Skip to content
Nonprofiteer
← CHORDOMA FOUNDATION

Form 990 for tax year 2023

Filed by CHORDOMA FOUNDATION.

Totals

Total revenue
$7,442,618
Total expenses
$4,597,074
Contributions and grants received
$7,189,579
Grants paid
$2,007,102
Program service revenue
$0
Investment income
$218,994
Other revenue
$34,045
Total assets, end of year
$11,037,912
Total liabilities, end of year
$1,830,024
Net assets or fund balances, end of year
$9,207,888
Program services expenses (Part IX)
$3,825,297
Management and general expenses
$349,808
Fundraising expenses
$421,969
Program service expenses (Part III)
$3,825,297

Program services were 83.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $7,189,579

  • 1g · Noncash contributions included above

    $4,175,241

  • 3 · Investment income

    total $218,994 · excluded $218,994

  • 6a · Gross rents

    real property $11,567

  • 6c · Rental income or loss

    real property $11,567

  • 6d · Net rental income or loss

    total $11,567 · excluded $11,567

  • 11a · Other revenue: CONFERENCE REGISTRATION

    total $17,250 · related or exempt $17,250

  • 11b · Other revenue: OTHER INCOME

    total $5,228 · related or exempt $5,228

  • 11e · Other revenue, total

    $22,478

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,559,497 · program services $1,559,497

  • 2 · Grants to domestic individuals

    total $97,730 · program services $97,730

  • 3 · Grants to foreign organizations and individuals

    total $349,875 · program services $349,875

  • 5 · Compensation of officers, directors and key employees

    total $531,307 · program services $406,218 · management and general $22,338 · fundraising $102,751

  • 7 · Other salaries and wages

    total $812,035 · program services $620,852 · management and general $34,141 · fundraising $157,042

  • 8 · Pension plan contributions

    total $15,162 · program services $11,593 · management and general $637 · fundraising $2,932

  • 9 · Other employee benefits

    total $85,082 · program services $65,051 · management and general $3,577 · fundraising $16,454

  • 10 · Payroll taxes

    total $93,337 · program services $71,362 · management and general $3,924 · fundraising $18,051

  • 11c · Fees: accounting

    total $103,969 · management and general $103,969

  • 11f · Fees: investment management

    total $10,096 · management and general $10,096

  • 11g · Fees: other

    total $60,732 · program services $53,254 · management and general $2,654 · fundraising $4,824

  • 12 · Advertising and promotion

    total $24,488 · program services $10,947 · management and general $7,938 · fundraising $5,603

  • 13 · Office expenses

    total $39,721 · program services $11,333 · management and general $11,169 · fundraising $17,219

  • 14 · Information technology

    total $178,530 · program services $114,879 · management and general $30,524 · fundraising $33,127

  • 16 · Occupancy

    total $15,818 · program services $4,513 · management and general $4,448 · fundraising $6,857

  • 17 · Travel

    total $96,846 · program services $42,562 · management and general $13,106 · fundraising $41,178

  • 22 · Depreciation, depletion and amortization

    total $52,167 · program services $9,795 · management and general $42,372

  • 23 · Insurance

    total $25,475 · program services $18,411 · management and general $6,386 · fundraising $678

  • 24a · Other expenses: MEETING EXPENSES

    total $251,458 · program services $246,097 · fundraising $5,361

  • 24b · Other expenses: IN-KIND CONTRIBUTIONS

    total $141,220 · program services $131,328 · fundraising $9,892

  • 24c · Other expenses: BAD DEBT EXPENSE

    total $52,529 · management and general $52,529

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $267,171 · end of year $3,639,340

  • 2 · Savings and temporary cash investments

    beginning of year $6,102,120 · end of year $6,083,749

  • 3 · Pledges and grants receivable

    beginning of year $1,123,782 · end of year $1,064,570

  • 9 · Prepaid expenses and deferred charges

    beginning of year $28,107 · end of year $15,041

  • 10a · Land, buildings and equipment: cost or other basis

    $219,582

  • 10b · Land, buildings and equipment: accumulated depreciation

    $74,431

  • 10c · Land, buildings and equipment, net

    beginning of year $78,331 · end of year $145,151

  • 15 · Other assets

    end of year $90,061

  • 17 · Accounts payable and accrued expenses

    beginning of year $573,348 · end of year $510,650

  • 18 · Grants payable

    beginning of year $776,434 · end of year $1,319,374

  • 19 · Deferred revenue

    beginning of year $3,525

  • 27 · Net assets without donor restrictions

    beginning of year $3,052,256 · end of year $4,158,191

  • 28 · Net assets with donor restrictions

    beginning of year $3,193,948 · end of year $5,049,697

Mission and programs · 2023

Mission

THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.

  • (RESEARCH) TO ACCELERATE THE DEVELOPMENT OF BETTER TREATMENTS FOR CHORDOMA, WE CONDUCTED, SUPPORTED AND ENABLED HIGH-IMPACT RESEARCH SPANNING BASIC, TRANSLATIONAL AND CLINICAL SCIENCE. THIS INCLUDED CARRYING OUT PRECLINICAL STUDIES IN OUR LABORATORY, AWARDING RESEARCH GRANTS TO ACADEMIC INVESTIGATORS, OPERATING REPOSITORIES TO SUPPLY THE RESEARCH COMMUNITY WITH KEY RESEARCH-ENABLING RESOURCES, CONVENING SCIENTIFIC MEETINGS, AND FACILITATING THE DESIGN AND INITIATION OF WELL-JUSTIFIED CLINICAL TRIALS.

    Expenses $3,121,913 · Grants $1,909,372

  • (PATIENT SERVICES) TO IMPROVE THE LIVES OF INDIVIDUALS AFFECTED BY CHORDOMA, WE HELPED PATIENTS AND THEIR FAMILIES FIND ACCURATE INFORMATION ABOUT CHORDOMA AND TREATMENT OPTIONS, OVERCOME BARRIERS TO CARE, AND GET EMOTIONAL SUPPORT FROM PEERS. THIS INCLUDED DEVELOPING AND DISTRIBUTING EDUCATIONAL CONTENT, PROVIDING PATIENT NAVIGATION SERVICES, HOSTING EDUCATIONAL CONFERENCES, OPERATING AN ONLINE COMMUNITY FORUM FOR PATIENTS AND FAMILIES AND PROVIDING FINANCIAL ASSISTANCE TO INDIVIDUALS TRAVELING TO PARTICIPATE IN CLINICAL TRIALS.

    Expenses $703,384 · Grants $97,730

As filed on the 2023 return.

Listed in Part VII

  • Daniel Freed

    HEAD OF TARG

    Total calculated
    $197,995
    From this org
    $183,188
    From related orgs
    $0
    Other
    $14,807
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,517
    Bonus
    $25,611
    Other
    $60
    Deferred
    $5,480
    Nontaxable benefits
    $9,327
    Filer's total
    $197,995

  • Kenny Brighton

    HEAD OF PHIL

    Total calculated
    $171,305
    From this org
    $164,800
    From related orgs
    $0
    Other
    $6,505
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $144,296
    Bonus
    $20,450
    Other
    $54
    Deferred
    $4,929
    Nontaxable benefits
    $1,576
    Filer's total
    $171,305

  • Josh Sommer

    EXEC. DIR. &

    Total calculated
    $162,008
    From this org
    $148,892
    From related orgs
    $0
    Other
    $13,116
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $134,338
    Bonus
    $14,500
    Other
    $54
    Deferred
    $4,452
    Nontaxable benefits
    $8,664
    Filer's total
    $162,008

  • Sara Nick

    HEAD OF ENGA

    Total calculated
    $128,163
    From this org
    $123,299
    From related orgs
    $0
    Other
    $4,864
    Hours/week
    40

  • Tammy Silverthorne

    DIRECTOR OF

    Total calculated
    $122,053
    From this org
    $106,717
    From related orgs
    $0
    Other
    $15,336
    Hours/week
    40

  • Shannon Lozinsky

    DIRECTOR OF

    Total calculated
    $115,508
    From this org
    $102,804
    From related orgs
    $0
    Other
    $12,704
    Hours/week
    40

  • Leslie Adler

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Paul Feldman

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Steven Golick

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Christopher Heery

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Alicia Jeffreys

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Susan Mahony

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Steven Mandel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Shreyaskumar Patel

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • David Sandak

    CHAIR

    Total calculated
    $0
    Hours/week
    4

  • Megan Stewart

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • John Therien

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
16 August 2024
IRS schema version
2023v5.0
Source object
202432329349300708

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.