Totals
- Total revenue
- $129,152
- Total expenses
- $102,871
- Contributions and grants received
- $102,004
- Grants paid
- $99,966
- Program service revenue
- not reported
- Membership dues (line 3)
- not reported
- Investment income (line 4)
- not reported
- Gain or loss on sale of assets (line 5c)
- $0
- Gaming and fundraising events, net (line 6d)
- $27,148
- Gross profit on inventory sales (line 7c)
- $0
- Other revenue (line 8)
- not reported
- Total assets, end of year
- $40,887
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $40,887
- Program service expenses (Part III)
- $99,966
Program services were 97.2% of total expenses calculated — Part III's total program service expenses over total expenses, both as filed.
Mission and programs · 2023
Primary exempt purpose
Funding Research for Fam177A1 related disorder
-
Funded a research project at the University of Utah to discover potential treatments for FAM177A1 disorder doing a drug repurpose screen using drosphila. This benefitted the approximate 20 identified patients and countless others not yet identified
Expenses $75,605
-
We are a family-led all volunteer organization trying to cure our children's rare diseases. Perlara is a scientific organization that we consult with
Expenses $22,500
-
Syndicast Combined Brain and Global Genes
Expenses $1,861
As filed on the 2023 return.
Listed in Part IV
-
Jill Hawkins
Founder and President
- Total calculated
- $0
- Hours/week
- 25
-
Douglas Hawkins
Vice President
- Total calculated
- $0
- Hours/week
- 1
-
Michelle Brice
Advisor
- Total calculated
- $0
- Hours/week
- 1
-
Beth Sampson
Treasurer
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part IV of the Form 990-EZ: compensation, contributions to benefit plans, expense account, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total.
Grants on this return
No itemized grants to organizations on this return.
Provenance
- Return type
- form_990_ez
- Tax year
- 2023
- Filed
- 25 March 2024
- IRS schema version
- 2023v5.0
- Source object
- 202400859349200010
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
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