Form 990 for tax year 2023

Totals

Total revenue

$5,763,209

Total expenses

$5,927,044

Contributions and grants received

$5,625,923

Grants paid

$10,500

Program service revenue

$34,602

Investment income

$97,850

Other revenue

$4,834

Total assets, end of year

$8,042,398

Total liabilities, end of year

$4,384,450

Net assets or fund balances, end of year

$3,657,948

Program services expenses (Part IX)

$4,151,931

Management and general expenses

$1,234,684

Fundraising expenses

$540,429

Program service expenses (Part III)

$4,151,931

Program services were 70.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• Special project: Authored provided leadership, research, analysis, advocacy, and support for the following major projects: launched COVID-19 Trusted Messengers social campaign videos on the impact of high-risk populations, hosted listening tour of NHC members to promote health equity priorities in the patient community, published four research briefs, Co-authored five peer-reviewed publications on; Enhancing patient centricity of real-world data research, Developing patient-centered real-world evidence, Patient-Centered Core Impacts Sets, Co-creation of the Global Patient Experience Data Navigator.

  Expenses $2,617,552

• Conferences: The NHC held its annual 2-day Health Leadership Conference in Coral Gables, FL bringing over 130 CEO, senior staff, and Board volunteer attendees from NHC member organizations. The NHC hosted its 6th Annual Science of Patient Engagement Symposium at the National Press Club in Washington, DC, bringing together research leaders from all membership categories and various representatives and experts from the health care field. More than 150 scientists and patient advocates explored the timely topic of Patient Engagement in the Digital Health Era. The NHC hosted its inaugural Washington Representative Summer meeting in July bringing over 100 policy and government relations professionals to discuss health care legislative priorities. This was followed by the NHCs Annual Washington Representative Retreat held in Annapolis, MD in fall, bringing over 100 policy and government relations professionals from NHC members to provide input in developing NHCs legislative priorities.

  Expenses $770,561

• Member Services: The NHC provided information and support to members through policy and advocacy initiatives, legislative/regulatory activities, and technical support through the following member projects: continued execution of the NHCs 2022-2024 Strategic Plan; advanced the NHCs Health Equity initiative by developing and promoting policy recommendations for the four priority areas in the health equity consensus statement and published a report on Inclusive Workplaces: Building A Representative Workforce; execution of policy and advocacy initiatives and legislative/regulatory activities such as leading efforts on utilization management, strengthening the ACA marketplaces and Medicaid, securing provisions in the Inflation Reduction Act to help make drug prices more affordable for people with chronic conditions; technical support through member projects including Patient Organization (PO) Standards of Excellence Certification program, Washington Representatives Retreat and new Summer Meeting, affinity group educational webinars and meetings, Annual Revenue and Compensation Surveys, monthly policy action teams; continuing our work in areas such as health equity, patient Experience Mapping Toolbox and Patient-Centered Core Impact Sets (PC-CIS); and NHC staff participation in panels, task forces, advisory committees, and presentations in collaboration with governmental, business/industry, and other health care sector organizations.

  Expenses $763,818

As filed on the 2023 return.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• Lupus Foundation of America

  $10,000

Provenance

Return type

form_990

Tax year

2023

Filed

18 July 2024

IRS schema version

2023v5.1

Source object

202432069349300508

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