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Nonprofiteer
← NEUROENDOCRINE TUMOR RESEARCH FOUNDATION

Form 990 for tax year 2023

Filed by NEUROENDOCRINE TUMOR RESEARCH FOUNDATION.

Totals

Total revenue
$3,196,257
Total expenses
$3,580,473
Contributions and grants received
$2,558,610
Grants paid
$2,110,000
Program service revenue
$0
Investment income
$637,647
Other revenue
$0
Total assets, end of year
$20,633,243
Total liabilities, end of year
$5,100,489
Net assets or fund balances, end of year
$15,532,754
Program services expenses (Part IX)
$2,888,014
Management and general expenses
$244,236
Fundraising expenses
$448,223
Program service expenses (Part III)
$2,888,014

Program services were 80.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $2,558,610

  • 3 · Investment income

    total $533,005 · excluded $533,005

  • 7a · Gross sales of assets other than inventory

    securities $2,446,092

  • 7b · Less cost or other basis and sales expenses

    securities $2,341,450

  • 7c · Gain or loss

    securities $104,642

  • 7d · Net gain or loss

    total $104,642 · related or exempt $104,642

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $1,100,000 · program services $1,100,000

  • 3 · Grants to foreign organizations and individuals

    total $1,010,000 · program services $1,010,000

  • 5 · Compensation of officers, directors and key employees

    total $197,380 · program services $69,083 · management and general $78,952 · fundraising $49,345

  • 7 · Other salaries and wages

    total $717,959 · program services $429,361 · management and general $21,944 · fundraising $266,654

  • 9 · Other employee benefits

    total $35,893 · program services $19,546 · management and general $3,956 · fundraising $12,391

  • 10 · Payroll taxes

    total $73,553 · program services $40,053 · management and general $8,108 · fundraising $25,392

  • 11b · Fees: legal

    total $2,310 · management and general $2,310

  • 11c · Fees: accounting

    total $43,748 · management and general $43,748

  • 11g · Fees: other

    total $116,268 · program services $101,231 · management and general $1,526 · fundraising $13,511

  • 12 · Advertising and promotion

    total $2,830 · program services $1,690 · management and general $313 · fundraising $827

  • 13 · Office expenses

    total $26,259 · program services $2,458 · management and general $2,197 · fundraising $21,604

  • 14 · Information technology

    total $41,688 · program services $9,826 · management and general $10,027 · fundraising $21,835

  • 16 · Occupancy

    total $86,709 · program services $41,985 · management and general $18,550 · fundraising $26,174

  • 17 · Travel

    total $28,067 · program services $16,493 · management and general $4,127 · fundraising $7,447

  • 19 · Conferences, conventions and meetings

    total $147,860 · program services $147,147 · fundraising $713

  • 23 · Insurance

    total $7,566 · program services $3,749 · management and general $1,487 · fundraising $2,330

  • 24a · Other expenses: INVESTMENT EXPENSE

    total $46,091 · management and general $46,091

  • 24b · Other expenses: DUES AND LICENSES

    total $900 · management and general $900

  • 24c · Other expenses: GRANT DISCOUNTS

    total -$29,608 · program services -$29,608

  • 24d · Other expenses: GRANT WRITE OFFS

    total -$75,000 · program services -$75,000

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $940,336 · end of year $1,352,806

  • 2 · Savings and temporary cash investments

    beginning of year $503,618 · end of year $203,802

  • 3 · Pledges and grants receivable

    beginning of year $400,000 · end of year $513,268

  • 4 · Accounts receivable

    beginning of year $132,605

  • 9 · Prepaid expenses and deferred charges

    beginning of year $23,840 · end of year $17,417

  • 11 · Investments: publicly traded securities

    beginning of year $18,359,395 · end of year $18,457,571

  • 15 · Other assets

    beginning of year $163,324 · end of year $88,379

  • 17 · Accounts payable and accrued expenses

    beginning of year $159,819 · end of year $217,211

  • 18 · Grants payable

    beginning of year $6,189,523 · end of year $4,799,915

  • 25 · Other liabilities

    beginning of year $164,987 · end of year $83,363

  • 27 · Net assets without donor restrictions

    beginning of year $3,244,174 · end of year $2,848,405

  • 28 · Net assets with donor restrictions

    beginning of year $10,764,615 · end of year $12,684,349

Mission and programs · 2023

Mission

TO FUND RESEARCH TO DISCOVER CURES AND MORE EFFECTIVE TREATMENTS FOR NEUROENDOCRINE CANCERS. THE NET RESEARCH FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY NEUROENDOCRINE CANCER BY PROVIDING INFORMATION & EDUCATIONAL RESOURCES.

Activities or mission (Part I)

TO FUND RESEARCH TO DISCOVER CURES & MORE EFFECTIVE TREATMENTS FOR NEUROENDOCRINE CANCERS. THE NET RESEARCH FOUNDATION IS COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY NEURENDOCRINE CANCER BY PROVIDING INFORMATION & EDUCATIONAL RESOURCES.

  • NEUROENDOCRINE TUMOR RESEARCH FOUNDATION, INC (NETRF) FUNDS RESEARCH INTO THE CAUSES OF NEUROENDOCRINE TUMORS IN ORDER TO FIND CURES FOR THESE CANCERS.

    Expenses $2,383,700 · Grants $2,110,000

  • NETRF PROVIDES EDUCATION AND INFORMATION FOR NET PATIENTS AND FAMILIES THROUGH A VARIETY OF FORMATS. THROUGH ITS EDUCATIONAL CONFERENCES, NETRF PRESENTS THE LATEST IN RESEARCH AND TREATMENT FROM NET PHYSICIANS AND CLINICIANS. ON ITS WEBSITE, NETRF OFFERS EDUCATIONAL ARTICLES, VIDEOS, PODCASTS, AND A PATIENT GUIDE TO HELP PATIENTS LEARN ABOUT THEIR DIAGNOSIS AND TREATMENT OPTIONS.

    Expenses $407,382

  • NETRF CONDUCTS OUTREACH TO OTHER NET-RELATED ORGANIZATIONS IN THE UNITED STATES AND BEYOND TO CONVENE RESEARCHERS AND FACILITATE SCIENTIFIC COLLABORATION. THROUGH ITS WORK AND LEADERSHIP WITH THESE OTHER GROUPS, NETRF ADVANCES UNDERSTANDING OF NEUROENDOCRINE TUMORS AND THE NEEDS OF NET PATIENTS. NETRF ALSO WORKS WITH PATIENT SUPPORT GROUPS TO CONNECT TO THE LARGER NET COMMUNITY.

    Expenses $96,932

As filed on the 2023 return.

Listed in Part VII

  • Mark Lewis MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Jonathan Soroff

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Julie Shaffer Mebane

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • Laurie Rains

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Anthony Detre

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Stephen Blackwood

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Stephen Kaufer

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Josh Mailman

    TREASURER

    Total calculated
    $0
    Hours/week
    4

  • Joseph Li MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Brendan Foley

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • Todd Gilman

    PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • Suzanne Ludlow

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Laurie Littlepage

    DIRECTOR

    Total calculated
    $0
    Hours/week
    4

  • Elyse Gellerman

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $197,381
    From this org
    $197,381
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $170,381
    Bonus
    $27,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $197,381

  • Susan Harrington

    CHIEF DEVELOPMENT OFFICER

    Total calculated
    $159,494
    From this org
    $159,003
    From related orgs
    $0
    Other
    $491
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $159,003
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $491
    Filer's total
    $159,494

  • Christine Coffey

    DIRECTOR OF COMMUNICATIONS

    Total calculated
    $143,922
    From this org
    $135,321
    From related orgs
    $0
    Other
    $8,601
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
BONUSES ARE GIVEN BASED ON THE ACHIEVEMENT OF APPROVED, MEASURABLE GOALS SET ON AN ANNUAL BASIS FOR EACH ELIGIBLE EMPLOYEE.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2023
Filed
21 April 2024
IRS schema version
2023v5.0
Source object
202401149349301210

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