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Nonprofiteer
← FOUNDATION FOR PRADER WILLI RESEARCH

Form 990 for tax year 2024

Filed by FOUNDATION FOR PRADER WILLI RESEARCH.

Totals

Total revenue
$6,173,660
Total expenses
$6,062,339
Contributions and grants received
$5,412,703
Grants paid
$3,413,154
Program service revenue
$186,058
Investment income
$495,956
Other revenue
$78,943
Total assets, end of year
$8,871,895
Total liabilities, end of year
$3,480,573
Net assets or fund balances, end of year
$5,391,322
Program services expenses (Part IX)
$5,303,789
Management and general expenses
$396,156
Fundraising expenses
$362,394
Program service expenses (Part III)
$5,303,789

Program services were 87.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $883,542

  • 1f · All other contributions, gifts and grants

    $4,529,161

  • 2a · Program service revenue: CONFERENCE REVENUE

    total $186,058 · related or exempt $186,058

  • 3 · Investment income

    total $459,894 · excluded $459,894

  • 7a · Gross sales of assets other than inventory

    securities $4,104,035

  • 7b · Less cost or other basis and sales expenses

    securities $4,067,973

  • 7c · Gain or loss

    securities $36,062

  • 7d · Net gain or loss

    total $36,062 · excluded $36,062

  • 8a · Fundraising events: gross income

    $235,075

  • 8a · Fundraising events: contributions included on line 1c

    $883,542

  • 8b · Fundraising events: direct expenses

    $156,132

  • 8c · Net income from fundraising events

    total $78,943 · excluded $78,943

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,597,065 · program services $2,597,065

  • 3 · Grants to foreign organizations and individuals

    total $816,089 · program services $816,089

  • 5 · Compensation of officers, directors and key employees

    total $132,351 · program services $94,448 · management and general $11,763 · fundraising $26,140

  • 7 · Other salaries and wages

    total $952,360 · program services $679,618 · management and general $84,644 · fundraising $188,098

  • 9 · Other employee benefits

    total $12,555 · program services $3,564 · management and general $926 · fundraising $8,065

  • 10 · Payroll taxes

    total $83,913 · program services $61,711 · management and general $4,635 · fundraising $17,567

  • 11b · Fees: legal

    total $2,475 · program services $2,475

  • 11c · Fees: accounting

    total $82,596 · management and general $82,596

  • 11g · Fees: other

    total $543,453 · program services $435,380 · management and general $88,667 · fundraising $19,406

  • 12 · Advertising and promotion

    total $1,240 · program services $680 · fundraising $560

  • 16 · Occupancy

    total $53,801 · program services $47,651 · fundraising $6,150

  • 17 · Travel

    total $74,384 · program services $60,791 · management and general $5,053 · fundraising $8,540

  • 22 · Depreciation, depletion and amortization

    total $2,047 · management and general $2,047

  • 23 · Insurance

    total $29,193 · program services $20,131 · management and general $9,062

  • 24a · Other expenses: CATERING

    total $244,413 · program services $225,732 · management and general $0 · fundraising $18,681

  • 24b · Other expenses: RESEARCH

    total $209,154 · program services $209,154

  • 24c · Other expenses: DUES & SUBSCRIPTIONS

    total $77,658 · program services $31,469 · management and general $40,289 · fundraising $5,900

  • 24d · Other expenses: BANK FEES

    total $60,192 · program services $102 · management and general $55,920 · fundraising $4,170

  • 24e · All other expenses

    total $87,400 · program services $17,729 · management and general $10,554 · fundraising $59,117

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $32,336 · end of year $0

  • 2 · Savings and temporary cash investments

    beginning of year $8,885,256 · end of year $7,637,715

  • 3 · Pledges and grants receivable

    beginning of year $164,138 · end of year $618,795

  • 9 · Prepaid expenses and deferred charges

    beginning of year $55,784 · end of year $109,268

  • 10a · Land, buildings and equipment: cost or other basis

    $13,561

  • 10b · Land, buildings and equipment: accumulated depreciation

    $8,711

  • 10c · Land, buildings and equipment, net

    beginning of year $3,932 · end of year $4,850

  • 11 · Investments: publicly traded securities

    beginning of year $28,011 · end of year $1,267

  • 13 · Investments: program-related

    beginning of year $350,000 · end of year $500,000

  • 17 · Accounts payable and accrued expenses

    beginning of year $694,953 · end of year $201,489

  • 18 · Grants payable

    beginning of year $3,532,275 · end of year $3,279,084

  • 27 · Net assets without donor restrictions

    beginning of year $5,292,229 · end of year $5,391,322

Mission and programs · 2024

Mission

TO ELIMINATE THE CHALLENGES OF PRADER WILLI SYNDROME THROUGH THE ADVANCEMENT OF RESEARCH AND THERAPEUTIC DEVELOPMENT.

Activities or mission (Part I)

SUPPORTS RESEARCH TO ADVANCE THE UNDERSTANDING AND TREATMENT OF PRADER-WILLI SYNDROME.

  • THROUGH THE IMPLEMENTATION OF TRANSLATIONAL RESEARCH PROGRAMS, THE MANAGEMENT OF A WORLD-CLASS GRANTS PROGRAM, AND THE DEVELOPMENT OF PRADER WILLI SYNDROME (PWS) RESEARCH TOOLS, THE FOUNDATION FOR PRADER-WILLI RESEARCH (FPWR) ADVANCES RESEARCH IN ORDER TO DEVELOP NEW TREATMENTS FOR PWS AND IMPROVE THE HEALTH AND WELL-BEING OF THOSE WITH PWS. UNDER THE GUIDANCE OF OUR SCIENTIFIC ADVISORY BOARD THROUGH A CAREFULLY MANAGED GRANTS PROCESS, FPWR SELECTS RESEARCH PROJECTS BASED ON THE COLLABORATIVE INPUT OF RESEARCHERS AND PARENTS, CHOOSING PROJECTS THAT ARE BOTH SCIENTIFICALLY MERITORIOUS AND HIGHLY RELEVANT FOR INDIVIDUALS WITH PWS AND THEIR FAMILIES.

    Expenses $5,303,789 · Grants $3,413,154 · Revenue $186,058

As filed on the 2024 return.

Listed in Part VII

  • Paul Wissman

    CHAIRPERSON

    Total calculated
    $0
    Hours/week
    1

  • Justin Nelson

    VICE CHAIRPERSON

    Total calculated
    $0
    Hours/week
    0.5

  • Amber Roberson

    SECRETARY

    Total calculated
    $0
    Hours/week
    0.5

  • Brian Carucci

    TREASURER

    Total calculated
    $0
    Hours/week
    0.5

  • Annamarie Huttunen

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Karine Kabundi

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Kristin White

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Mark Joseph

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Matt Blickley

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Renee Snyder

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Scott Arant

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • Susan Hedstrom

    EXECUTIVE DIRECTOR

    Total calculated
    $132,351
    From this org
    $132,351
    From related orgs
    $0
    Other
    $0
    Hours/week
    35

  • Theresa Strong

    DIRECTOR OF RESEARCH PROGR

    Total calculated
    $173,430
    From this org
    $173,430
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $173,430
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $173,430

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2024
Filed
20 October 2025
IRS schema version
2024v5.2
Source object
202512949349302211

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