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← AMERICAN EPILEPSY SOCIETY

Form 990 for tax year 2024

Filed by AMERICAN EPILEPSY SOCIETY.

Totals

Total revenue
$11,878,127
Total expenses
$11,608,562
Contributions and grants received
$2,636,436
Grants paid
$1,936,470
Program service revenue
$8,130,603
Investment income
$884,891
Other revenue
$226,197
Total assets, end of year
$22,020,378
Total liabilities, end of year
$2,630,487
Net assets or fund balances, end of year
$19,389,891
Program services expenses (Part IX)
$10,296,488
Management and general expenses
$1,149,736
Fundraising expenses
$162,338
Program service expenses (Part III)
$10,296,488

Program services were 88.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1d · Related organizations

    $237,500

  • 1e · Government grants (contributions)

    $274,055

  • 1f · All other contributions, gifts and grants

    $2,124,881

  • 2a · Program service revenue: ANNUAL MEETING

    total $4,865,356 · related or exempt $4,865,356

  • 2b · Program service revenue: EXHIBITOR FEES

    total $1,378,047 · related or exempt $1,378,047

  • 2c · Program service revenue: MEMBERSHIP DUES

    total $1,200,489 · related or exempt $1,200,489

  • 2d · Program service revenue: PUBLICATIONS AND PRODUCTS

    total $544,137 · related or exempt $544,137

  • 2e · Program service revenue: ADVERTISING REVENUE

    total $142,574 · unrelated business $142,574

  • 3 · Investment income

    total $548,259 · excluded $548,259

  • 5 · Royalties

    total $84,119 · excluded $84,119

  • 7a · Gross sales of assets other than inventory

    securities $1,478,760

  • 7b · Less cost or other basis and sales expenses

    securities $1,142,128

  • 7c · Gain or loss

    securities $336,632

  • 7d · Net gain or loss

    total $336,632 · excluded $336,632

  • 11a · Other revenue: OTHER INCOME

    total $142,078 · excluded $142,078

  • 11e · Other revenue, total

    $142,078

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,687,204 · program services $1,687,204

  • 2 · Grants to domestic individuals

    total $220,466 · program services $220,466

  • 3 · Grants to foreign organizations and individuals

    total $28,800 · program services $28,800

  • 5 · Compensation of officers, directors and key employees

    total $555,447 · program services $277,724 · management and general $166,634 · fundraising $111,089

  • 7 · Other salaries and wages

    total $2,927,261 · program services $2,676,179 · management and general $251,034 · fundraising $48

  • 8 · Pension plan contributions

    total $90,246 · program services $81,126 · management and general $8,453 · fundraising $667

  • 9 · Other employee benefits

    total $119,373 · program services $108,987 · management and general $10,313 · fundraising $73

  • 10 · Payroll taxes

    total $217,459 · program services $185,166 · management and general $25,704 · fundraising $6,589

  • 11b · Fees: legal

    total $33,453 · management and general $33,453

  • 11c · Fees: accounting

    total $33,843 · management and general $33,843

  • 11f · Fees: investment management

    total $50,958 · management and general $50,958

  • 11g · Fees: other

    total $910,957 · program services $757,750 · management and general $153,207

  • 12 · Advertising and promotion

    total $34,721 · program services $34,721

  • 13 · Office expenses

    total $300,270 · program services $243,846 · management and general $56,295 · fundraising $129

  • 14 · Information technology

    total $338,496 · program services $332,615 · management and general $2,481 · fundraising $3,400

  • 16 · Occupancy

    total $224,298 · program services $190,990 · management and general $26,512 · fundraising $6,796

  • 17 · Travel

    total $204,342 · program services $110,188 · management and general $94,154

  • 19 · Conferences, conventions and meetings

    total $2,650,696 · program services $2,549,679 · management and general $71,141 · fundraising $29,876

  • 22 · Depreciation, depletion and amortization

    total $97,529 · program services $83,046 · management and general $11,528 · fundraising $2,955

  • 23 · Insurance

    total $78,426 · program services $51,637 · management and general $26,789

  • 24a · Other expenses: DUES AND SUBSCRIPTIONS

    total $260,416 · program services $207,071 · management and general $53,345

  • 24b · Other expenses: PUBLICATIONS, PRINTING,

    total $134,936 · program services $129,702 · management and general $5,234

  • 24c · Other expenses: STAFF DEVELOPMENT

    total $23,620 · program services $20,112 · management and general $2,792 · fundraising $716

  • 24d · Other expenses: CONTINUING MEDICAL EDUC

    total $22,964 · program services $22,964

  • 24e · All other expenses

    total $362,381 · program services $296,515 · management and general $65,866

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $3,809,803 · end of year $2,732,855

  • 4 · Accounts receivable

    beginning of year $137,967 · end of year $833,424

  • 9 · Prepaid expenses and deferred charges

    beginning of year $433,736 · end of year $373,483

  • 10a · Land, buildings and equipment: cost or other basis

    $432,349

  • 10b · Land, buildings and equipment: accumulated depreciation

    $349,821

  • 10c · Land, buildings and equipment, net

    beginning of year $94,131 · end of year $82,528

  • 11 · Investments: publicly traded securities

    beginning of year $15,612,947 · end of year $17,425,724

  • 15 · Other assets

    beginning of year $216,532 · end of year $572,364

  • 17 · Accounts payable and accrued expenses

    beginning of year $408,319 · end of year $334,936

  • 19 · Deferred revenue

    beginning of year $1,647,040 · end of year $1,698,650

  • 25 · Other liabilities

    beginning of year $195,660 · end of year $596,901

  • 27 · Net assets without donor restrictions

    beginning of year $11,175,370 · end of year $11,861,408

  • 28 · Net assets with donor restrictions

    beginning of year $6,878,727 · end of year $7,528,483

Mission and programs · 2024

Mission

THE AMERICAN EPILEPSY SOCIETY PROMOTES RESEARCH AND EDUCATION FOR PROFESSIONALS DEDICATED TO THE PREVENTION, TREATMENT, AND CURE OF EPILEPSY.

Activities or mission (Part I)

A COMMUNITY OF PHYSICIANS, SCIENTISTS, ADVANCED PRACTICE PROVIDERS, NURSES, PSYCHIATRISTS, PSYCHOLOGISTS, ENGINEERS, PHARMACISTS, ADVOCATES, AND OTHER PROFESSIONALS ENGAGED IN THE UNDERSTANDING, DIAGNOSIS, STUDY, PREVENTION, TREATMENT, AND CURE OF EPILEPSY.

  • MEETING FOR MEDICAL PROFESSIONALS TO ENHANCE KNOWLEDGE ABOUT THE LATEST THERAPIES TO TREAT EPILEPSY AND STEPS TOWARD FINDING A CURE FOR EPILEPSY.

    Expenses $4,808,261 · Grants $164,091 · Revenue $6,243,403

  • CONTINUING MEDICAL EDUCATION FOR MEDICAL PROFESSIONALS, WEBSITE TO EDUCATE THE PUBLIC AND MEMBERS, AND OTHER PROGRAMS AIMED TO FURTHERING EPILEPSY THERAPIES.

    Expenses $3,368,350 · Grants $173,779 · Revenue $1,744,626

  • RESEARCH GEARED TOWARDS FINDING A CURE FOR EPILEPSY AND NEW, MORE EFFECTIVE TREATMENTS FOR THE DISEASE.

    Expenses $2,119,877 · Grants $1,598,600

As filed on the 2024 return.

Listed in Part VII

  • Howard P Goodkin MD PhD Faes

    PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • Jack M Parent MD

    FIRST VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • David M Labiner MD Faes

    SECOND VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    5
  • William H Theodore MD Faes

    PRESIDENT EMERITUS

    Total calculated
    $0
    Hours/week
    5
  • Fred A Lado MD PhD Faes

    TREASURER

    Total calculated
    $0
    Hours/week
    5
  • Kelly G Knupp MD Mscs Faes

    TREASURER ELECT

    Total calculated
    $0
    Hours/week
    1
  • Viji Santhakumar PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Barbara C Jobst MD Faes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Renee A Shellhaas MD Ms Faes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Barry E Gidal Pharmd Faes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • David G Vossler MD Faes

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1
  • Eileen Murray

    CEO UNTIL DEC 2024

    Total calculated
    $501,808
    From this org
    $466,434
    From related orgs
    $0
    Other
    $35,374
    Hours/week
    45 + 5 related

    Schedule J breakdown matched by us

    Base
    $386,053
    Bonus
    $57,908
    Other
    $22,473
    Deferred
    $12,400
    Nontaxable benefits
    $22,974
    Filer's total
    $501,808
  • Wendy-Jo Toyama MBA Fasae Cae

    CEO SINCE NOV 2024

    Total calculated
    $61,045
    From this org
    $58,974
    From related orgs
    $0
    Other
    $2,071
    Hours/week
    45 + 5 related
  • James Polous

    DIRECTOR, TECHNOLOGY SOLUTIONS

    Total calculated
    $203,164
    From this org
    $171,656
    From related orgs
    $0
    Other
    $31,508
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $166,534
    Bonus
    $4,922
    Other
    $200
    Deferred
    $6,866
    Nontaxable benefits
    $24,642
    Filer's total
    $203,164
  • Christina Graham

    DIRECTOR, EDUCATION

    Total calculated
    $200,698
    From this org
    $163,255
    From related orgs
    $0
    Other
    $37,443
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $158,374
    Bonus
    $4,681
    Other
    $200
    Deferred
    $6,530
    Nontaxable benefits
    $30,913
    Filer's total
    $200,698
  • Shawna Strickland

    ASSOCIATE EXECUTIVE DIRECTOR

    Total calculated
    $261,927
    From this org
    $223,016
    From related orgs
    $0
    Other
    $38,911
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $201,884
    Bonus
    $20,967
    Other
    $165
    Deferred
    $8,920
    Nontaxable benefits
    $29,991
    Filer's total
    $261,927
  • Joy Keller

    SENIOR MANAGER, CLINICAL

    Total calculated
    $155,284
    From this org
    $127,012
    From related orgs
    $0
    Other
    $28,272
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $123,171
    Bonus
    $3,641
    Other
    $200
    Deferred
    $5,080
    Nontaxable benefits
    $23,192
    Filer's total
    $155,284
  • Christine Melendes

    ASSOCIATE EXECUTIVE DIRECTOR

    Total calculated
    $142,073
    From this org
    $136,458
    From related orgs
    $0
    Other
    $5,615
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

Provenance

Return type
form_990
Tax year
2024
Filed
28 April 2026
IRS schema version
2024v5.5
Source object
202601219349301675

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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