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Nonprofiteer
← AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION

Form 990 for tax year 2023

Filed by AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION.

Totals

Total revenue
$2,406,303
Total expenses
$2,165,985
Contributions and grants received
$2,327,167
Grants paid
$68,000
Program service revenue
$0
Investment income
$68,472
Other revenue
$10,664
Total assets, end of year
$2,931,042
Total liabilities, end of year
$473,476
Net assets or fund balances, end of year
$2,457,566
Program services expenses (Part IX)
$1,934,347
Management and general expenses
$112,852
Fundraising expenses
$118,786
Program service expenses (Part III)
$1,934,347

Program services were 89.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1b · Membership dues

    $655,000

  • 1f · All other contributions, gifts and grants

    $1,672,167

  • 3 · Investment income

    total $68,472 · excluded $68,472

  • 11a · Other revenue: MISCELLANEOUS

    total $6,724 · related or exempt $6,724

  • 11b · Other revenue: CASH BACK BONUS

    total $3,940 · related or exempt $3,940

  • 11e · Other revenue, total

    $10,664

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $68,000 · program services $68,000

  • 5 · Compensation of officers, directors and key employees

    total $248,443 · program services $232,583 · management and general $7,930 · fundraising $7,930

  • 7 · Other salaries and wages

    total $829,287 · program services $756,864 · management and general $37,134 · fundraising $35,289

  • 8 · Pension plan contributions

    total $16,321 · program services $14,397 · management and general $1,257 · fundraising $667

  • 9 · Other employee benefits

    total $73,681 · program services $66,657 · management and general $3,908 · fundraising $3,116

  • 10 · Payroll taxes

    total $79,809 · program services $69,434 · management and general $3,192 · fundraising $7,183

  • 11b · Fees: legal

    total $4,269 · management and general $4,269

  • 11c · Fees: accounting

    total $17,635 · management and general $17,635

  • 11g · Fees: other

    total $408,235 · program services $371,094 · fundraising $37,141

  • 12 · Advertising and promotion

    total $13,855 · program services $13,855

  • 13 · Office expenses

    total $25,344 · program services $21,861 · management and general $660 · fundraising $2,823

  • 14 · Information technology

    total $12,432 · program services $11,850 · management and general $291 · fundraising $291

  • 16 · Occupancy

    total $49,601 · program services $46,171 · management and general $2,318 · fundraising $1,112

  • 17 · Travel

    total $51,144 · program services $46,228 · management and general $2,315 · fundraising $2,601

  • 19 · Conferences, conventions and meetings

    total $101,312 · program services $95,644 · management and general $2,715 · fundraising $2,953

  • 22 · Depreciation, depletion and amortization

    total $7,800 · program services $4,680 · management and general $1,560 · fundraising $1,560

  • 23 · Insurance

    total $7,448 · program services $3,724 · management and general $1,862 · fundraising $1,862

  • 24a · Other expenses: DUES AND SUBSCRIPTIONS

    total $98,192 · program services $82,338 · management and general $4,885 · fundraising $10,969

  • 24b · Other expenses: BOARD EXPENSES

    total $17,232 · management and general $17,232

  • 24c · Other expenses: EQUIPMENT MAINTENANCE

    total $13,585 · program services $12,227 · management and general $679 · fundraising $679

  • 24d · Other expenses: FILING FEES

    total $5,761 · program services $2,814 · management and general $1,540 · fundraising $1,407

  • 24e · All other expenses

    total $16,599 · program services $13,926 · management and general $1,470 · fundraising $1,203

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,248,091 · end of year $509,015

  • 2 · Savings and temporary cash investments

    beginning of year $1,021,517 · end of year $1,982,486

  • 3 · Pledges and grants receivable

    end of year $9,057

  • 10a · Land, buildings and equipment: cost or other basis

    $74,934

  • 10b · Land, buildings and equipment: accumulated depreciation

    $66,082

  • 10c · Land, buildings and equipment, net

    beginning of year $15,424 · end of year $8,852

  • 15 · Other assets

    beginning of year $459,627 · end of year $421,632

  • 17 · Accounts payable and accrued expenses

    beginning of year $67,784 · end of year $51,844

  • 25 · Other liabilities

    beginning of year $459,627 · end of year $421,632

  • 27 · Net assets without donor restrictions

    beginning of year $1,949,957 · end of year $2,143,858

  • 28 · Net assets with donor restrictions

    beginning of year $267,291 · end of year $313,708

Mission and programs · 2023

Mission

TO LEAD THE FIGHT AGAINST AUTOIMMUNE DISEASE BY ADVOCATING AND COLLABORATING TO IMPROVE HEALTHCARE, ADVANCE RESEARCH, AND EMPOWER THE COMMUNITY THROUGH EVERY STEP OF THE JOURNEY.

Activities or mission (Part I)

THE AUTOIMMUNE ASSOCIATION LEADS THE FIGHT AGAINST AUTOIMMUNE DISEASE BY ADVOCATING AND COLLABORATING TO IMPROVE HEALTHCARE, ADVANCE RESEARCH, AND EMPOWER THE COMMUNITY THROUGH EVERY STEP OF THE JOURNEY.

  • AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION'S EDUCATION PROGRAM FOCUSES ON STAKEHOLDER EDUCATION GEARED TOWARDS THOSE LIVING WITH AUTOIMMUNE DISEASE AND THEIR FAMILIES, CAREGIVERS, AND PROVIDERS. AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION SPONSORS NATIONAL BRIEFINGS, SUMMITS, WEBINARS, FORUMS, CONFERENCES, AND SCIENTIFIC MEETINGS THAT PROVIDE TIMELY AND RELAVANT INFORMATION TO THE VARIOUS AUTOIMMUNE DISEASE COMMUNITIES.

    Expenses $812,075 · Grants $500

  • AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION ADVOCATES FOR ISSUES OF IMPORTANCE TO THE AUTOIMMUNE COMMUNITY AT BOTH THE STATE AND FEDERAL LEVEL THROUGH MEDIA CAMPAIGNS, COALITION MEETINGS, LETTERS, ONLINE BRIEFINGS, AND WEBINARS. AMERICAN AUTOIMMUNE AND RELATED DISEASES ASSOCIATION LEADS THE NATIONAL COALITION OF AUTOIMMUNE PATIENT GROUPS, A 50-MEMBER COALITION REPRESENTING AUTOIMMUNE-SPECIFIC PATIENT GROUPS THAT COME TOGETHER TO HIGHLIGHT ISSUES OF IMPORTANCE TO THE AUTOIMMUNE COMMUNITY.

    Expenses $841,055

  • AMERICAN AUTOIMMUNE RELATED DISEASES ASSOCIATION PROMOTES AND FACILITATES RESEARCH THROUGH THE AUTOIMMUNE REGISTRY NETWORK (ARNET) THAT MATCHES PATIENTS WITH CLINICAL TRIALS; DEFINING GAPS TO AUTOIMMUNE DIAGNOSES IN UNDERREPRESENTED COMMUNITIES; AND THROUGH COLLABERATION WITH THE NATIONAL INSTITUTE OF HEALTH.

    Expenses $281,217 · Grants $67,500

As filed on the 2023 return.

Listed in Part VII

  • Anna Ellis

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • Linda Roelans Oszust

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • Lilly Stairs

    CHAIRPERSON

    Total calculated
    $30,000
    From this org
    $30,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    2

  • Indie Lee

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Robert Phillips PhD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Mirta Avila Santos

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Sloane Salzburg

    VICE CHAIRPERSON

    Total calculated
    $0
    Hours/week
    2

  • Scott Williams

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Priya Patel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • David Ascik

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Molly Murray

    PRESIDENT & CEO

    Total calculated
    $229,547
    From this org
    $222,247
    From related orgs
    $0
    Other
    $7,300
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $207,247
    Bonus
    $15,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $7,300
    Filer's total
    $229,547

  • Olivia Casey

    SENIOR DIRECTOR OF PROGRAMS

    Total calculated
    $121,677
    From this org
    $116,758
    From related orgs
    $0
    Other
    $4,919
    Hours/week
    40

  • Cathleen Cruchon

    VICE PRESIDENT ACCOUNTING

    Total calculated
    $120,670
    From this org
    $113,370
    From related orgs
    $0
    Other
    $7,300
    Hours/week
    40

  • Laura Simpson

    COO

    Total calculated
    $151,651
    From this org
    $144,475
    From related orgs
    $0
    Other
    $7,176
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $144,475
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $7,176
    Filer's total
    $151,651

  • Virginia Ladd

    PRESIDENT (FORMER)

    Total calculated
    $43,434
    From this org
    $42,284
    From related orgs
    $0
    Other
    $1,150
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $42,284
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $1,150
    Filer's total
    $43,434

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
31 July 2025
IRS schema version
2023v6.0
Source object
202532259349301918

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