Form 990 for tax year 2022

Totals

Total revenue

$422,728

Total expenses

$836,416

Contributions and grants received

$374,601

Grants paid

$446,323

Program service revenue

$48,063

Investment income

$64

Other revenue

$0

Total assets, end of year

$903,042

Total liabilities, end of year

$495,613

Net assets or fund balances, end of year

$407,429

Program services expenses (Part IX)

$723,834

Management and general expenses

$16,352

Fundraising expenses

$96,230

Program service expenses (Part III)

$723,834

Program services were 86.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Mission and programs · 2022

• CureGRIN awarded 3 grants worth $446,323 in the fiscal year. These include: 1) $200,000 to researchers at University of Auckland and University of Toronto to validate blood biomarkers. 2) $146,332 to researchers at University College London for GRIA Disorder drug discovery and 3) $99,992 to Columbia University for gene therapy trials on GRIN2A mice.

  Expenses $446,324 · Grants $446,324 · Revenue $48,063

• After years of COVID related delays, CureGRIN hosted a three-day conference in Boston. More than 300 families, researchers, clinicians and representatives from the biopharm industry participated, including over 230 in-person attendees. The conference received rave reviews from both families and researchers. The largest expenses were food and audio-visual equipment. Revenue was associated with registration fees and sponsorships.

  Expenses $161,648 · Revenue $46,813

• CureGRINs programs fall into two categories. 1) Improving the lives of people around the world living with GRI Disorders (GRIN, GRIA, GRIK and GRID), and their families, through research, education and connectivity. These programs include GRIConnect, development of educational content and the family ambassador program. 2) Working with scientists, clinicians and the biopharm industry to drive research and cures. These programs include in-house research, GRI Genes Roundtable and biopharm engagement.

  Expenses $115,862

As filed on the 2022 return.

Listed in Part VII

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

• Columbia University

  $99,992

  Gene therapy trials on GRIN2A mice

Provenance

Return type

form_990

Tax year

2022

Filed

26 February 2024

IRS schema version

2022v5.0

Source object

202420609349300817

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