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Nonprofiteer
← SPASTIC PARAPLEGIA FOUNDATION INC

Form 990 for tax year 2025

Filed by SPASTIC PARAPLEGIA FOUNDATION INC.

Totals

Total revenue
$1,742,632
Total expenses
$1,418,562
Contributions and grants received
$1,590,580
Grants paid
$1,121,008
Program service revenue
$32,940
Investment income
$119,112
Other revenue
$0
Total assets, end of year
$3,551,338
Total liabilities, end of year
$1,334,190
Net assets or fund balances, end of year
$2,217,148
Program services expenses (Part IX)
$1,267,412
Management and general expenses
$86,865
Fundraising expenses
$64,285
Program service expenses (Part III)
$1,267,412

Program services were 89.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1a · Federated campaigns

    $0

  • 1b · Membership dues

    $0

  • 1c · Fundraising events

    $144,760

  • 1d · Related organizations

    $0

  • 1e · Government grants (contributions)

    $0

  • 1f · All other contributions, gifts and grants

    $1,445,820

  • 1g · Noncash contributions included above

    $161,389

  • 2a · Program service revenue: Program Fees for AC

    total $32,940 · related or exempt $32,940 · unrelated business $0 · excluded $0

  • 2f · All other program service revenue

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 3 · Investment income

    total $119,112 · related or exempt $119,112 · unrelated business $0 · excluded $0

  • 4 · Income from investment of tax-exempt bond proceeds

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 5 · Royalties

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 6a · Gross rents

    real property $0 · personal property $0

  • 6b · Less rental expenses

    real property $0 · personal property $0

  • 6c · Rental income or loss

    real property $0 · personal property $0

  • 6d · Net rental income or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 7a · Gross sales of assets other than inventory

    securities $0 · other assets $0

  • 7b · Less cost or other basis and sales expenses

    securities $0 · other assets $0

  • 7c · Gain or loss

    securities $0 · other assets $0

  • 7d · Net gain or loss

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $144,760

  • 8b · Fundraising events: direct expenses

    $0

  • 8c · Net income from fundraising events

    total $0 · unrelated business $0 · excluded $0

  • 9a · Gaming: gross income

    $0

  • 9b · Gaming: direct expenses

    $0

  • 9c · Net income from gaming

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 10a · Gross sales of inventory

    $0

  • 10b · Cost of goods sold

    $0

  • 10c · Net income from sales of inventory

    total $0 · related or exempt $0 · unrelated business $0 · excluded $0

  • 11e · Other revenue, total

    $0

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $963,238 · program services $963,238

  • 2 · Grants to domestic individuals

    total $0 · program services $0

  • 3 · Grants to foreign organizations and individuals

    total $157,770 · program services $157,770

  • 4 · Benefits paid to or for members

    total $0 · program services $0

  • 5 · Compensation of officers, directors and key employees

    total $30,700 · program services $4,633 · management and general $26,067 · fundraising $0

  • 6 · Compensation of disqualified persons

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 7 · Other salaries and wages

    total $20,000 · program services $0 · management and general $0 · fundraising $20,000

  • 8 · Pension plan contributions

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 9 · Other employee benefits

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 10 · Payroll taxes

    total $1,530 · program services $0 · management and general $0 · fundraising $1,530

  • 11a · Fees: management

    total $4,826 · program services $0 · management and general $4,826 · fundraising $0

  • 11b · Fees: legal

    total $2,670 · program services $0 · management and general $2,670 · fundraising $0

  • 11c · Fees: accounting

    total $37,848 · program services $0 · management and general $37,848 · fundraising $0

  • 11d · Fees: lobbying

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11e · Fees: professional fundraising services

    total $12,500 · fundraising $12,500

  • 11f · Fees: investment management

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 11g · Fees: other

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 12 · Advertising and promotion

    total $4,402 · program services $0 · management and general $0 · fundraising $4,402

  • 13 · Office expenses

    total $826 · program services $0 · management and general $140 · fundraising $686

  • 14 · Information technology

    total $15,862 · program services $3,467 · management and general $4,298 · fundraising $8,097

  • 15 · Royalties

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 16 · Occupancy

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 17 · Travel

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 18 · Travel or entertainment for public officials

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 19 · Conferences, conventions and meetings

    total $122,042 · program services $122,042 · management and general $0 · fundraising $0

  • 20 · Interest

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 21 · Payments to affiliates

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 22 · Depreciation, depletion and amortization

    total $0 · program services $0 · management and general $0 · fundraising $0

  • 23 · Insurance

    total $1,476 · program services $0 · management and general $1,476 · fundraising $0

  • 24a · Other expenses: Printing and Reproduction Costs

    total $25,780 · program services $11,762 · management and general $66 · fundraising $13,952

  • 24b · Other expenses: Other Expenses

    total $4,695 · program services $4,500 · management and general $195 · fundraising $0

  • 24c · Other expenses: Bank Service Charges

    total $8,186 · program services $0 · management and general $5,068 · fundraising $3,118

  • 24d · Other expenses: License, Permits and Charity Registration Filing Fees

    total $4,211 · program services $0 · management and general $4,211 · fundraising $0

  • 24e · All other expenses

    total $0 · program services $0 · management and general $0 · fundraising $0

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $1,424,121 · end of year $0

  • 2 · Savings and temporary cash investments

    beginning of year $0 · end of year $1,819,243

  • 3 · Pledges and grants receivable

    beginning of year $3,403 · end of year $4,143

  • 4 · Accounts receivable

    beginning of year $0 · end of year $0

  • 5 · Loans and receivables from officers and key people

    beginning of year $0 · end of year $0

  • 6 · Loans and receivables from disqualified persons

    beginning of year $0 · end of year $0

  • 7 · Other notes and loans receivable

    beginning of year $0 · end of year $0

  • 8 · Inventories for sale or use

    beginning of year $0 · end of year $0

  • 9 · Prepaid expenses and deferred charges

    beginning of year $0 · end of year $1,428

  • 11 · Investments: publicly traded securities

    end of year $0

  • 12 · Investments: other securities

    beginning of year $1,662,463 · end of year $1,726,524

  • 13 · Investments: program-related

    beginning of year $0 · end of year $0

  • 14 · Intangible assets

    beginning of year $0 · end of year $0

  • 15 · Other assets

    beginning of year $0 · end of year $0

  • 17 · Accounts payable and accrued expenses

    beginning of year $15,954 · end of year $5,079

  • 18 · Grants payable

    beginning of year $1,194,086 · end of year $1,329,111

  • 19 · Deferred revenue

    beginning of year $0 · end of year $0

  • 20 · Tax-exempt bond liabilities

    beginning of year $0 · end of year $0

  • 21 · Escrow or custodial account liability

    beginning of year $0 · end of year $0

  • 22 · Loans and payables to officers and key people

    beginning of year $0 · end of year $0

  • 23 · Secured mortgages and notes payable

    beginning of year $0 · end of year $0

  • 24 · Unsecured notes and loans payable

    beginning of year $0 · end of year $0

  • 25 · Other liabilities

    beginning of year $0

  • 27 · Net assets without donor restrictions

    beginning of year $1,829,947 · end of year $2,217,148

  • 28 · Net assets with donor restrictions

    beginning of year $50,000 · end of year $0

Mission and programs · 2025

Mission

1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones

Activities or mission (Part I)

1. To fund scientific research to discover the cures for hereditary spastic paraplegia and primary lateral sclerosis. 2. To provide information about the disorders to patients and their loved ones, and to the general public. 3. To provide emotional support to patients and their loved ones.

  • Withheld by Nonprofiteer: this text may name a private individual.

    Expenses $1,121,008 · Grants $1,121,008

  • The Foundation holds an annual conference each year for individuals suffering from the disease, their families, and caregivers. Researchers speak about primary lateral sclerosis and hereditary spastic paraplegia, including updates on the current state of their research. Attendees meet others affected by the disorders, typically the first time these individuals have met others with the same condition in person. Attendees pay a registration fee to attend.

    Expenses $122,042 · Revenue $32,350

  • The Foundation prints and distributes "Synapse", a periodical about the disorders, activities of the Foundation, and articles about research.

    Expenses $11,762

  • Software to facilitate advocacy of rare diseases, grant accounting, Sponsorships/Grants to organizations with complementary services to Spastic Paraplegia Foundation, Inc.

    Expenses $12,600

As filed on the 2025 return. A text marked withheld matched a screen for wording that may name a private individual, such as an honorific or "in memory of". Most of what it withholds names no one; it is withheld so that what does is never shown.

Listed in Part VII

  • Linda Arnold

    Fundraising and Relationship Development Manager

    Total calculated
    $65,000
    From this org
    $32,500
    From related orgs
    $0
    Other
    $32,500
    Hours/week
    35

  • Lorri Steiner

    Treasurer

    Total calculated
    $61,400
    From this org
    $30,700
    From related orgs
    $0
    Other
    $30,700
    Hours/week
    6

  • Hank Chiuppi

    Secretary/Director

    Total calculated
    $0
    Hours/week
    20

  • John Cobb

    Director

    Total calculated
    $0
    Hours/week
    2

  • Tina Croghan

    Director

    Total calculated
    $0
    Hours/week
    5

  • Frank Davis

    Director

    Total calculated
    $0
    Hours/week
    2

  • Dina Landphair

    Director

    Total calculated
    $0
    Hours/week
    5

  • Greg Pruitt

    President/Director

    Total calculated
    $0
    Hours/week
    40

  • Jim Sheorn

    Vice President/Director

    Total calculated
    $0
    Hours/week
    30

  • Carina Thurgood

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jackie Wellman

    Director

    Total calculated
    $0
    Hours/week
    2

  • Becki Cochran

    Director

    Total calculated
    $0
    Hours/week
    2

  • Sara Kramer

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

Provenance

Return type
form_990
Tax year
2025
Filed
14 August 2026
IRS schema version
2025v4.0
Source object
202632269349301003

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