Form 990 for tax year 2024
Filed by NATIONAL PATIENT ADVOCATE FOUNDATION INC.
Totals
- Total revenue
- $982,347
- Total expenses
- $967,066
- Contributions and grants received
- $619,790
- Grants paid
- $0
- Program service revenue
- $292,500
- Investment income
- $37,729
- Other revenue
- $32,328
- Total assets, end of year
- $1,418,412
- Total liabilities, end of year
- $239,173
- Net assets or fund balances, end of year
- $1,179,239
- Program services expenses (Part IX)
- $800,459
- Management and general expenses
- $94,935
- Fundraising expenses
- $71,672
- Program service expenses (Part III)
- $800,459
Program services were 82.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1d · Related organizations
$525,875
-
1f · All other contributions, gifts and grants
$93,915
-
2a · Program service revenue: MEMBERSHIP DUES - PROG
total $292,500 · related or exempt $292,500
-
3 · Investment income
total $37,729 · excluded $37,729
-
6a · Gross rents
real property $32,328
-
6b · Less rental expenses
real property $0
-
6c · Rental income or loss
real property $32,328
-
6d · Net rental income or loss
total $32,328 · excluded $32,328
Functional expenses
Part IX, the statement of functional expenses.
-
5 · Compensation of officers, directors and key employees
total $125,000 · program services $87,500 · fundraising $37,500
-
7 · Other salaries and wages
total $461,771 · program services $442,867 · management and general $3,144 · fundraising $15,760
-
8 · Pension plan contributions
total $17,440 · program services $15,717 · management and general $151 · fundraising $1,572
-
9 · Other employee benefits
total $43,741 · program services $39,765 · fundraising $3,976
-
10 · Payroll taxes
total $44,568 · program services $39,363 · management and general $1,269 · fundraising $3,936
-
11c · Fees: accounting
total $30,677 · management and general $30,677
-
11g · Fees: other
total $62,709 · program services $62,709
-
12 · Advertising and promotion
total $11,218 · program services $6,218 · management and general $5,000
-
13 · Office expenses
total $41,410 · program services $16,603 · management and general $23,145 · fundraising $1,662
-
16 · Occupancy
total $84,971 · program services $59,480 · management and general $19,543 · fundraising $5,948
-
17 · Travel
total $7,485 · management and general $7,485
-
19 · Conferences, conventions and meetings
total $17,056 · program services $17,056
-
22 · Depreciation, depletion and amortization
total $13,497 · program services $9,448 · management and general $3,104 · fundraising $945
-
23 · Insurance
total $5,000 · program services $3,500 · management and general $1,150 · fundraising $350
-
24a · Other expenses: STAFF AND WELFARE
total $523 · program services $233 · management and general $267 · fundraising $23
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $200 · end of year $200
-
2 · Savings and temporary cash investments
beginning of year $1,377,622 · end of year $1,324,945
-
4 · Accounts receivable
beginning of year $40,475 · end of year $39,200
-
9 · Prepaid expenses and deferred charges
beginning of year $33,176 · end of year $8,492
-
10a · Land, buildings and equipment: cost or other basis
$130,824
-
10b · Land, buildings and equipment: accumulated depreciation
$127,450
-
10c · Land, buildings and equipment, net
beginning of year $16,872 · end of year $3,374
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15 · Other assets
beginning of year $134,753 · end of year $42,201
-
17 · Accounts payable and accrued expenses
beginning of year $81,211 · end of year $61,872
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19 · Deferred revenue
beginning of year $198,400 · end of year $134,384
-
25 · Other liabilities
beginning of year $159,529 · end of year $42,917
-
27 · Net assets without donor restrictions
beginning of year $1,163,958 · end of year $1,179,239
Mission and programs · 2024
Mission
THE NATIONAL PATIENT ADVOCATE FOUNDATION, THE ADVOCACY AFFILIATE OF THE PATIENT ADVOCATE FOUNDATION, REPRESENTS THE PATIENT VOICE, BOTH THE POWERFUL STORIES OF INDIVIDUALS AND THE COLLECTIVE NEEDS OF THE COMMUNITY. OUR PROGRAMS ARE DEVELOPED TO REFLECT THE EXPERIENCES AND OVERCOME THE BARRIERS THAT PAF PATIENTS WHO ARE LIVING WITH CHRONIC, DEBILITATING OR LIFE-THREATENING ILLNESS AND THEIR CAREGIVERS ENCOUNTER IN ACCESSING AFFORDABLE, QUALITY HEALTH CARE. NPAF IS A THOUGHT LEADER IN DEVELOPING POLICIES THAT PROTECT PATIENTS AND CAREGIVERS FROM LACK OF TRANSPARENCY, MEDICAL DEBT AND EQUITABLE ACCESS TO CARE AND SERVICES AT KEY POINTS DURING THEIR ILLNESS.
Activities or mission (Part I)
NATIONAL PATIENT ADVOCATE FOUNDATION (NPAF), ESTABLISHED IN 1996, BRINGS PERSPECTIVES, ENGAGEMENT AND LIVED EXPERIENCES OF PATIENTS AND CAREGIVERS TO THE FOREFRONT OF HEALTHCARE REFORM ACTIVITIES. NPAF'S MISSION IS TO MAKE THE HEALTHCARE SYSTEM WORK FOR ALL OF US. AS THE ADVOCACY AFFILIATE OF PATIENT ADVOCATE FOUNDATION, NPAF IS A NATIONAL NONPROFIT ORGANIZATION WORKING WITH PARTNERS AT THE SYSTEM LEVEL TO INFLUENCE PUBLIC POLICY AND DRIVE CHANGES IN HEALTHCARE ACCESS, AFFORDABILITY AND OUTCOMES.
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NPAF LEADS A VOLUNTEER GRASSROOTS NETWORK IN ACTIVITIES TO ADVANCE THE ORGANIZATION'S POLICY PRIORITIES AS GUIDED BY BOARD-APPROVED PRINCIPLES THAT ARE UPDATED ANNUALLY. THE COMPLEMENT OF PRINCIPLES TRANSLATES TO VARIOUS ADVOCACY OPPORTUNITIES FOR MINIMIZING BURDENS EXPERIENCED BY PATIENTS AND CAREGIVERS SO THEY CAN MAINTAIN MEDICAL, MENTAL/BEHAVIORAL AND FINANCIAL HEALTH. OUR AGENDA TARGETS HARDSHIPS EXPERIENCED BY ALL PAITENTS REGARDLESS OF WHERE THEY LIVE, THEIR DIAGNOSIS, RACE, GENDER, EDUCATION OR INCOME LEVEL. AMONG OTHER PRIORITIES, NPAF FOCUSES ON OPPORTUNITIES TO ADVANCE INNOVATIVE POLICIES ESTABLISHING "NEEDS NAVIGATION" AS A STANDARD PART OF CARE. THESE SERVICES MUST BE RELIABLY AVAILABLE IN ALL SETTINGS TO EASE PATIENTS' HEALTHCARE COSTS CONCERNS THAT ARE CONSEQUENCES OF COMPLEX AND CHRONIC ILLNESSES. NPAF ALSO PARTNERS WITH PAF'S PATIENT INSIGHT INSTITUTE ON PRODUCING PATIENT INSIGHT CONGRESS. THE CONFERENCE AGENDA OFFERS A UNIQUE APPROACH FOR GENERATING ACTIONABLE RESEARCH IDEAS AND ACADEMIC-PARTNERED PROJECTS, INCLUDING EVIDENCE SUPPORTING NPAF'S HEALTHCARE POLICY AGENDA. THE PROGRAM BRINGS REPRESENTATIVE COHORTS OF PATIENTS, CAREGIVERS AND GRASSROOTS VOLUNTEERS TO THE CONFERENCE ALONGSIDE RESEARCHERS. NPAF STAFF SERVE AS FACULTY AND ADMINISTRATIVE SUPPORT PARTNERING WITH PATIENT INSIGHT INSTITUTE IN PLANNING, EXECUTING AND EVALUATING OUTCOMES OF THESE EVENTS.
Expenses $606,222
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NPAF POLICY CONSORTIUM FEATURES A FORUM FOR DYNAMIC DIALOGUE THAT INVITES MEMBERS, ALONG WITH PATIENTS, CAREGIVERS AND COMMUNITY PARTNERS TO EXPLORE TOGETHER THE IMPACT AND IMPLICATIONS OF SERIOUS ILLNESSES ON PEOPLES' LIVES. THROUGH GUARTERLY VIRTUAL PATIENT-DRIVEN LISTENING SESSIONS, MEMBER SUPPORTERS GET A SEAT AT THE TABLE TO LEARN FROM THE REAL-WORLD LIVED EXPERIENCES OF PATIENTS, CAREGIVERS, SERVICE PROVIDERS AND COMMUNITY PARTNERS. POLICY CONSORTIUM PROVIDES AN INTERACTIVE LEARNING COMMUNITY FOR GENERATING ACTIONALBLE RESEARCH IDEAS, PRAGMATIC POLICY SOLUTIONS, AND ADVOCACY INITIATIVES TO IMPROVE HEALTHCARE ACCESS, AFFORDABILITY AND QUALITY. MEMBERS FROM ACROSS THERAPEUTIC AREAS ARE WELCOME TO THIS FORUM.
Expenses $194,237 · Revenue $292,500
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Al Benson III MD FacpAL BENSON III MD FACP
PAST BOARD PRESIDENT
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
John L MurphyJOHN L MURPHY
FINANCE COMMITTEE CHAIR
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Otis Maynard EsqOTIS MAYNARD ESQ
BOARD PRESIDENT
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Maureen CulbertsonMAUREEN CULBERTSON
BOARD SECRETARY
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Norman Hubbard MBANORMAN HUBBARD MBA
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Larri ShortLARRI SHORT
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Bryan Loy MD MBABRYAN LOY MD MBA
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Robert Winn MDROBERT WINN MD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Daniel Press PhDDANIEL PRESS PHD
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Reginald Tucker-Seeley Ma Scm ScdREGINALD TUCKER-SEELEY MA SCM SCD
BOARD VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Loretta Williams Phdaprnmsn BsnbaLORETTA WILLIAMS PHDAPRNMSN BSNBA
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
David WhiteDAVID WHITE
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1 + 1 related
-
Maria TolerMARIA TOLER
BOARD MEMBER
- Total calculated
- $0
- Hours/week
- 1
-
Dr Alan J Balch PhDDR ALAN J BALCH PHD
CHIEF EXECUTIVE OFFICER
- Total calculated
- $614,315
- From this org
- $125,000
- From related orgs
- $474,031
- Other
- $15,284
- Hours/week
- 20 + 20 related
Schedule J breakdown matched by us
- Base
- $125,000 + $466,850 related
- Bonus
- $0 + $7,181 related
- Other
- $0
- Deferred
- $0 + $13,800 related
- Nontaxable benefits
- $0 + $1,484 related
- Filer's total
- $125,000 + $489,315 related
-
Gwen DarienGWEN DARIEN
EVP, PATIENT ADVOCACY
- Total calculated
- $214,484
- From this org
- $192,268
- From related orgs
- $0
- Other
- $22,216
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $192,268
- Bonus
- $0
- Other
- $0
- Deferred
- $8,311
- Nontaxable benefits
- $13,905
- Filer's total
- $214,484
-
Rebecca KirchREBECCA KIRCH
EVP, POLICY & PROGRAMS
- Total calculated
- $245,995
- From this org
- $224,612
- From related orgs
- $0
- Other
- $21,383
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $223,412
- Bonus
- $1,200
- Other
- $0
- Deferred
- $8,866
- Nontaxable benefits
- $12,517
- Filer's total
- $245,995
-
Melissa WilliamsMELISSA WILLIAMS
ASSOC. DIR., POLICY AND FI
- Total calculated
- $123,725
- From this org
- $104,864
- From related orgs
- $0
- Other
- $18,861
- Hours/week
- 40
-
Caitlin DonovanCAITLIN DONOVAN
SENIOR DIRECTOR PR
- Total calculated
- $109,036
- From this org
- $103,627
- From related orgs
- $0
- Other
- $5,409
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Compensation committee
- 3 · Form 990 of other organizations
- 3 · Written employment contract
- 3 · Compensation survey or study
- 3 · Approval by the board or compensation committee
Answered no
- 4a · Severance or change-of-control payment
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 7 · Other non-fixed payments
- 8 · Paid under the initial-contract exception
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
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501(C)(3) · ASSIST PATIENTS WITH GAINING FINANCIAL STABILITY AND ACCESS TO MEDICAL CARE. · VA
Directly controlled by PAF IS THE SISTER ORGANIZATION TO NPAF MRBALCH IS CEO OF AND PAID BY BOTH
Provenance
- Return type
- form_990
- Tax year
- 2024
- Filed
- 13 January 2026
- IRS schema version
- 2024v5.5
- Source object
- 202600269349300520
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