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Nonprofiteer
← CHILDRENS TUMOR FOUNDATION

Form 990 for tax year 2022

Filed by CHILDRENS TUMOR FOUNDATION.

Totals

Total revenue
$16,990,325
Total expenses
$15,815,548
Contributions and grants received
$15,521,908
Grants paid
$4,539,432
Program service revenue
$1,169,034
Investment income
$280,593
Other revenue
$18,790
Total assets, end of year
$32,079,774
Total liabilities, end of year
$4,527,792
Net assets or fund balances, end of year
$27,551,982
Program services expenses (Part IX)
$13,462,948
Management and general expenses
$1,154,773
Fundraising expenses
$1,197,827
Program service expenses (Part III)
$13,462,948

Program services were 85.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $23,817

  • 1c · Fundraising events

    $2,357,364

  • 1e · Government grants (contributions)

    $299,188

  • 1f · All other contributions, gifts and grants

    $12,841,539

  • 1g · Noncash contributions included above

    $46,450

  • 2a · Program service revenue: PARTICIPANT REVENUE

    total $1,169,034 · related or exempt $1,169,034

  • 3 · Investment income

    total $292,495 · excluded $292,495

  • 7a · Gross sales of assets other than inventory

    securities $330,725

  • 7b · Less cost or other basis and sales expenses

    securities $333,182 · other assets $9,445

  • 7c · Gain or loss

    securities -$2,457 · other assets -$9,445

  • 7d · Net gain or loss

    total -$11,902 · related or exempt -$9,445 · excluded -$2,457

  • 8a · Fundraising events: gross income

    $188,055

  • 8a · Fundraising events: contributions included on line 1c

    $2,357,364

  • 8b · Fundraising events: direct expenses

    $252,549

  • 8c · Net income from fundraising events

    total -$64,494 · excluded -$64,494

  • 10a · Gross sales of inventory

    $31,944

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $31,944 · related or exempt $31,944

  • 11a · Other revenue: RETURN OF UNUSED GRANTS

    total $51,340 · related or exempt $51,340

  • 11e · Other revenue, total

    $51,340

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $4,539,432 · program services $4,539,432

  • 5 · Compensation of officers, directors and key employees

    total $616,398 · program services $422,005 · management and general $82,987 · fundraising $111,406

  • 7 · Other salaries and wages

    total $3,653,215 · program services $3,112,115 · management and general $286,771 · fundraising $254,329

  • 8 · Pension plan contributions

    total $70,655 · program services $58,323 · management and general $8,476 · fundraising $3,856

  • 9 · Other employee benefits

    total $405,192 · program services $315,331 · management and general $49,860 · fundraising $40,001

  • 10 · Payroll taxes

    total $344,632 · program services $266,498 · management and general $42,995 · fundraising $35,139

  • 11b · Fees: legal

    total $3,952 · management and general $3,952

  • 11d · Fees: lobbying

    total $270,000 · program services $270,000

  • 11e · Fees: professional fundraising services

    total $100,000 · fundraising $100,000

  • 11f · Fees: investment management

    total $23,093 · management and general $23,093

  • 11g · Fees: other

    total $1,236,566 · program services $966,378 · management and general $154,671 · fundraising $115,517

  • 12 · Advertising and promotion

    total $165,669 · program services $117,797 · management and general $12,233 · fundraising $35,639

  • 13 · Office expenses

    total $469,078 · program services $355,884 · management and general $38,377 · fundraising $74,817

  • 14 · Information technology

    total $697,134 · program services $483,214 · management and general $127,773 · fundraising $86,147

  • 16 · Occupancy

    total $137,249 · program services $82,207 · management and general $32,775 · fundraising $22,267

  • 17 · Travel

    total $379,101 · program services $317,002 · management and general $22,715 · fundraising $39,384

  • 19 · Conferences, conventions and meetings

    total $1,470,174 · program services $1,221,351 · management and general $68,193 · fundraising $180,630

  • 22 · Depreciation, depletion and amortization

    total $108,734 · program services $59,804 · management and general $32,620 · fundraising $16,310

  • 23 · Insurance

    total $37,580 · program services $21,461 · management and general $10,330 · fundraising $5,789

  • 24a · Other expenses: FOOD AND BEVERAGE

    total $566,192 · program services $541,595 · management and general $20,672 · fundraising $3,925

  • 24b · Other expenses: DUES AND OTHER FEES

    total $271,884 · program services $177,575 · management and general $53,068 · fundraising $41,241

  • 24c · Other expenses: APPAREL

    total $132,982 · program services $92,988 · management and general $16,791 · fundraising $23,203

  • 24d · Other expenses: MISCELLANEOUS

    total $55,076 · program services $35,882 · management and general $11,914 · fundraising $7,280

  • 24e · All other expenses

    total $61,560 · program services $6,106 · management and general $54,507 · fundraising $947

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $3,376,893 · end of year $3,266,465

  • 2 · Savings and temporary cash investments

    beginning of year $15,249,203 · end of year $18,880,258

  • 3 · Pledges and grants receivable

    beginning of year $4,264,500 · end of year $2,932,510

  • 4 · Accounts receivable

    beginning of year $47,113 · end of year $50,111

  • 8 · Inventories for sale or use

    beginning of year $12,979 · end of year $1,270

  • 9 · Prepaid expenses and deferred charges

    beginning of year $371,447 · end of year $503,112

  • 10a · Land, buildings and equipment: cost or other basis

    $700,103

  • 10b · Land, buildings and equipment: accumulated depreciation

    $476,834

  • 10c · Land, buildings and equipment, net

    beginning of year $217,231 · end of year $223,269

  • 11 · Investments: publicly traded securities

    beginning of year $5,979,457 · end of year $6,186,270

  • 15 · Other assets

    beginning of year $81,978 · end of year $36,509

  • 17 · Accounts payable and accrued expenses

    beginning of year $700,070 · end of year $1,874,763

  • 18 · Grants payable

    beginning of year $1,326,906 · end of year $2,396,571

  • 19 · Deferred revenue

    beginning of year $82,225 · end of year $60,658

  • 25 · Other liabilities

    beginning of year $195,800 · end of year $195,800

  • 27 · Net assets without donor restrictions

    beginning of year $13,479,621 · end of year $14,334,113

  • 28 · Net assets with donor restrictions

    beginning of year $13,816,179 · end of year $13,217,869

Mission and programs · 2022

Mission

OUR MISSION: DRIVE RESEARCH, EXPAND KNOWLEDGE, AND ADVANCE CARE FOR THE NF COMMUNITY. OUR VISION: END NF.

Activities or mission (Part I)

THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO ENDING NEUROFIBROMATOSIS (NF). OUR MISSION IS TO: A.) FUND RESEARCH, B.) INCREASE PUBLIC AWARENESS, C.) SUPPORT PATIENTS AND FAMILIES, D.) ENCOURAGE ESTABLISHMENT OF NF CLINICS.

  • RESEARCH - THE CHILDREN'S TUMOR FOUNDATION SUPPORTS NF RESEARCH THROUGH A RANGE OF FUNDING MECHANISMS. OUR INVESTMENTS IN RESEARCH ARE THREE-FOLD: 1) TO ATTRACT TALENTED INVESTIGATORS TO NF RESEARCH; 2) TO SUPPORT INNOVATIVE RESEARCH; AND 3) TO FOSTER COLLABORATIVE EFFORTS TO FIND TREATMENTS AND CURES FOR NEUROFIBROMATOSIS. THE FOUNDATION HAS BEEN AT THE FOREFRONT OF KEY ADVANCES IN NF RESEARCH INCLUDING FUNDING THE LABORATORIES THAT DISCOVERED THE NF1 AND NF2 GENES, SUPPORTING GROUNDBREAKING CLINICAL TRIALS, AND ESTABLISHING THE FIRST NATIONWIDE NF CLINIC NETWORK AND NF PATIENT REGISTRY. THE FOUNDATION SPONSORS AN ANNUAL SCIENTIFIC CONFERENCE WHICH BRINGS RESEARCHERS TOGETHER TO DISCUSS THE LATEST SCIENTIFIC DEVELOPMENTS RELATED TO NF. ADDITONALLY, OUR PORGRAMS ARE DESIGNED TO INTEGRATE WITH AND SUPPORT LARGER FEDERALLY FUNDED PROJECTS THROUGH THE CONGRESSIONALLY DIRECTED MEDICAL RESEARCH PROGRAM (CDMRP) AND NIH.

    Expenses $9,427,331 · Grants $4,539,432 · Revenue $1,242,873

  • PUBLIC EDUCATION AND PATIENT SUPPORT - THE CHILDREN'S TUMOR FOUNDATION ENGAGES IN PUBLIC EDUCATION THROUGH ITS WEBSITE, QUARTERLY NEWSLETTERS, MEDIA COVERAGE, AND ITS NATIONAL PROGRAMS. THROUGH OUR NF ENDURANCE AND NF WALK PROGRAMS, THE FOUNDATION HIGHLIGHTS NF HEROES AND THEIR TRIUMPHANT SPIRITS. THE FOUNDATION ALSO SPONSORS BENEFIT DINNERS AND REGIONAL AND LOCAL EVENTS TO PROMOTE AWARENESS. THE CHILDREN'S TUMOR FOUNDATION IS DEDICATED TO SUPPORTING PATIENTS WITH NF AS WELL AS THEIR FAMILY MEMBERS. THROUGH THE NF CLINIC NETWORK AND THE ANNUAL NF FORUM, THE FOUNDATION BRINGS RESEARCHERS, PROVIDERS, AND FAMILIES TOGETHER TO DISCUSS DEVELOPMENTS IN TREATMENTS. THE FOUNDATION ALSO SPONSORS THE ANNUAL NF CAMP WHICH BRINGS NF TEENS TOGETHER FOR ONE WEEK TO ENJOY THE SUPPORT AND FELLOWSHIP OF THEIR PEERS. REGIONAL SYMPOSIA ARE ALSO HELD THROUGHOUT THE YEAR.

    Expenses $4,035,617

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • ANITA GRIBBEN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • CAROL KALAGHER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • CAROLYN SETLOW

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • DANIEL ALTMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • DANIEL GILBERT

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • ED STERN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • EMILY PARKER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • FRANK HAUGHTON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • GABRIEL GROISMAN

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    1

  • GEORGE THURONYI

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • JOHN GOLFINOS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • KENNETH RUDD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • LINDA H MARTIN

    CHAIR EMERITUS

    Total calculated
    $0
    Hours/week
    1

  • LIZ RODBELL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • MICHAEL PETERSON

    BOARD MEMBER (OUTGOING)

    Total calculated
    $0
    Hours/week
    1

  • NATE WALKER

    BOARD MEMBER (OUTGOING)

    Total calculated
    $0
    Hours/week
    1

  • RANDALL STANICKY

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • RB HARRISON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • RICHARD HORVITZ

    CHAIR EMERITUS

    Total calculated
    $0
    Hours/week
    1

  • RICHARD SOLL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • ROBERT BRAININ

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • ROGER - KETCHA NGASSAM

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SALLY GOTTESMAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SCOTT PLOTKIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SIMONE MANSO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • STEVEN MCKENZIE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • STUART SUNA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • SUZANNE EARLE

    BOARD MEMBER (OUTGOING)

    Total calculated
    $0
    Hours/week
    1

  • TERRI RAWSON

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • TRACY GALLOWAY

    CHAIR

    Total calculated
    $0
    Hours/week
    1

  • WADE CLAPP

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1

  • ANNETTE BAKKER

    PRESIDENT

    Total calculated
    $412,040
    From this org
    $372,598
    From related orgs
    $0
    Other
    $39,442
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $361,194
    Bonus
    $11,404
    Other
    $0
    Deferred
    $12,200
    Nontaxable benefits
    $27,242
    Filer's total
    $412,040

  • SARAH BOURNE

    VP, FINANCE AND OPERATIONS

    Total calculated
    $182,353
    From this org
    $175,606
    From related orgs
    $0
    Other
    $6,747
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $168,664
    Bonus
    $6,942
    Other
    $0
    Deferred
    $6,747
    Nontaxable benefits
    $0
    Filer's total
    $182,353

  • BARBARA GALLAGHER

    VICE PRESIDENT OF DEV.

    Total calculated
    $199,364
    From this org
    $160,328
    From related orgs
    $0
    Other
    $39,036
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $154,338
    Bonus
    $5,990
    Other
    $0
    Deferred
    $9,844
    Nontaxable benefits
    $29,192
    Filer's total
    $199,364

  • MICHELE PRZYPYSZNY

    CHIEF ADVANCEMENT OFFICER

    Total calculated
    $286,028
    From this org
    $266,623
    From related orgs
    $0
    Other
    $19,405
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $256,885
    Bonus
    $9,738
    Other
    $0
    Deferred
    $9,844
    Nontaxable benefits
    $9,561
    Filer's total
    $286,028

  • PATRICE PANCZA

    VP, EXTERNAL RELATIONS

    Total calculated
    $150,639
    From this org
    $136,829
    From related orgs
    $0
    Other
    $13,810
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $131,538
    Bonus
    $5,291
    Other
    $0
    Deferred
    $5,486
    Nontaxable benefits
    $8,324
    Filer's total
    $150,639

  • SALVATORE LA ROSA

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $259,683
    From this org
    $240,109
    From related orgs
    $0
    Other
    $19,574
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $233,340
    Bonus
    $6,769
    Other
    $0
    Deferred
    $9,680
    Nontaxable benefits
    $9,894
    Filer's total
    $259,683

  • SIMON VUKELJ

    CHIEF MARKETING OFFICER

    Total calculated
    $259,447
    From this org
    $231,365
    From related orgs
    $0
    Other
    $28,082
    Hours/week
    37.5

    Schedule J breakdown matched by us

    Base
    $222,878
    Bonus
    $8,487
    Other
    $0
    Deferred
    $9,331
    Nontaxable benefits
    $18,751
    Filer's total
    $259,447

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
BONUSES WERE APPROVED BY THE BOARD OF DIRECTORS.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
7 November 2023
IRS schema version
2022v5.0
Source object
202333149349302703

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