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Nonprofiteer
← NEUROFIBROMATOSIS MIDWEST

Form 990 for tax year 2024

Filed by NEUROFIBROMATOSIS MIDWEST.

Totals

Total revenue
$327,237
Total expenses
$269,869
Contributions and grants received
$308,375
Grants paid
$52,096
Program service revenue
$0
Investment income
$6,225
Other revenue
$12,637
Total assets, end of year
$401,133
Total liabilities, end of year
$24,408
Net assets or fund balances, end of year
$376,725
Program services expenses (Part IX)
$219,298
Management and general expenses
$28,015
Fundraising expenses
$22,556
Program service expenses (Part III)
$219,298

Program services were 81.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $85,820

  • 1f · All other contributions, gifts and grants

    $222,555

  • 1g · Noncash contributions included above

    $10,350

  • 3 · Investment income

    total $6,225 · excluded $6,225

  • 8a · Fundraising events: gross income

    $26,457

  • 8a · Fundraising events: contributions included on line 1c

    $85,820

  • 8b · Fundraising events: direct expenses

    $14,861

  • 8c · Net income from fundraising events

    total $11,596

  • 10a · Gross sales of inventory

    $2,142

  • 10b · Cost of goods sold

    $1,101

  • 10c · Net income from sales of inventory

    total $1,041 · related or exempt $1,041

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $23,500 · program services $23,500

  • 2 · Grants to domestic individuals

    total $28,596 · program services $28,596

  • 5 · Compensation of officers, directors and key employees

    total $75,000 · program services $67,500 · management and general $7,500

  • 7 · Other salaries and wages

    total $35,279 · program services $15,209 · management and general $6,837 · fundraising $13,233

  • 10 · Payroll taxes

    total $8,436 · program services $5,738 · management and general $1,349 · fundraising $1,349

  • 11c · Fees: accounting

    total $3,950 · program services $2,050 · management and general $1,900

  • 11d · Fees: lobbying

    total $10,350 · program services $10,350

  • 11g · Fees: other

    total $7,274 · program services $7,274

  • 12 · Advertising and promotion

    total $111 · program services $111

  • 13 · Office expenses

    total $8,244 · program services $6,157 · management and general $1,043 · fundraising $1,044

  • 14 · Information technology

    total $13,327 · program services $9,196 · management and general $1,731 · fundraising $2,400

  • 16 · Occupancy

    total $16,349 · program services $9,809 · management and general $4,905 · fundraising $1,635

  • 17 · Travel

    total $8,859 · program services $8,859

  • 19 · Conferences, conventions and meetings

    total $175 · program services $175

  • 21 · Payments to affiliates

    total $15,816 · program services $15,816

  • 22 · Depreciation, depletion and amortization

    total $857 · program services $857

  • 23 · Insurance

    total $1,745 · program services $1,368 · management and general $226 · fundraising $151

  • 24a · Other expenses: BANK AND CREDIT CARD FEES

    total $7,388 · program services $2,586 · management and general $2,291 · fundraising $2,511

  • 24b · Other expenses: TELEPHONE

    total $1,554 · program services $1,088 · management and general $233 · fundraising $233

  • 24c · Other expenses: CONTRACTORS

    total $1,067 · program services $1,067

  • 24d · Other expenses: MISCELLANEOUS

    total $1,053 · program services $1,053

  • 24e · All other expenses

    total $939 · program services $939

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $67,656 · end of year $87,677

  • 10a · Land, buildings and equipment: cost or other basis

    $4,283

  • 10b · Land, buildings and equipment: accumulated depreciation

    $2,382

  • 10c · Land, buildings and equipment, net

    beginning of year $2,758 · end of year $1,901

  • 11 · Investments: publicly traded securities

    beginning of year $294,756 · end of year $291,332

  • 15 · Other assets

    beginning of year $1,100 · end of year $20,223

  • 17 · Accounts payable and accrued expenses

    beginning of year $951 · end of year $5,285

  • 25 · Other liabilities

    end of year $19,123

  • 27 · Net assets without donor restrictions

    beginning of year $365,319 · end of year $376,725

Mission and programs · 2024

Mission

TO IMPROVE THE LIVES OF CHILDREN, ADULTS, AND FAMILIES IMPACTED BY NEUROFIBROMATOSIS BY FOCUSING ON AND IMPROVING CLINICS, AWARENESS, RESEARCH, EDUCATION AND SUPPORT IN THE STATES OF ILLINOIS, INDIANA, IOWA, KENTUCKY, WISCONSIN, AND THE EASTERN HALF OF MISSOURI.

Activities or mission (Part I)

EDUCATION AND SUPPORT FOR THOSE WITH NEUROFIBROMATOSIS.

  • RESEARCH/CLINICS/IMPROVED CARE NEUROFIBROMATOSIS MIDWEST PROVIDES DIRECT GRANTS FOR RESEARCH AND RESEARCH SUPPORT. WE ALSO WORK WITH CLINICS IN OUR REGION TO IMPROVE CARE AND ACCESS TO CARE. ADDITIONALLY, WE WORK WITH THE NF COMMUNITY AND MANY OTHER RESOURCES ON ADDITIONAL PROGRAMS OR INITIATIVES TO IMPROVE THE QUALITY OF LIFE AND CARE FOR NF PATIENTS AND THEIR FAMILIES.

    Expenses $209,298 · Grants $42,096

  • SUPPORT/EDUCATION/AWARENESS NEUROFIBROMATOSIS MIDWEST PROVIDES EDUCATION TO INDIVIDUALS AND FAMILIES WITH NEUROFIBROMATOSIS, TO THE MEDICAL COMMUNITY AND TO THE PUBLIC THROUGH AN ANNUAL SYMPOSIUM; SMALLER LOCAL MEETINGS; AND PRINTED AND ONLINE MATERIALS. WE PROVIDE FREE PACKETS OF INFORMATION TO NEWLY DIAGNOSED FAMILIES AND PHONE AND ONLINE SUPPORT. AN ANNUAL GRANT IS PROVIDED TO SEND CHILDREN WITH NF TO CAMP. WE ALSO PROVIDE MATERIALS AND OPPORTUNITIES TO RAISE AWARENESS.

    Expenses $10,000 · Grants $10,000

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Diana Haberkamp

    EXECUTIVE DI

    Total calculated
    $75,000
    From this org
    $75,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Denise Dulceak

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    0.5

  • Gail Mavrogenes

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Lesli Wegner

    SECRETARY

    Total calculated
    $0
    Hours/week
    0.5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2024
Filed
4 August 2026
IRS schema version
2024v5.0
Source object
202642259349301244

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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