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Nonprofiteer
← THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC

Form 990 for tax year 2025

Filed by THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC.

Totals

Total revenue
$36,523,356
Total expenses
$34,651,131
Contributions and grants received
$26,628,081
Grants paid
$3,576,906
Program service revenue
$8,674,361
Investment income
$1,150,050
Other revenue
$70,864
Total assets, end of year
$62,872,951
Total liabilities, end of year
$14,844,396
Net assets or fund balances, end of year
$48,028,555
Program services expenses (Part IX)
$27,353,091
Management and general expenses
$1,191,036
Fundraising expenses
$6,107,004
Program service expenses (Part III)
$27,353,091

Program services were 78.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1f · All other contributions, gifts and grants

    $26,628,081

  • 1g · Noncash contributions included above

    $625,530

  • 2a · Program service revenue: RESEARCH & CLINICAL TRIALS

    total $8,674,361 · related or exempt $8,674,361

  • 3 · Investment income

    total $1,162,029 · excluded $1,162,029

  • 5 · Royalties

    total $70,864 · related or exempt $70,864

  • 7a · Gross sales of assets other than inventory

    securities $83,535,069

  • 7b · Less cost or other basis and sales expenses

    securities $83,547,048

  • 7c · Gain or loss

    securities -$11,979

  • 7d · Net gain or loss

    total -$11,979 · excluded -$11,979

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $2,171,299 · program services $2,171,299

  • 2 · Grants to domestic individuals

    total $205,607 · program services $205,607

  • 3 · Grants to foreign organizations and individuals

    total $1,200,000 · program services $1,200,000

  • 5 · Compensation of officers, directors and key employees

    total $3,189,740 · program services $2,701,103 · management and general $269,860 · fundraising $218,777

  • 7 · Other salaries and wages

    total $7,259,171 · program services $4,597,185 · management and general $616,724 · fundraising $2,045,262

  • 8 · Pension plan contributions

    total $253,502 · program services $162,762 · management and general $20,990 · fundraising $69,750

  • 9 · Other employee benefits

    total $934,672 · program services $618,576 · management and general $82,744 · fundraising $233,352

  • 10 · Payroll taxes

    total $694,531 · program services $482,213 · management and general $59,104 · fundraising $153,214

  • 11a · Fees: management

    total $592,317 · program services $510,934 · management and general $8,952 · fundraising $72,431

  • 11b · Fees: legal

    total $122,586 · program services $105,743 · management and general $1,853 · fundraising $14,990

  • 11c · Fees: accounting

    total $63,798 · program services $55,032 · management and general $964 · fundraising $7,802

  • 11g · Fees: other

    total $4,125,819 · program services $2,401,826 · management and general $47,616 · fundraising $1,676,377

  • 12 · Advertising and promotion

    total $1,908,430 · program services $1,618,048 · management and general $28,844 · fundraising $261,538

  • 13 · Office expenses

    total $1,366,541 · program services $874,926 · management and general $2,991 · fundraising $488,624

  • 14 · Information technology

    total $2,015,355 · program services $1,738,448 · management and general $30,460 · fundraising $246,447

  • 16 · Occupancy

    total $179,428 · program services $154,775 · management and general $2,712 · fundraising $21,941

  • 17 · Travel

    total $668,993 · program services $465,995 · management and general $11,855 · fundraising $191,143

  • 19 · Conferences, conventions and meetings

    total $852,187 · program services $474,394 · fundraising $377,793

  • 22 · Depreciation, depletion and amortization

    total $573,594 · program services $563,232 · management and general $2,885 · fundraising $7,477

  • 23 · Insurance

    total $164,253 · program services $141,685 · management and general $2,482 · fundraising $20,086

  • 24a · Other expenses: CLINICAL TRIAL/RESEARCH

    total $5,903,326 · program services $5,903,326

  • 24b · Other expenses: TISSUE BANKING

    total $205,982 · program services $205,982

  • 26 · Joint costs (an allocation of the lines above)

    total $253,696 · program services $126,417 · management and general $0 · fundraising $127,279

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $2,850,860 · end of year $3,561,044

  • 2 · Savings and temporary cash investments

    beginning of year $6,236,082 · end of year $9,961,812

  • 3 · Pledges and grants receivable

    beginning of year $4,254,361 · end of year $4,884,191

  • 4 · Accounts receivable

    beginning of year $1,327,848 · end of year $6,305,891

  • 9 · Prepaid expenses and deferred charges

    beginning of year $487,968 · end of year $710,293

  • 10a · Land, buildings and equipment: cost or other basis

    $2,570,033

  • 10b · Land, buildings and equipment: accumulated depreciation

    $1,896,574

  • 10c · Land, buildings and equipment, net

    beginning of year $2,038,895 · end of year $673,459

  • 11 · Investments: publicly traded securities

    beginning of year $28,979,841 · end of year $17,683,741

  • 13 · Investments: program-related

    beginning of year $19,702,733 · end of year $18,734,641

  • 15 · Other assets

    beginning of year $518,560 · end of year $357,879

  • 17 · Accounts payable and accrued expenses

    beginning of year $11,501,089 · end of year $10,559,238

  • 18 · Grants payable

    beginning of year $2,407,188 · end of year $1,374,699

  • 19 · Deferred revenue

    beginning of year $1,974,951 · end of year $2,575,345

  • 25 · Other liabilities

    beginning of year $491,527 · end of year $335,114

  • 27 · Net assets without donor restrictions

    beginning of year $46,293,816 · end of year $44,811,053

  • 28 · Net assets with donor restrictions

    beginning of year $3,728,577 · end of year $3,217,502

Mission and programs · 2025

Mission

SEE SCHEDULE O

  • THE MULTIPLE MYELOMA RESEARCH CONSORTIUM (MMRC), THE CLINICAL RESEARCH SUBSIDIARY OF THE MULTIPLE MYELOMA RESEARCH FOUNDATION (MMRF), IS A COLLABORATIVE NETWORK OF LEADING CANCER CENTERS DRIVING CUTTING-EDGE CLINICAL TRIALS. THE MMRF LAUNCHED THE HORIZON CLINICAL TRIALS PROGRAM THROUGH THE MMRC TO DRIVE PROGRESS FOR PATIENTS WHO NEED IT MOST. HORIZON TRIALS USE AN ADAPTIVE PLATFORM DESIGN THAT ALLOWS RESEARCHERS TO TEST SEVERAL TREATMENTS AT THE SAME TIME AND ADD NEW OPTIONS AS DATA BECOMES AVAILABLE. IN 2025, THE HORIZON ONE TRIAL FOCUSED ON RELAPSED/REFRACTORY MYELOMA EXCEEDED MANY OF ITS ENROLLMENT GOALS FOR ITS FIRST TREATMENT ARM, WHICH IS TESTING DOSING APPROACHES FOR A BISPECIFIC ANTIBODY. THE TRIAL SO FAR HAS ENROLLED MORE BLACK PATIENTS AND OLDER ADULTSTWO GROUPS THAT HAVE HISTORICALLY BEEN LEFT OUT OF RESEARCHTHAN MOST MYELOMA TRIALS. HORIZON ONE BECAME THE FIRST-EVER MYELOMA CLINICAL TRIAL IN FLINT, MICHIGAN, AND IT OPENED AT 25 COMMUNITY HOSPITALS AND CLINICS LAST YEAR. ALSO IN 2025, 13 SITES ENTERED THE START-UP PHASE IN THE HORIZON TWO CLINICAL TRIAL FOCUSED ON HIGH-RISK, NEWLY DIAGNOSED MYELOMA SO THEY COULD FULLY OPEN AND BEGIN SCREENING PATIENTS IN 2026.

    Expenses $6,096,220 · Revenue $8,674,361

  • DATA HELPS DRIVE EVERY BREAKTHROUGH IN MYELOMA. BY BUILDING AND SHARING LARGE, HIGH-QUALITY DATASETS, THE MMRF IS CREATING A LAUNCHPAD FOR THE NEXT WAVE OF TREATMENTS, IMPROVEMENTS IN CARE, AND, ULTIMATELY, CURES. IN 2025, THE MMRF LAUNCHED ITS NEXT INNOVATION IN DATA SHARING: THE MMRF VIRTUAL LABTM. VIRTUAL LAB IS NOW MYELOMA'S LARGEST, MOST-COMPREHENSIVE DATA-SHARING PLATFORM AND BRINGS ALL THE MMRF'S DATA INTO ONE PLACE. THE PLATFORM AND ITS ROBUST DATA WILL EMPOWER RESEARCHERS TO ASK BIGGER QUESTIONS, TEST NEW HYPOTHESES, AND ACCELERATE DISCOVERIES THAT IMPROVE OUTCOMES FOR PATIENTS WITH MYELOMA.

    Expenses $2,669,588

  • THE MAC PROGRAM PROVIDES $21 MILLION OVER 3 YEARS TO CREATE MULTICENTER TRANSLATIONAL RESEARCH TEAMS ACROSS GLOBAL MEDICAL CENTERS. EACH OF THESE THREE-YEAR MULTICENTER TRANSLATIONAL PROJECTS AIM TO FOSTER COLLABORATION AND ADVANCE COMPELLING HYPOTHESES THAT ARE READY FOR RAPID TESTING IN CLINICAL TRIALS, A CRITICAL STEP IN THE MMRF'S URGENT PURSUIT OF A CURE FOR EACH AND EVERY MYELOMA PATIENT. THE GRANTS ARE FOCUSED ON TWO CRITICAL AREAS OF UNMET NEED: OPTIMIZING FIRST-LINE THERAPY FOR NEWLY DIAGNOSED HIGH-RISK MYELOMA AND IMPROVING IDENTIFICATION OF HIGH-RISK SMOLDERING MYELOMA (HR SMM), AN EARLY, ASYMPTOMATIC STAGE THAT CAN PROCEED TO ACTIVE MYELOMA. IN 2025 THE COLLABORATING CENTERS CONTINUED TO MAKE POSITIVE PROGRESS, SHOWING THAT POOLING RESOURCES AND SAMPLES ACROSS A NETWORK OF INSTITUTIONS DRAMATICALLY IMPROVES THE ABILITY TO DRIVE MEANINGFUL RESULTS.

    Expenses $1,600,000

  • BEYOND THE PROGRAM EXPENSES OUTLINED ABOVE, THE MMRF ALSO SUPPORTS A RANGE OF STRATEGIC INITIATIVES ALIGNED WITH ITS BROADER MISSION. THIS INCLUDES A ROBUST PORTFOLIO OF CUTTING-EDGE BASIC SCIENCE AND TRANSLATIONAL RESEARCH AIMED AT IDENTIFYING NEW THERAPEUTIC TARGETS THROUGH GENOMICS AND PROTEOMICS; VALIDATION STUDIES TO EXPLORE PROMISING COMPOUNDS AND TREATMENT COMBINATIONS; AND INNOVATIVE CLINICAL TRIALS FOCUSED ON NOVEL AND COMBINATION THERAPIES.FOUNDED BY PATIENTS, THE MMRF IS DEEPLY COMMITTED TO THOSE IMPACTED BY MYELOMA: PATIENTS, FAMILIES, PHYSICIANS, RESEARCHERS, AND INVESTORS. AT THE SAME TIME, THE MMRF DISTINGUISHES ITSELF THROUGH ITS BOLD AND COLLABORATIVE APPROACH. WE GENERATE, ANALYZE, AND SHARE THE LARGEST, MOST COMPREHENSIVE SET OF HIGH-QUALITY MYELOMA DATA, MAKING IT PUBLICLY AVAILABLE TO ACCELERATE PROGRESS. BY BRINGING TOGETHER THE RIGHT PEOPLE, PROGRAMS, AND TECHNOLOGIES, THE MMRF IS DRIVING THE RAPID DISCOVERY OF CURES FOR EACH AND EVERY PATIENT.

    Expenses $16,987,283 · Grants $3,576,906 · Revenue $70,864

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Kathy Giusti

    FOUNDER & DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Thomas Conheeney

    CHAIRMAN

    Total calculated
    $0
    Hours/week
    2

  • Gerald McDougall

    VICE CHAIRMAN

    Total calculated
    $0
    Hours/week
    2

  • Kenneth Anderson MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Karen Andrews

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Rodney Gilmore

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • David Lucchino

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Lori Tauber-Marcus

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Hugh Martin

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • William McKiernan

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • David Parkinson MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Marie Pinizzotto MD

    DIRECTOR THRU 12/31/2025

    Total calculated
    $0
    Hours/week
    2

  • Adrian Rosenkranz

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Steve Shak MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Kimberly White

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • Michael Andreini

    PRESIDENT & CEO

    Total calculated
    $568,410
    From this org
    $534,635
    From related orgs
    $0
    Other
    $33,775
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $404,078
    Bonus
    $130,185
    Other
    $372
    Deferred
    $14,000
    Nontaxable benefits
    $19,775
    Filer's total
    $568,410

  • Alan Heitner

    TREASURER & CFO

    Total calculated
    $241,211
    From this org
    $230,505
    From related orgs
    $0
    Other
    $10,706
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $215,412
    Bonus
    $0
    Other
    $15,093
    Deferred
    $9,200
    Nontaxable benefits
    $1,506
    Filer's total
    $241,211

  • Karen Dietz

    SECRETARY, CAO & GENERAL COUNSEL

    Total calculated
    $335,256
    From this org
    $287,214
    From related orgs
    $0
    Other
    $48,042
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $208,201
    Bonus
    $53,416
    Other
    $25,597
    Deferred
    $12,140
    Nontaxable benefits
    $35,902
    Filer's total
    $335,256

  • Anne Quinn Young

    CHIEF MISSION OFFICER

    Total calculated
    $394,041
    From this org
    $374,586
    From related orgs
    $0
    Other
    $19,455
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $279,668
    Bonus
    $66,198
    Other
    $28,720
    Deferred
    $14,000
    Nontaxable benefits
    $5,455
    Filer's total
    $394,041

  • George Mulligan

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $435,441
    From this org
    $370,521
    From related orgs
    $0
    Other
    $64,920
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $281,776
    Bonus
    $62,620
    Other
    $26,125
    Deferred
    $14,000
    Nontaxable benefits
    $50,920
    Filer's total
    $435,441

  • Hearn Cho

    CHIEF MEDICAL OFFICER

    Total calculated
    $236,632
    From this org
    $227,552
    From related orgs
    $0
    Other
    $9,080
    Hours/week
    32

    Schedule J breakdown matched by us

    Base
    $170,953
    Bonus
    $39,952
    Other
    $16,647
    Deferred
    $9,080
    Nontaxable benefits
    $0
    Filer's total
    $236,632

  • Stephanie Oestreich

    MANAGING DIRECTOR, MIF

    Total calculated
    $431,369
    From this org
    $397,759
    From related orgs
    $0
    Other
    $33,610
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $322,532
    Bonus
    $65,400
    Other
    $9,827
    Deferred
    $14,000
    Nontaxable benefits
    $19,610
    Filer's total
    $431,369

  • Katie Wozniak

    VP OF CLINICAL RESEARCH

    Total calculated
    $302,745
    From this org
    $244,190
    From related orgs
    $0
    Other
    $58,555
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $207,797
    Bonus
    $23,903
    Other
    $12,490
    Deferred
    $7,725
    Nontaxable benefits
    $50,830
    Filer's total
    $302,745

  • Pam Speer Lewis

    VP OF DEVELOPMENT

    Total calculated
    $244,634
    From this org
    $224,834
    From related orgs
    $0
    Other
    $19,800
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $195,905
    Bonus
    $15,000
    Other
    $13,929
    Deferred
    $0
    Nontaxable benefits
    $19,800
    Filer's total
    $244,634

  • Greg Rubenstein

    VP OF MARKETING

    Total calculated
    $282,736
    From this org
    $220,914
    From related orgs
    $0
    Other
    $61,822
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $181,866
    Bonus
    $20,910
    Other
    $18,138
    Deferred
    $9,702
    Nontaxable benefits
    $52,120
    Filer's total
    $282,736

  • Joanne Puglia

    SR DIRECTOR FINANCE, CONTROLLER

    Total calculated
    $211,952
    From this org
    $199,809
    From related orgs
    $0
    Other
    $12,143
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $167,694
    Bonus
    $13,770
    Other
    $18,345
    Deferred
    $8,060
    Nontaxable benefits
    $4,083
    Filer's total
    $211,952

  • Ashley Blanchard

    SR DIRECTOR, STRATEGIC PARTNERSHIPS

    Total calculated
    $247,145
    From this org
    $189,544
    From related orgs
    $0
    Other
    $57,601
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $161,179
    Bonus
    $14,438
    Other
    $13,927
    Deferred
    $8,102
    Nontaxable benefits
    $49,499
    Filer's total
    $247,145

  • Brian Hochberg

    PRINCIPAL GIFT OFFICER

    Total calculated
    $240,900
    From this org
    $184,995
    From related orgs
    $0
    Other
    $55,905
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $162,899
    Bonus
    $13,500
    Other
    $8,596
    Deferred
    $7,902
    Nontaxable benefits
    $48,003
    Filer's total
    $240,900

  • Francesca Larosa

    SR DIRECTOR, HUMAN RESOURCES

    Total calculated
    $209,887
    From this org
    $183,151
    From related orgs
    $0
    Other
    $26,736
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $156,365
    Bonus
    $12,698
    Other
    $14,088
    Deferred
    $7,432
    Nontaxable benefits
    $19,304
    Filer's total
    $209,887

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Independent compensation consultant
  • 3 · Form 990 of other organizations
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee
  • 7 · Other non-fixed payments

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 8 · Paid under the initial-contract exception

The filer's explanations (Part III)

PART I, LINE 7
INDIVIDUALS INCLUDED IN SCHEDULE J, PART II RECEIVED A DISCRETIONARY BONUS DURING CALENDAR YEAR 2025, WHICH WAS INCLUDED IN COLUMN B(II) HEREIN AND IN THEIR 2025 FORM W-2, BOX 5, AS TAXABLE MEDICARE WAGES.

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

  • MYELOMA INVESTMENT FUND LLC

    VENTURE PHILANTHROPY FUND · DE · income $5,119,292 · assets $20,434,115

    Directly controlled by THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC

  • MULTIPLE MYELOMA RESEARCH CONSORTIUM LLC

    FACILITATING OR SPONSORING CLINICAL TRIALS AND RELATED RESEARCH · CT · income $7,955,376 · assets $6,932,627

    Directly controlled by THE MULTIPLE MYELOMA RESEARCH FOUNDATION INC

Provenance

Return type
form_990
Tax year
2025
Filed
25 August 2026
IRS schema version
2025v4.2
Source object
202632379349301803

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