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Nonprofiteer
← MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC

Form 990 for tax year 2024

Filed by MYALGIC ENCEPHALOMYELITIS ACTION NETWORK INC.

Totals

Total revenue
$651,742
Total expenses
$686,815
Contributions and grants received
$650,704
Grants paid
$500
Program service revenue
$1,500
Investment income
$2
Other revenue
-$464
Total assets, end of year
$96,202
Total liabilities, end of year
$4,780
Net assets or fund balances, end of year
$91,422
Program services expenses (Part IX)
$486,632
Management and general expenses
$104,951
Fundraising expenses
$95,232
Program service expenses (Part III)
$486,632

Program services were 70.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1e · Government grants (contributions)

    $157,245

  • 1f · All other contributions, gifts and grants

    $493,459

  • 2a · Program service revenue: PROGRAM SERVICE FEES

    total $1,500 · related or exempt $1,500

  • 3 · Investment income

    total $2 · excluded $2

  • 10a · Gross sales of inventory

    $2,168

  • 10b · Cost of goods sold

    $2,782

  • 10c · Net income from sales of inventory

    total -$614 · excluded -$614

  • 11a · Other revenue: OTHER INCOME

    total $150 · excluded $150

  • 11e · Other revenue, total

    $150

Functional expenses

Part IX, the statement of functional expenses.

  • 2 · Grants to domestic individuals

    total $500 · program services $500

  • 5 · Compensation of officers, directors and key employees

    total $95,333 · program services $68,631 · management and general $11,179 · fundraising $15,523

  • 7 · Other salaries and wages

    total $422,884 · program services $304,436 · management and general $49,590 · fundraising $68,858

  • 9 · Other employee benefits

    total $2,360 · program services $1,699 · management and general $277 · fundraising $384

  • 10 · Payroll taxes

    total $40,478 · program services $29,140 · management and general $4,747 · fundraising $6,591

  • 11a · Fees: management

    total $755 · management and general $755

  • 11c · Fees: accounting

    total $11,000 · management and general $11,000

  • 11g · Fees: other

    total $71,895 · program services $50,860 · management and general $21,035

  • 13 · Office expenses

    total $7,680 · program services $5,807 · management and general $1,646 · fundraising $227

  • 14 · Information technology

    total $26,358 · program services $23,013 · management and general $1,345 · fundraising $2,000

  • 16 · Occupancy

    total $419 · management and general $419

  • 17 · Travel

    total $4,807 · program services $2,529 · management and general $629 · fundraising $1,649

  • 19 · Conferences, conventions and meetings

    total $50 · program services $17 · management and general $33

  • 24a · Other expenses: BUSINESS REGISTRATION F

    total $589 · management and general $589

  • 24e · All other expenses

    total $1,707 · management and general $1,707

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $142,934 · end of year $91,568

  • 10a · Land, buildings and equipment: cost or other basis

    $4,634

  • 10b · Land, buildings and equipment: accumulated depreciation

    $0

  • 10c · Land, buildings and equipment, net

    beginning of year $1,818 · end of year $4,634

  • 17 · Accounts payable and accrued expenses

    beginning of year $2,887 · end of year $4,780

  • 27 · Net assets without donor restrictions

    beginning of year $141,865 · end of year $91,422

Mission and programs · 2024

Mission

TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH M.E. WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE.

Activities or mission (Part I)

TO BUILD A GLOBAL MOVEMENT TO FIGHT FOR RECOGNITION, EDUCATION, AND RESEARCH SO THAT ONE DAY, ALL PEOPLE WITH ME WILL HAVE ACCESS TO COMPASSIONATE AND EFFECTIVE CARE.

  • MINNESOTA ME/CFS PROGRAM: #MEACTION'S WORK FOCUSED ON BETTER CONNECTING MINNESOTANS WITH ME/CFS, LONG COVID, AND RELATED CONDITIONS TO VITAL HOME AND COMMUNITY-BASED SUPPORT SERVICES THAT THEY OFTEN STRUGGLE TO EFFECTIVELY ACCESS. WE HELP MINNESOTANS NAVIGATE ACCESSING SERVICES TO MEET THEIR DAILY NEEDS, AND TO CAREFULLY EVALUATE THE EFFECTIVENESS OF THIS FUNDED SERVICE DELIVERY. THIS PROGRAM IS A STATE PROGRAM THAT WE HOPE TO EXPAND TO A NATIONAL PROGRAM TO CONNECT PEOPLE ACROSS THE COUNTRY TO HOME AND COMMUNITY-BASED SERVICES.

    Expenses $149,275

  • DIGITAL ADVOCACY AND AWARENESS:ADVOCACY IS A CORNERSTONE OF OUR WORK AT #MEACTION. EVERY YEAR, WE TAKE DECISIVE STEPS TO STRENGTHEN OUR VOICE WITH THE US GOVERNMENT THROUGH THE NATIONAL INSTITUTE OF HEALTH, THE CENTER FOR DISEASE CONTROL & PREVENTION, AND THE DEPARTMENT OF HEALTH AND HUMAN SERVICES. WE URGE EACH AGENCY TO PRIORITIZE THE HEALTH OF PEOPLE WITH ME THROUGH ACCELERATED RESEARCH, CLINICAL EDUCATION, AND A DEDICATED SEARCH FOR AN FDA-APPROVED TREATMENT. INFLUENCED BY THE HIV/AIDS MOVEMENT, OUR ADVOCACY ACTIVITIES INCLUDE PARTICIPATION IN GOVERNMENT COMMITTEES, PUBLISHED PETITIONS, OPEN LETTERS, MEETINGS, PEACEFUL PROTESTS, PRESS CONFERENCES, ADVOCACY DAYS AND MORE.

    Expenses $139,987

  • #MILLIONSMISSING:#MILLIONSMISSING IS OUR GLOBAL EFFORT TO RAISE AWARENESS AND ACHIEVE RIGHTS FOR ME/CFS PATIENTS. SINCE 2016, WE HAVE BANDED TOGETHER EVERY YEAR TO RAISE AWARENESS AND ADVOCATE FOR ACTION.

    Expenses $130,686 · Grants $500 · Revenue $1,500

  • RESEARCH AND MEDICAL:WE AIM TO GROW THE SCIENTIFIC FIELD THROUGH OUTREACH, EDUCATION AND PATIENT-DRIVEN RESEARCH SO THAT TREATMENTS, DIAGNOSIS, AND OUTCOMES CAN IMPROVE FOR PEOPLE WITH ME.

    Expenses $66,684

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Kehsi Iman Wilson

    CO-CHAIR

    Total calculated
    $0
    Hours/week
    1

  • Omar Wasow

    CO-CHAIR

    Total calculated
    $0
    Hours/week
    2

  • Steve Mazur

    TREASURER

    Total calculated
    $0
    Hours/week
    1

  • Niranjan Shekar

    SECRETARY

    Total calculated
    $0
    Hours/week
    6

  • Shaquile Coonce

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Jennifer England

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Robert Sklans

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Elizabeth Weaver

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Laurie Jones

    EXECUTIVE DIRECTOR

    Total calculated
    $75,450
    From this org
    $75,450
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.

Grants on this return

No itemized grants to organizations on this return.

Provenance

Return type
form_990
Tax year
2024
Filed
14 August 2026
IRS schema version
2024v5.5
Source object
202612399349301411

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