-
2a · Program service revenue: SPONSORSHIP
total $363,501 · related or exempt $363,501
-
2b · Program service revenue: INFRASTRUCTURE SUPPORT
total $253,184 · related or exempt $253,184
-
2c · Program service revenue: MEMBERSHIP DUES
total $141,098 · related or exempt $141,098
-
2d · Program service revenue: GRANT INCOME
total $106,524 · related or exempt $106,524
-
2e · Program service revenue: ANNUAL CONFERENCE - FE
total $90,105 · related or exempt $90,105
-
3 · Investment income
total $4,417 · excluded $4,417
Functional expenses
Part IX, the statement of functional expenses.
-
11a · Fees: management
total $252,087 · program services $163,857 · management and general $75,626 · fundraising $12,604
-
11c · Fees: accounting
total $5,500 · management and general $5,500
-
11g · Fees: other
total $56,697 · management and general $56,697
-
13 · Office expenses
total $40,810 · management and general $40,810
-
16 · Occupancy
total $11,348 · management and general $11,348
-
17 · Travel
total $17,298 · management and general $17,298
-
23 · Insurance
total $708 · management and general $708
-
24a · Other expenses: SCIENCE MEETING AND EXE
total $60,307 · program services $36,184 · management and general $24,123
-
24b · Other expenses: PROVISION FOR CREDIT LO
total $58,000 · program services $58,000
-
24c · Other expenses: ANNUAL MEETING
total $20,320 · program services $20,320
-
24d · Other expenses: MEMBERSHIP REIMBURSEMEN
total $19,785 · program services $19,785
-
24e · All other expenses
total $11,734 · management and general $11,734
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $1,397,373 · end of year $1,561,289
-
3 · Pledges and grants receivable
end of year $500,000
-
4 · Accounts receivable
beginning of year $109,800 · end of year $205,500
-
9 · Prepaid expenses and deferred charges
beginning of year $10,000 · end of year $317,171
-
11 · Investments: publicly traded securities
end of year $497,908
-
17 · Accounts payable and accrued expenses
beginning of year $47,340 · end of year $94,080
-
19 · Deferred revenue
beginning of year $144,082 · end of year $157,474
-
27 · Net assets without donor restrictions
beginning of year $1,325,751 · end of year $1,832,406
-
28 · Net assets with donor restrictions
end of year $997,908
Mission and programs · 2024
Mission
THE MISSION OF NORTH EAST ALS CONSORTIUM (NEALS) IS TO TRANSLATE SCIENTIFIC ADVANCES INTO CLINCICAL RESEARCH AND NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE.
Activities or mission (Part I)
OUR MISSION IS TO TRANSLATE SCIENTIFIC ADVANCES INTO NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. TO ACHIEVE OUR GOAL, NEALS FUNCTIONS AS AN ACADEMIC RESEARCH CONSORTIUM AND A RESOURCE TOOL FOR THE ALS COMMUNITY. NEALS IS COMMITTED TO THE PRINCIPLES OF OPEN SCIENTIFIC COMMUNICATION, PEER REVIEW, FULL AND OPEN DISCLOSURE OF POTENTIAL CONFLICTS OF INTEREST, AND DEMOCRATIC GOVERNANCE OF ITS ORGANIZATION AND ACTIVITIES.
-
THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS.
Expenses $298,146 · Revenue $954,412
As filed on the 2024 return.
Listed in Part VII
-
Robert H Brownmd DphilROBERT H BROWNMD DPHIL
SAB, CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
Gale KittleGALE KITTLE
CLINICAL EVALUATOR MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Jeffrey RothsteinmdphdJEFFREY ROTHSTEINMDPHD
SAB, CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
Timothy Miller MD PhDTIMOTHY MILLER MD PHD
SAB, CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
Jinsy Andrews MD MscJINSY ANDREWS MD MSC
CO-CHAIR
- Total calculated
- $0
- Hours/week
- 5
-
Christina FournierCHRISTINA FOURNIER
INVESTIGATOR MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Nicole TurcotteNICOLE TURCOTTE
COORDINATOR MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Matthew HarmsMATTHEW HARMS
INVESTIGATOR MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Sabrina PaganoniSABRINA PAGANONI
INVESTIGATOR MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Zachary SimmonsZACHARY SIMMONS
INVESTIGATOR MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
James BerryJAMES BERRY
CO-CHAIR
- Total calculated
- $0
- Hours/week
- 5
-
Carly AllenCARLY ALLEN
DIRECTOR OF OPERATION
- Total calculated
- $0
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 17 November 2025
- IRS schema version
- 2024v5.2
- Source object
- 202503219349317765
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