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Nonprofiteer
← ALS UNITED NORTH CAROLINA

Form 990 for tax year 2023

Filed by ALS UNITED NORTH CAROLINA.

Totals

Total revenue
$2,675,738
Total expenses
$2,608,847
Contributions and grants received
$2,579,312
Grants paid
$0
Program service revenue
$9,250
Investment income
$108,957
Other revenue
-$21,781
Total assets, end of year
$2,809,016
Total liabilities, end of year
$287,857
Net assets or fund balances, end of year
$2,521,159
Program services expenses (Part IX)
$2,309,261
Management and general expenses
$190,402
Fundraising expenses
$109,184
Program service expenses (Part III)
$2,309,261

Program services were 88.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $1,261,344

  • 1e · Government grants (contributions)

    $319,407

  • 1f · All other contributions, gifts and grants

    $998,561

  • 1g · Noncash contributions included above

    $137,500

  • 2a · Program service revenue: CAREGIVERS CONFERENCE

    total $9,250 · related or exempt $9,250

  • 3 · Investment income

    total $78,770 · excluded $78,770

  • 7a · Gross sales of assets other than inventory

    securities $594,833

  • 7b · Less cost or other basis and sales expenses

    securities $536,508 · other assets $28,138

  • 7c · Gain or loss

    securities $58,325 · other assets -$28,138

  • 7d · Net gain or loss

    total $30,187 · excluded $30,187

  • 8a · Fundraising events: gross income

    $0

  • 8a · Fundraising events: contributions included on line 1c

    $1,261,344

  • 8b · Fundraising events: direct expenses

    $230,692

  • 8c · Net income from fundraising events

    total -$230,692 · excluded -$230,692

  • 11a · Other revenue: SETTLEMENT

    total $208,911 · excluded $208,911

  • 11e · Other revenue, total

    $208,911

Functional expenses

Part IX, the statement of functional expenses.

  • 5 · Compensation of officers, directors and key employees

    total $167,629 · program services $150,866 · management and general $16,763

  • 7 · Other salaries and wages

    total $707,823 · program services $673,363 · management and general $27,712 · fundraising $6,748

  • 8 · Pension plan contributions

    total $25,412 · program services $23,458 · management and general $1,863 · fundraising $91

  • 9 · Other employee benefits

    total $112,949 · program services $109,309 · management and general $2,605 · fundraising $1,035

  • 10 · Payroll taxes

    total $67,811 · program services $63,906 · management and general $3,382 · fundraising $523

  • 11b · Fees: legal

    total $66,304 · program services $54,944 · management and general $4,956 · fundraising $6,404

  • 11c · Fees: accounting

    total $80,619 · program services $66,806 · management and general $6,026 · fundraising $7,787

  • 11f · Fees: investment management

    total $11,294 · fundraising $11,294

  • 11g · Fees: other

    total $166,564 · program services $145,341 · management and general $9,565 · fundraising $11,658

  • 12 · Advertising and promotion

    total $22,803 · program services $14,370 · management and general $795 · fundraising $7,638

  • 13 · Office expenses

    total $5,685 · program services $4,791 · management and general $363 · fundraising $531

  • 14 · Information technology

    total $97,804 · program services $81,068 · management and general $7,302 · fundraising $9,434

  • 16 · Occupancy

    total $114,581 · program services $95,230 · management and general $8,829 · fundraising $10,522

  • 19 · Conferences, conventions and meetings

    total $27,554 · program services $26,389 · management and general $425 · fundraising $740

  • 20 · Interest

    total $836 · program services $693 · management and general $62 · fundraising $81

  • 22 · Depreciation, depletion and amortization

    total $70,080 · management and general $70,080

  • 23 · Insurance

    total $7,435 · program services $6,356 · management and general $506 · fundraising $573

  • 24a · Other expenses: PROGRAM EXPENSES

    total $625,191 · program services $625,000 · management and general $2 · fundraising $189

  • 24b · Other expenses: NATIONAL DUES

    total $154,563 · program services $124,326 · management and general $16,498 · fundraising $13,739

  • 24c · Other expenses: MISCELLANEOUS

    total $38,913 · program services $24,343 · management and general $11,018 · fundraising $3,552

  • 24d · Other expenses: SERVICE CHARGES

    total $14,278 · program services $5,811 · management and general $524 · fundraising $7,943

  • 24e · All other expenses

    total $22,719 · program services $12,891 · management and general $1,126 · fundraising $8,702

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $553,775 · end of year $330,503

  • 3 · Pledges and grants receivable

    beginning of year $172,521 · end of year $10,793

  • 4 · Accounts receivable

    beginning of year $236,634 · end of year $239,910

  • 9 · Prepaid expenses and deferred charges

    end of year $21,715

  • 10a · Land, buildings and equipment: cost or other basis

    $371,869

  • 10b · Land, buildings and equipment: accumulated depreciation

    $113,871

  • 10c · Land, buildings and equipment, net

    beginning of year $249,128 · end of year $257,998

  • 11 · Investments: publicly traded securities

    beginning of year $1,680,301 · end of year $1,728,173

  • 14 · Intangible assets

    end of year $30,413

  • 15 · Other assets

    beginning of year $290,162 · end of year $189,511

  • 17 · Accounts payable and accrued expenses

    beginning of year $482,711 · end of year $85,123

  • 18 · Grants payable

    beginning of year $10,000 · end of year $0

  • 19 · Deferred revenue

    beginning of year $2,500 · end of year $11,803

  • 25 · Other liabilities

    beginning of year $279,958 · end of year $190,931

  • 27 · Net assets without donor restrictions

    beginning of year $2,407,352 · end of year $2,506,021

  • 28 · Net assets with donor restrictions

    beginning of year $0 · end of year $15,138

Mission and programs · 2023

Mission

TO DISCOVER TREATMENTS AND A CURE FOR ALS AND TO SERVE, ADVOCATE FOR, AND EMPOWER PEOPLE AFFECTED BY ALS TO LIVE THEIR LIVES TO THE FULLEST.

  • CARE SERVICES IS A PROGRAM THAT SERVES FAMILIES LIVING WITH ALS IN ALL 100 COUNTIES IN NORTH CAROLINA. ALS UNITED NORTH CAROLINA CONTINUES TO SUPPORT ALL ALS CLINICS IN NORTH CAROLINA, MAINTAIN A MEDICAL EQUIPMENT LOAN PROGRAM, HOST MONTHLY SUPPORT GROUPS, AND PROVIDE FINANCIAL SUPPORT TO FAMILIES TO HELP ALLEVIATE STRESS RELATED TO THE COST OF MEDICAL TREATMENTS AND SERVICES FOR ALS AS IDENTIFIED IN THE FOCUS SURVEY "UNDERSTANDING INSURANCE NEEDS AND FINANCIAL BURDENS." IN THE 2024 FISCAL YEAR ALSUNC HELD 104 VIRTUAL SUPPORT GROUP MEETINGS, LOANED NEARLY 500 PIECES OF DURABLE MEDICAL EQUIPMENT, PAID FOR MORE THAN 2,700 HOURS OF IN-HOME CARE, AND SUPPORTED OUR MULTIDISCIPLINARY CLINICS THAT SERVED OVER 1500 HOURS OF PATIENT VISITS.

    Expenses $1,589,354 · Revenue $9,250

  • THE GLOBAL RESEARCH PROGRAM PROVIDES FUNDING TO SUPPORT INTERNATIONAL MEDICAL RESEARCH TO DISCOVER EFFECTIVE TREATMENTS AND A CURE FOR ALS.

    Expenses $7,947

  • THE PUBLIC EDUCATION AND AWARENESS PROGRAM IS DESIGNED TO INCREASE UNDERSTANDING, EDUCATION, AND AWARENESS OF THE IMPACT OF ALS AND THE ROLE THAT THE ASSOCIATION PLAYS IN PROVIDING CARE SERVICES, ADVANCING GLOBAL ALS RESEARCH, AND ADVANCING IMPORTANT PUBLIC POLICY INITIATIVES.

    Expenses $711,960

As filed on the 2023 return.

Listed in Part VII

  • Douglas Noreen

    CHAIR

    Total calculated
    $0
    Hours/week
    15

  • Kathryn Foster

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    6

  • Christy Hall

    SECRETARY

    Total calculated
    $0
    Hours/week
    3

  • Robert Whited

    TREASURER

    Total calculated
    $0
    Hours/week
    3

  • Kathleen Boyce

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Braxton Anthony

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Beth Christina

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Michael Bedell

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Linda Shuford-Reeves

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Ann White

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Darvis Simms

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Sarah Boyce

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • David Shore

    PRESIDENT & CEO

    Total calculated
    $185,513
    From this org
    $166,065
    From related orgs
    $0
    Other
    $19,448
    Hours/week
    44

    Schedule J breakdown matched by us

    Base
    $166,065
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $19,448
    Filer's total
    $185,513

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2023
Filed
19 May 2025
IRS schema version
2023v6.0
Source object
202521399349300202

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