Totals
- Total revenue
- $454,537
- Total expenses
- $499,149
- Contributions and grants received
- $441,338
- Grants paid
- $477,753
- Program service revenue
- $0
- Investment income
- $13,199
- Other revenue
- $0
- Total assets, end of year
- $761,855
- Total liabilities, end of year
- $245,940
- Net assets or fund balances, end of year
- $515,915
- Program services expenses (Part IX)
- $491,427
- Management and general expenses
- $7,722
- Fundraising expenses
- $0
- Program service expenses (Part III)
- $491,427
Program services were 98.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$441,338
-
3 · Investment income
total $13,199 · related or exempt $13,199
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $307,403 · program services $307,403
-
3 · Grants to foreign organizations and individuals
total $170,350 · program services $170,350
-
13 · Office expenses
total $1,864 · program services $1,372 · management and general $492
-
14 · Information technology
total $10,730 · program services $10,730
-
23 · Insurance
total $1,572 · program services $1,572
-
24a · Other expenses: REGISTRATION FEES
total $3,714 · management and general $3,714
-
24b · Other expenses: BANK CHARGES & CC FEES
total $3,216 · management and general $3,216
-
24c · Other expenses: MEMBERSHIPS & DUES
total $300 · management and general $300
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $755,615 · end of year $309,824
-
2 · Savings and temporary cash investments
beginning of year $4,514 · end of year $452,031
-
11 · Investments: publicly traded securities
beginning of year $4,398
-
17 · Accounts payable and accrued expenses
end of year $40
-
18 · Grants payable
beginning of year $204,000 · end of year $245,900
-
27 · Net assets without donor restrictions
beginning of year $560,527 · end of year $515,915
Mission and programs · 2023
Mission
TO EDUCATE, INFORM, AND PROVIDE SUPPORT SERVICES REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).
-
TO FURTHER RESEARCH TO FIND A CURE AND/OR TREATMENT FOR KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).
Expenses $437,350 · Grants $437,350
-
TO PROVIDE SUPPORT FOR THOSE WHO HAVE, OR ARE A CARRIER OF, KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY) AND THEIR FAMILY MEMBERS AND CAREGIVERS.
-
TO PROVIDE EDUCATION AND INFORMATION REGARDING KENNEDY'S DISEASE (SPINAL BULBAR MUSCULAR ATROPHY).
Expenses $40,403 · Grants $40,403
-
Expenses $13,674
As filed on the 2023 return.
Listed in Part VII
-
TERRY THOMPSON
PRESIDENT
- Total calculated
- $0
- Hours/week
- 20
-
JAMESON PARKER
VICE PRESIDE
- Total calculated
- $0
- Hours/week
- 5
-
DAVID YELTON JAN - NOV
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
SIMON HILL
SECRETARY, D
- Total calculated
- $0
- Hours/week
- 2
-
JOHN LAUBER DEC
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
RON MOFFET
DIRECTOR
- Total calculated
- $0
- Hours/week
- 15
-
KATHY THOMPSON
DIRECTOR,SEC
- Total calculated
- $0
- Hours/week
- 2
-
STEVEN RITTMASTER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
DALE TRAXLER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
RANDY SOOHOO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
JOAN SORENSEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
PENNSYLVANIA COLLEGE OF OSTEOPATHIC HEATHER MONTIE
$100,000
RESEARCH
-
THOMAS JEFFERSON UNIVERSITY MASOUD SHEKARABI
$100,000
RESEARCH
-
UNIVERSITY OF CALIFORNIA - IRVINE ANASTASIA GROMOVA
$77,000
RESEARCH
-
BANBURY RESEARCH SBMA WORKSHOP
$30,403
EDUCATION/RESEARCH
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 13 May 2024
- IRS schema version
- 2023v5.0
- Source object
- 202441359349302884
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