Form 990 for tax year 2023

Totals

Total revenue

$2,024,097

Total expenses

$2,137,289

Contributions and grants received

$2,024,097

Grants paid

$223,987

Program service revenue

$0

Investment income

$0

Other revenue

$0

Total assets, end of year

$182,694

Total liabilities, end of year

$1,358,242

Net assets or fund balances, end of year

-$1,175,548

Program services expenses (Part IX)

$1,990,858

Management and general expenses

$112,674

Fundraising expenses

$33,757

Program service expenses (Part III)

$1,990,858

Program services were 93.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2023

• THE PATIENT EMPOWERMENT CENTER AT PATIENTS RISING IS DEDICATED TO RECRUITING, DEVELOPING, AND MOBILIZING PATIENTS AND CAREGIVERS TO BECOME EFFECTIVE HEALTHCARE ADVOCATES. AT ITS CORE, THE EMPOWERMENT CENTER OFFERS THE ADVOCACY MASTERCLASS, TRAINING PARTICIPANTS IN ADVOCACY SKILLS NEEDED TO NAVIGATE AND INFLUENCE HEALTHCARE POLICY AT THE STATE AND FEDERAL LEVEL. THE 15-WEEK ADVOCACY MASTERCLASS, MODELED AS AN IMMERSIVE MINI-COLLEGE COURSE, PROVIDES A COMPREHENSIVE CURRICULUM ON ADVOCACY, INCLUDING LIVE VIRTUAL SESSIONS WITH LEADING EXPERTS. TO DATE, NEARLY 300 PARTICIPANTS HAVE GRADUATED AS CERTIFIED PATIENT ADVOCATES. GRADUATES ALSO HAVE THE OPPORTUNITY TO JOIN THE PATIENTS RISING SENATE, WHERE THEY COLLABORATE ON ADVOCACY COMMITTEES AND SET POLICY PRIORITIES. THIS INITIATIVE IS FUNDED THROUGH CORPORATE SPONSORSHIPS, WITH ADDITIONAL SUPPORT FROM OUR ANNUAL WE THE PATIENTS FLY-IN, HELD EACH JUNE. ALL PROGRAMS ARE PROVIDED AT NO COST TO PATIENTS AND CAREGIVERS.

  Expenses $434,193 · Grants $74,662

• PATIENTS RISING STUDIOS IS BUILT ON THE BELIEF THAT STORIES HAVE THE POWER TO CHANGE PERSPECTIVES, DRIVE ACTION, AND SHIFT THE NARRATIVE OF AMERICAN HEALTHCARE. BY AMPLIFYING THE VOICES OF PATIENTS, WE AIM TO RESHAPE THE HEALTHCARE CONVERSATION, BRINGING AUTHENTIC EXPERIENCES TO THE FOREFRONT OF POLICY DEBATES AND PUBLIC AWARENESS. THROUGH A PORTFOLIO OF HIGH-QUALITY MEDIA PLATFORMS, PATIENTS RISING STORYTELLING CONNECTS AUDIENCES WITH REAL-LIFE PATIENT STORIES THAT REVEAL THE HUMAN IMPACT OF HEALTHCARE POLICIES. THESE STORIES NOT ONLY HIGHLIGHT THE STRUGGLES PATIENTS FACE WITH ACCESS AND AFFORDABILITY BUT ALSO CELEBRATE RESILIENCE, ADVOCACY, AND THE PURSUIT OF BETTER HEALTHCARE OUTCOMES. OUR STORYTELLING PLATFORM HAS BEEN EMBRACED BY MEMBERS OF CONGRESS, MAJOR MEDIA OUTLETS, AND INFLUENCERS TO MAKE COMPLEX POLICY ISSUES ACCESSIBLE AND RELATABLE TO A WIDER AUDIENCE. FEATURING THE PATIENTS RISING PODCAST, HEALTHCARE POLICY POP, AND ALWAYS ON CALL PODCASTS AS WELL AS OTHER VIDEO AND AUDIO STORYTELLING PROPERTIES. EACH IS DESIGNED TO UPLIFT PATIENT PERSPECTIVES, DEEPEN PUBLIC UNDERSTANDING, AND FOSTER ADVOCACY FOR MEANINGFUL CHANGE. THROUGH PATIENTS RISING STORYTELLING, WE BRING THE REALITY OF HEALTHCARE CHALLENGES TO LIGHT, EMPOWERING PATIENTS AND SPARKING NECESSARY REFORMS.

  Expenses $551,055 · Grants $74,663

• THE PATIENTS RISING POLICY CENTER IS THE DRIVING FORCE BEHIND OUR MISSION TO CHAMPION PATIENT-CENTERED POLICY AND ADVOCACY. AS THE CENTRAL HUB FOR POLICY STRATEGY, THIS CENTER MERGES THE EXPERTISE OF OUR FORMER PATIENT ACCESS & AFFORDABILITY PROJECT WITH THE GOVERNMENT AFFAIRS FUNCTIONS OF PATIENTS RISING NOW, CREATING A UNIFIED PLATFORM FOR PATIENT-INSPIRED POLICY SOLUTIONS. AT THE HEART OF THIS INITIATIVE IS THE NEWLY LAUNCHED PATIENT SENATE, A BODY OF TRAINED ADVOCATES WHO BRING THEIR VOICES DIRECTLY INTO THE POLICYMAKING PROCESS. THE PATIENT SENATE SETS PRIORITIES BASED ON THE NEEDS OF PATIENTS ACROSS THE NATION, ENSURING THAT LEGISLATIVE AGENDAS REFLECT REAL-LIFE HEALTHCARE CHALLENGES. THIS GROUP WORKS CLOSELY WITH POLICY EXPERTS TO PROVIDE INSIGHT INTO PRESSING HEALTHCARE ISSUES, GIVING PATIENTS AN ACTIVE ROLE IN SHAPING SOLUTIONS THAT IMPROVE ACCESS AND AFFORDABILITY. THROUGH THE POLICY CENTER, PATIENTS RISING WILL IDENTIFY KEY AREAS FOR ANALYSIS AND ENGAGE IN INNOVATIVE POLICY DEVELOPMENT TO ADDRESS HEALTHCARE CHALLENGES. SUPPORTED BY CORPORATE MEMBERS, THIS CENTER ENABLES US TO LEAD THE WAY IN ADVOCATING FOR PRACTICAL, PATIENT-FOCUSED REFORMS AT BOTH STATE AND FEDERAL LEVELS. THE PATIENTS RISING POLICY CENTER NOT ONLY SETS OUR LEGISLATIVE AGENDA BUT ALSO ENSURES THAT THE PATIENT PERSPECTIVE REMAINS AT THE CORE OF POLICY DECISIONS.

  Expenses $1,005,610 · Grants $74,662

As filed on the 2023 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

• THE PATIENT HELPLINE FOUNDATION INC

  $223,987

  SUPPORT PATIENT ADVO

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

• THE PATIENT HELPLINE FOUNDATION INC

  501C3 · EDUCATION · VA

Provenance

Return type

form_990

Tax year

2023

Filed

28 October 2024

IRS schema version

2023v5.0

Source object

202443199349302009

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