Totals
- Total revenue
- $421,071
- Total expenses
- $350,130
- Contributions and grants received
- $380,719
- Grants paid
- $62,123
- Program service revenue
- $4,181
- Investment income
- $0
- Other revenue
- $36,171
- Total assets, end of year
- $488,967
- Total liabilities, end of year
- $11,215
- Net assets or fund balances, end of year
- $477,752
- Program services expenses (Part IX)
- $276,764
- Management and general expenses
- $19,979
- Fundraising expenses
- $53,387
- Program service expenses (Part III)
- $276,764
Program services were 79.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1c · Fundraising events
$82,537
-
1f · All other contributions, gifts and grants
$298,182
-
2a · Program service revenue: PATIENT CONFERENCE
total $4,181 · related or exempt $4,181
-
8a · Fundraising events: gross income
$45,187
-
8a · Fundraising events: contributions included on line 1c
$82,537
-
8b · Fundraising events: direct expenses
$9,016
-
8c · Net income from fundraising events
total $36,171 · excluded $36,171
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $18,855 · program services $18,855
-
3 · Grants to foreign organizations and individuals
total $43,268 · program services $43,268
-
7 · Other salaries and wages
total $99,937 · program services $65,126 · management and general $1,062 · fundraising $33,749
-
9 · Other employee benefits
total $424 · program services $424
-
10 · Payroll taxes
total $8,068 · program services $5,486 · fundraising $2,582
-
11b · Fees: legal
total $4,494 · management and general $3,494 · fundraising $1,000
-
11c · Fees: accounting
total $2,600 · management and general $2,600
-
11e · Fees: professional fundraising services
total $13,750 · fundraising $13,750
-
11g · Fees: other
total $86,939 · program services $86,939
-
12 · Advertising and promotion
total $3,499 · program services $499 · management and general $3,000
-
13 · Office expenses
total $3,137 · program services $377 · management and general $2,760
-
14 · Information technology
total $4,745 · program services $1,650 · management and general $2,066 · fundraising $1,029
-
17 · Travel
total $21,950 · program services $20,726 · fundraising $1,224
-
19 · Conferences, conventions and meetings
total $30,020 · program services $29,870 · management and general $150
-
23 · Insurance
total $3,098 · program services $190 · management and general $2,908
-
24a · Other expenses: RESEARCH EQUIPMENT
total $3,093 · program services $3,093
-
24b · Other expenses: BANK SERVICE CHARGE
total $1,492 · management and general $1,439 · fundraising $53
-
24c · Other expenses: MEMBERSHIPS
total $500 · management and general $500
-
24d · Other expenses: EDUCATION RESOURCES
total $261 · program services $261
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $402,586 · end of year $475,504
-
4 · Accounts receivable
beginning of year $4,225 · end of year $9,463
-
9 · Prepaid expenses and deferred charges
end of year $4,000
-
17 · Accounts payable and accrued expenses
end of year $799
-
19 · Deferred revenue
end of year $10,416
-
27 · Net assets without donor restrictions
beginning of year $188,193 · end of year $265,648
-
28 · Net assets with donor restrictions
beginning of year $218,618 · end of year $212,104
Mission and programs · 2023
Mission
Patient support and research for VCP Disease
-
Creation of Scientific and Clinical Trial Tools: Cure VCP Disease used contract researchers to create video measures and two cell models, derived from patient's blood, that will be used in the discovery of treatments for VCP disease. To date, these tools have been used to launch three projects aimed at accelerating treatment development.
Expenses $86,938
-
Sponsorship of Research: Cure VCP Disease is collaborating to investigate the use of gene editing to correct pathogenic variants of the VCP gene. This approach could bring a treatment to 70% of known patients with VCP disease.
Expenses $53,268 · Grants $53,268
-
Connections Conference: A VCP Family Gathering - Cure VCP Disease held an educational conference with the topics of understanding the disease, mental health, assistive devices, financial planning, and community building. There were 70+ people in attendance.
Expenses $29,870 · Revenue $4,181
-
Grants $8,855Advertising & marketing $499Information Technology $1,650Office Expenses $377Educational resources $261Program Equip. & Mater. $3,093Benefits $424Payroll Taxes $5,486Wages $65,126Workers Comp. Insurance $190Travel $20,726
Expenses $106,688 · Grants $8,855
As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Nathan PeckNATHAN PECK
CEO
- Total calculated
- $0
- Hours/week
- 15
-
Allison PeckALLISON PECK
CFO
- Total calculated
- $0
- Hours/week
- 15
-
Amy CaseyAMY CASEY
SECRETARY
- Total calculated
- $0
- Hours/week
- 10
-
Kelly GoldKELLY GOLD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Brandon FeldtBRANDON FELDT
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 10
-
Sara BuhrSARA BUHR
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Maureen McArthur HartMAUREEN MCARTHUR HART
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
David KaminskyDAVID KAMINSKY
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Alexis ElderALEXIS ELDER
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$10,000
A 50-50 MATCHING GRANT TO A YOUNG INVESTIGATOR PURSING GENE EDITING
-
THE PURPOSE OF THE STUDY IS TO LEARN ABOUT HOW VCP DISEASE CHANGES PEOPLE'S STRENGTH AND MOVEMENTS AND AFFECTS THEIR DAILY LIFE. THIS INFORMATION WILL HELP IMPROVE CARE. IT WILL ALSO HELP RESEARCHERS PLAN AND DESIGN FUTURE RESEARCH STUDIES TO HELP THOSE WITH VCP DISEASE.
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 9 May 2024
- IRS schema version
- 2023v5.0
- Source object
- 202431349349300428
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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