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Nonprofiteer
← NORTHEAST ALS CONSORTIUM INC

Form 990 for tax year 2023

Filed by NORTHEAST ALS CONSORTIUM INC.

This return was superseded by a later amendment. matched by us It is kept because history is preserved rather than replaced.

What the amendment changed

Compared with the latest return for 2023 , filed 28 April 2025. matched by us Only the return's totals, a 990-PF's accounting method and the names listed in Part VII (Part VIII on a 990-PF) are compared. We relate returns by organization, tax year and form, and order them by each return's own timestamp; the filer's own "amended return" checkbox is a separate fact.

Total revenue
$1,571,264 changed to $1,347,482
Total expenses
$1,057,037 changed to $1,069,037
Program service revenue
$1,563,282 changed to $1,339,500
Total assets, end of year
$1,608,873 changed to $1,517,173
Total liabilities, end of year
$47,340 changed to $191,422
Net assets or fund balances, end of year
$1,561,533 changed to $1,325,751
Program services expenses
$813,377 changed to $825,377
Program service expenses (Part III)
$813,377 changed to $825,377

Totals

Total revenue
$1,571,264
Total expenses
$1,057,037
Contributions and grants received
$7,982
Grants paid
$0
Program service revenue
$1,563,282
Investment income
$0
Other revenue
$0
Total assets, end of year
$1,608,873
Total liabilities, end of year
$47,340
Net assets or fund balances, end of year
$1,561,533
Program services expenses (Part IX)
$813,377
Management and general expenses
$227,873
Fundraising expenses
$15,787
Program service expenses (Part III)
$813,377

Program services were 76.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $7,982

  • 2a · Program service revenue: GRANT INCOME

    total $582,500 · related or exempt $582,500

  • 2b · Program service revenue: SPONSORSHIP

    total $310,001 · related or exempt $310,001

  • 2c · Program service revenue: ANNUAL CONFERENCE - FE

    total $271,780 · related or exempt $271,780

  • 2d · Program service revenue: INFRASTRUCTURE SUPPORT

    total $263,000 · related or exempt $263,000

  • 2e · Program service revenue: MEMBERSHIP DUES

    total $136,001 · related or exempt $136,001

Functional expenses

Part IX, the statement of functional expenses.

  • 11a · Fees: management

    total $315,728 · program services $205,223 · management and general $94,718 · fundraising $15,787

  • 11c · Fees: accounting

    total $5,500 · management and general $5,500

  • 11g · Fees: other

    total $56,337 · management and general $56,337

  • 13 · Office expenses

    total $26,354 · management and general $26,354

  • 16 · Occupancy

    total $11,197 · management and general $11,197

  • 17 · Travel

    total $16,643 · management and general $16,643

  • 23 · Insurance

    total $708 · management and general $708

  • 24a · Other expenses: ANNUAL MEETING

    total $575,682 · program services $575,682

  • 24b · Other expenses: MEMBERSHIP REIMBURSEMEN

    total $24,699 · program services $24,699

  • 24c · Other expenses: SCIENCE MEETING AND EXE

    total $12,122 · program services $7,273 · management and general $4,849

  • 24d · Other expenses: WEBSITE

    total $11,567 · management and general $11,567

  • 24e · All other expenses

    total $500 · program services $500

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $874,160 · end of year $1,397,373

  • 4 · Accounts receivable

    beginning of year $226,466 · end of year $201,500

  • 9 · Prepaid expenses and deferred charges

    beginning of year $5,250 · end of year $10,000

  • 17 · Accounts payable and accrued expenses

    beginning of year $58,570 · end of year $47,340

  • 27 · Net assets without donor restrictions

    beginning of year $1,047,306 · end of year $1,561,533

Mission and programs · 2023

Mission

THE MISSION OF NORTH EAST ALS CONSORTIUM (NEALS) IS TO TRANSLATE SCIENTIFIC ADVANCES INTO CLINCICAL RESEARCH AND NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE.

Activities or mission (Part I)

OUR MISSION IS TO TRANSLATE SCIENTIFIC ADVANCES INTO NEW TREATMENTS FOR PEOPLE WITH AMYOTROPHIC LATERAL SCLEROSIS (ALS) AND MOTOR NEURON DISEASE (MND) AS RAPIDLY AS POSSIBLE. TO ACHIEVE OUR GOAL, NEALS FUNCTIONS AS AN ACADEMIC RESEARCH CONSORTIUM AND A RESOURCE TOOL FOR THE ALS COMMUNITY. NEALS IS COMMITTED TO THE PRINCIPLES OF OPEN SCIENTIFIC COMMUNICATION, PEER REVIEW, FULL AND OPEN DISCLOSURE OF POTENTIAL CONFLICTS OF INTEREST, AND DEMOCRATIC GOVERNANCE OF ITS ORGANIZATION AND ACTIVITIES.

  • THE ANNUAL NEALS MEETING SERVES AS AN OPPORTUNITY FOR NEALS RESEARCHERS TO LIAISE WITH LEADING ALS AND MND SCIENTISTS, GOVERNMENT SPONSORS, ACADEMIC PARTNERS, AND PHARMACEUTICAL COMPANIES IN ORDER TO DISCUSS POTENTIAL TREATMENTS, TO REVIEW CURRENT RESEARCH ACTIVITIES, AND TO SHARE SCIENTIFIC UPDATES. THE NEALS SCIENCE ADVISORY BOARD IS RESPONSIBLE FOR ADVISING THE NEALS EXECUTIVE COMMITTEE AND NEALS MEMBERS ABOUT THE SCIENTIFIC BASIS OF NEALS RESEARCH ACTIVITIES. IN ADDITION, NEALS HAS BUILT AN EXTENSIVE ALS SAMPLE REPOSITORY AND MAINTAINED SEVERAL TRIAL DATABASES. IN THE SPIRIT OF COLLABORATION, WE MAKE RESOURCES SUCH AS THESE WIDELY AVAILABLE TO INVESTIGATORS CONDUCTING RESEARCH IN ALS.

    Expenses $813,377 · Revenue $1,563,282

As filed on the 2023 return.

Listed in Part VII

  • Robert H Brownmd Dphil

    SAB, CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Gale Kittle

    CLINICAL EVALUATOR MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Jeffrey Rothsteinmdphd

    SAB, CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Timothy Miller MD PhD

    SAB, CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Jinsy Andrews MD Msc

    CO-CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Richard Bedlack MD PhD

    INVESTIGATOR MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Nicole Turcotte

    COORDINATOR MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Matthew Harms

    INVESTIGATOR MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Sabrina Paganoni

    INVESTIGATOR MEMBER

    Total calculated
    $0
    Hours/week
    1

  • Zachary Simmons

    INVESTIGATOR MEMBER

    Total calculated
    $0
    Hours/week
    1

  • James Berry

    CO-CHAIR

    Total calculated
    $0
    Hours/week
    5

  • Tara Lincoln

    DIRECTOR OF OPERATION

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
14 November 2024
IRS schema version
2023v5.1
Source object
202403199349311905

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